The Screaming Thread

[sonj186]

I have just had enough to be honest! hubby is in the states so cam and i are home alone and its raining! all he wants to do is watch music on the tv! i have been trying to organise friends to play for the last week but they are not even bothering to reply to me! its funny how you think you have friends untill you need them! i always try to help people out! i dont think i will bother any more its all take take take! the worst thing is when we get back to school they will all be talking about all the fun they have had TOGETHER! i have had enough i feel so bad for Cam

[lisac]

stay strong sonj, your better than them,

[smiley]

Ohhhhh good - the screaming thread!!

 

Could do with a bloomin' good moan......

 

I am sore - as in morphine patches sore... ... and confused most of the time, and so flippin' exhausted I've not been able to stay in contact with many friends........... never mind keep up with forums............ am waiting for the oh-so-wonderful specialist team in Southampton as I've baffled all the consultants near me... only a short, 2-3 month wait, so I'm told. Got up from the sofa this morning, to put on the kettle. Both legs went into spasm, and I ended up saying a rather close hello to the carpet..... So, so painful.. ALL the time. Ended up in resus at A&E for five hours, couple of weeks ago. Not fun.

 

Mothers ill AGAIN.... 2 hour conversation this morning, trying to talk her down from a horrific hallucination... And I've just listened to a message on my answer phone (didn't have the energy to answer the phone... She's dyeing ........ apparently........... again......... Oh, and it's my fault.

 

Monkey has his annual review on Friday - I still haven't finished the report...... My mind wont focus. Feel like a ###### mum.

 

I've just had to film monkeys tourettes - for his paediatrician. Watched it back, and am now sat here in tears. The tics are so violent, and upset him so much.

 

Thoroughly, thoroughly FED UP!!!!!!!!!!!

 

AAAAAAAAARRRRRRRRRGGGGGGGGGGGHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH

 

[NickyB]

oh, smiley

 

My mum has bipolar disorder, and used to have the most horrible hallucinations (seem to be under control now ) - and yes, everything was always my fault. The only way I could deal with it was to tell myself that it was her condition talking, and not my Mum.

 

Hope things get better for you very soon <'> <'> <'>

[dooday24]

SENDING U SOME HUGS SMILEY <'> <'> <'> <'> <'>

 

love donnaxxxx

[sonj186]

<'> <'> big hugs for you smiley <'> <'>

 

stay strong

 

sonj xx

[frogslegs]

Smiley, thinking of you. It is very difficult to be stuck in the middle (sandwich generation). (My mother in law has had last been moved to a care home for people with senile dementia after years of nightmare for us (phoning in the middle of the night for example)). Then at the same time having to care for a SEN child and everything! Do you have a network of friends/family?

Take care of yourself <'> <'>

[bid]

<'> <'> <'>

 

Bidxx

[Karen A]

<'> <'> <'> Smiley you put any minor grumps I might have in perspective.Karen.

[baddad]

no words, so <'> <'>

 

L&P

 

BD <'>

[Kathryn]

Smiley

 

 

<'> <'>

 

K x

[smiley]

Thank you <'>

 

Sorry for having a grump

[Karen A]

Thank you <'>

 

Sorry for having a grump

 

 

<'> <'> <'> <'> I think you were very right to feel grumpy.Nothing to say sorry for.Karen.

 

[Karen A]

I feel the need for a moan.Not ASD related at all.

30000 people ran the London marathon today.Some have not finished yet.I am not doing it myself.However I do respect people who are dedicated to training.I also admire people who work hard to raise money in sponsorship.I also think it is worth thanking the many people who gave up a Sunday to support people and hand out water.

What I have a problem with is locals who celebrate the day by camping out at the local pubs from about 1100 as it is such a nice day.Some with children and toddlers.

At 1700 police are now having to go in to marshall the now drunk individuals and encourage them to move on.I am not happy.

