Decided the time has come

[mum22boys]

Thats it. I've now made my decision after a year of thinking should I shouldn't I.

 

DS2 is 3 years old and today I decided my life feels far from normal. Not that it has been with DS1 still awaiting assessment but having double doses of wierd behaviour in my house has made me seek advice.

 

I am going to the health visitor tomorrow with my list of things that have been requested by R today. I have a page long list of how things should and shouldn't be done. At the end of the day what with him and M I feel totally drained. I know that this behaviour is not learned from m as it is things he doesn't do. I have spent the year watching r and thinking 'is this right'. Hubby said today it is far from right and to take him along and see what they say.

 

My worry is that I will be labelled a nuerotic mother. After all there may be nothing wrong but I can't be sure. If it was one or two things perhaps i would still be brushing it to one side but it's not. I realise that i feel like I did 3 years ago when M was 3 and i would dread bumping in to people as his response was to either ignore or sound abusive. r is exactly the same when he is spoken to. I suppose I am embarressed by it. Not only that but i feel sorry for R because he spends most of his day crying or moaning because something is not done as he wants it, for example he has to eat with a all silver coloured spoon, get in the car the right side, walk the right side, not be spoken to or looked at at meal times..... the list just goes on and on.

 

Anyway, please all wish me luck as I hope they don't try telling my it's normal as they did with M.

 

mum22boys

[Kathryn]

Good luck mum22boys.

 

You sound well prepared and I hope you'll be listened to this time around. Thinking of you tomorrow. <'>

 

K x

[barefoot wend]

mum22boys

 

You're doing the right thing. Good luck. Let us know how you get on.

 

Barefoot

[nellie]

Good luck mum22boys,

 

You know your boys better than anyone.

 

Nellie xx

Edited September 13, 2006 by nellie

[UltraMum]

<'> <'> <'>

 

Hope the GP listens to the expert (you!)

[Bagpuss]

Hope tomorrow goes well for you mum22boys <'> If in doubt, check it out...... I was concerned about our eldest dd (8) for a long while before doing anything about it. She was dx AS last month. <'>

[Bullet]

Good luck . See if you can print out a copy of the DSM IV with examples of how it relates to your ds2 and take that in.

[lil_me]

Hope it goes ok. <'>

[mbrown]

Just to go along with everyone else, mum22boys, good luck. Is there any chance of hubby going along to the Docs to support you and take the focus of 'the neurotic mum'?

 

Mike

[CarolJ]

My worry is that I will be labelled a nuerotic mother. After all there may be nothing wrong but I can't be sure. If it was one or two things perhaps i would still be brushing it to one side but it's not.

 

Its very common to have one or more sibling with ASDs. It took me 8 years to get dx for my DD. Kept being told its learned behaviour from DS. But DD has issues that DS dont. Thats how i knew because she first showed signs long before DS did. You are his mum so u know best.

 

Good luck

[mum22boys]

Thanks all. I will be taking him after his pre-school session this morning.

 

I will let you know how I get on.

 

mum22boys

[mossgrove]

We'll be thinking if you.

 

Looking forward to an update later.

 

Simon

[asereht]

Hope it goes well.

[JsMum]

Good Luck and your only listening to your insticnts, the earlier we know wha it is the better chance we have of supporting them and getting them their needs met, if you know in your heart something isnt right follow that and just hope that the specialist is a specialist.

 

Big Hugs, and wish you the best of luck

 

JsMum

[mum22boys]

Hi All,

 

Well i've been and was pleased to be taken seriously. I took along a list of things and described what he is like. Made it clear these were not learned from big brother and she was ok. She said I had listed enough things to make her refer him.

He is being referred to the CDC and hopefully we will hear something soon!!!! Won't hold my breath on that though

 

mum22boys

[loulou]

Hi,

 

Glad things went well for you today and you were taken seriously. Well done .

 

Loulou x

[CarolJ]

ditto what lou lou said.

 

It took me years to get dx for my daughter, being told, she is too sociable, she is just shy and awkward blah blah blah, its just a communication problem - but each child deserves the understanding, help and opportunities they can get and if that means having to be be labelled then so be it. Am sure they must think parents must love collecting labels

 

But its very common for more than one sibling in a family to be dx'd ASD. Look at Luke Jacksons family!

 

I have heard of parents with two dx'd kids having concerns about another child but not pushing for dx because they could be viewed as neurotic! Its your parental right to push for what help you feel your child needs.

 

Good luck I have both mine dx'd it was a long fight but they do listen and you sound so much more organised than I was.

[pumpkinpie]

I referred my self to cdc and portage.

Just remeber you dont have to wait for the professionals to be in touch! As paRENTS we have the power and knowledge to take the initative too!

If there is a surestart in your area there is nothing to stop you approaching them yourselves

[Bullet]

Hope the CDC get in touch soon. Pleased the doctor took you seriously.

[UltraMum]

Glad your concerns were taken seriously ... first step on another journey <'> <'> <'> <'>

Edited September 14, 2006 by UltraMum

[Kathryn]

Well done, and I hope your appointment comes through soon.

 

K x

[Tylers-mum]

Glad it went well today. Keep us all posted k. (((HUGS)))

[asereht]

Glad it went ok, at least you weren't fobbed off.

 

Good luck with the appointment