[Mumble]

What I have a problem with is locals who celebrate the day by camping out at the local pubs from about 1100 as it is such a nice day.

Yeah definitely - and not helped by the fact that every race guide I had in the local papers etc listed all the best pubs for the best views as if that is the only place you would want to go. I've moved now, but I used to live on a road the marathon went down with a pub at the end, so I totally understand what you mean. <'>

 

Ooh, but well done to the Nutters who thought it would be a good idea to run 26 miles I knew a couple of people running this year and I have great admiration for what they did :clap: :balloon:

 

[cactuslove]

Great thread. Reasonably calm now but know will have to come back soon for a good roar

[Mumble]

Feeling really pants. I look like I've done ten rounds with Mr Tyson I could cope with bruising my arms and legs by hiding under hoodies (as in the garment, not a particular sector of society ), but unless I wear my hoodie back to front (which I would assume comes with an express ticket to the loonie bin (no offence meant to anyone in using that terminology)) I can't cover up my face and developing shiner.

 

[Karen A]

Feeling really pants. I look like I've done ten rounds with Mr Tyson I could cope with bruising my arms and legs by hiding under hoodies (as in the garment, not a particular sector of society ), but unless I wear my hoodie back to front (which I would assume comes with an express ticket to the loonie bin (no offence meant to anyone in using that terminology)) I can't cover up my face and developing shiner.

 

<'> <'> <'> Sorry you are not doing well.Karen.

[Mumble]

Why do I bother? I'm not going to ask for help again. If you ask you reveal your weaknesses for all to see only to end up with the same outcome - no support when you really need it. Now everyone knows what a wimp and a wuss I am because I've said I need help so they'll think differently of me but I get no help. This is too much for me at the moment and people can't see that. How much do I have to scream "I need help" to get some support before it's too late. Surely it's better to give me help whilst I'm 'just coping' rather than let everything fall apart from where it will take longer to recover? But that's what's going to happen if I'm not given help - I am going to fall apart again and I really don't want to go back there. I walked most of the way home today (4 1/2 miles) because I couldn't cope with arguing with the bus driver about my ticket - I can feel that I'm on the slippery side of falling down rapidly.

 

[Mumble]

Aaarrghhh, aarrghhh, grrrr, OK that's it, I give up. Stupid idiots can't even answer my simple questions. One day I'll learn that things don't change and there's no point even trying. One day I won't be so stupid to think that I might actually matter and that people who's job it is to help and support me might actually do that - because it's never going to happen. Anyone know where I can buy one of Temple Grandin's squeeze machines from cause I really want a proper hug right now and not to feel so ###### alone.

 

[Karen A]

Aaarrghhh, aarrghhh, grrrr, OK that's it, I give up. Stupid idiots can't even answer my simple questions. One day I'll learn that things don't change and there's no point even trying. One day I won't be so stupid to think that I might actually matter and that people who's job it is to help and support me might actually do that - because it's never going to happen. Anyone know where I can buy one of Temple Grandin's squeeze machines from cause I really want a proper hug right now and not to feel so ###### alone.

 

<'> <'> <'> Karen.

 

[cactuslove]

fed up with people thinking they have some sort of right over my child and can give her the impression we are paranoid parents so now she is obsessed with her human rights and we are just being silly and over reacting to her behaviour. AAAAAAAAAAAAAGGGGGGGGGHHHHHHHHHH!!!!!!!!!! We want help but not people who know nothing going behind our back and making things ten times worse.

[sonj186]

Just back from my sisters where we spent the weekend cam spent the whole time being ignored by my niece even though we were there to celebrate her birthday! where my sisters father in law screamed at cam for throwing stones which turned out to be tree bark! cam hid behind the trampoline and wouldnt come out then my niece started laughing and going on about cams issues! she then spent the night speaking to me like something she scraped of the shoe! Familes! ive had enough!

[frogslegs]

Oh dear, you are all going through it! I think about you all... <'> <'> <'>

Mumble...you definitely matter.

[bid]

###### lining paper!!

 

Boho

[Diane]

I am feeling so miserable for lots of reasons. I am not that miserable that I cannot send you all some of these.

 

<'> >< <'> >< <'>

 

I am so miserable I cannot even be bothered to share any of it, the effort of typing it all is just too much.

 

There is only one thing left to do until I feel that should take my mind off things.

[frogslegs]

Where are you trying to stick the lining paper if you don't mind me asking?

Go and take a breather and things will seem better a bit later. <'> <'> <'>

Mel

 

[frogslegs]

I am feeling so miserable for lots of reasons. I am not that miserable that I cannot send you all some of these.

 

<'> >< <'> >< <'>

 

I am so miserable I cannot even be bothered to share any of it, the effort of typing it all is just too much.

 

There is only one thing left to do until I feel that should take my mind off things.

Oh dear.... <'> <'>

[bid]

Where are you trying to stick the lining paper if you don't mind me asking?

Go and take a breather and things will seem better a bit later. <'> <'> <'>

Mel

 

Still in my bedroom 'cos the walls really need skimming but too expensive.

 

Still struggling on

 

Then it needs to be painted, and then I have to hang my posh feature wallpaper on one wall

 

I hate wallpapering!

 

Boho

 

[Mumble]

I hate wallpapering!

Can your OH do some whilst you 'direct'?

 

[bid]

Can your OH do some whilst you 'direct'?

 

Have you met my DH??

 

Boho

 

[frogslegs]

In our first flat the walls were dire so we used this special paper with a relief (there was quite a wide range of patterns in shops) and covered everything with it and then painted on top, it looked nice. You sound very ambitious! Now we live in a modern house but it still took my husband three weeks to paint the hallway, staircase and landing, mind you he had to paint 11 doors! I get to hear a wide range of swear words whenever he does anything like this. I hate it and he won't let me anywhere near a brush (don't know why really.. ). He once decided to paint the kitchen over Christmas, can you imagine cooking the roast in the middle of paint pots?

You have all my sympathies!!!

[Diane]

In our first flat we painted 24 different paint samples on our bedroom wall, decided we did not like any of them so wallpapered. lol

[frogslegs]

When we painted the hall five or six years ago, we started with red as it was the in colour at the time...we quickly had to stop because it seriously looked like someone had been murdered in the house. Instead we went for a wishy washy lilac. Brrrrk

[Sooze2]

AAAAAAAAARRRRRRRRGGGGGGGGHHHHHHHH!!!!!!!!!!!!!!!!!!

 

[kellyanne]

I'm having a rubbish time at the mo. my middle DS has had a dx of autism last week. My eldest DS has had huge probs at school we've just mooved house and I'm still fighting LEA for a SA for Ds1. I just think everything has gotten on top of me

[bid]

I'm having a rubbish time at the mo. my middle DS has had a dx of autism last week. My eldest DS has had huge probs at school we've just mooved house and I'm still fighting LEA for a SA for Ds1. I just think everything has gotten on top of me

 

<'> <'> <'>

 

Bidx

 

[Karen A]

I'm having a rubbish time at the mo. my middle DS has had a dx of autism last week. My eldest DS has had huge probs at school we've just mooved house and I'm still fighting LEA for a SA for Ds1. I just think everything has gotten on top of me

 

 

<'> <'> <'> Karen.

 

[bid]

Have just eaten a family size bar of Galaxy

 

Trying to finish off the lining paper today...just done all the fiddley bits round one side of the window recess...only to find I had made a mistake with the measuring and it was too short!!

 

Arrgghhhh and

 

Boho

Edited May 8, 2009 by bid

[Karen A]

Have just eaten a family size bar of Galaxy

 

Trying to finish off the lining paper today...just done all the fiddley bits round one side of the window recess...only to find I had made a mistake with the measuring and it was too short!!

 

Arrgghhhh and

 

Boho

 

I want some.