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UltraMum

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Everything posted by UltraMum

  1. P.P.S. We were 2 years on SA+ with J too!
  2. It sounds just like our LEA and PP - last time we asked if she could take notes - 5 sentences from an hour long meeting!
  3. We used these both at the dentist and on airplanes. J hates the light at the dentist so we have a pair of sunglasses and now he has the ear defenders on top he looks really in the chair! But it means he can have his teeth filled etc - (Having 5 out next Monday though ) The first time we flew with J he sat between us and he had his hands over his ears, his dad's hands on top of those and mine on top of his dad's! Much better with ear defenders. Also we ask for seats well away from the noise - most airlines have a 'special needs' number you can ring and ask.
  4. UltraMum

    statement or not

    Nix - I think you might be correct in this. At the moment the school LEA are funding 1:1 via the schools own budget - this is a lot to be funded for one child at School Action Plus - it may be that the HT at the school has identified this situation to the school LEA and they have realised a way to save some money. If your son has a statement from his home LEA then they will be the ones funding the 1:1 and not the school LEA - however you will then face a battle to a] get the statement b] get the level of provision your son requires and c] get the present school named in the statement as it is out of the LEA I would suggest you ring IPSEA on Monday and talk to them so you know exactly where you stand. IPSEA: England and Wales (freephone): 0800 0184016 Mon to Thu 10--4 and 7--9; Fri 10--1 and 7--9
  5. We have just stopped our 9 year old from doing this - he used to smell his fingers afterwards! - we used a squeezy ball to occupy his fingers.
  6. I'm off to see her, along with Luke and Jaqui Jackson, on Wednesday in Sheffield. I'll let you know ...
  7. J was in trouble for hitting at the start of term: in his case he was being 'annoyed' by some of the other children - for 'annoyed' read, in all probability, 'teased'.
  8. Our LEA works the other way round - our HT's first concern about what was written into the statement was whether it was 'low' incidence ...
  9. I think that unless you've had a letter from the LEA advising you that they are making an assessment under the Education Act then you could well be on a hiding to nothing ... I know that sounds cynical but ... I would suggest that you ring IPSEA: England and Wales (freephone): 0800 0184016 Mon to Thu 10--4 and 7--9; Fri 10--1 and 7--9 I don't know what time your meeting is on Monday but a call to IPSEA will bring you lots of advice.
  10. J loved it - thanks - but now he's being a PITA and won't let me change the screen! I'm going to log off and watch the X factor. Hi Donna - I've learnt so much about my son by reading your books
  11. Great news - the system can do it if it tries [with a little bit of help!]
  12. So now you can sit down with a nice cup of tea?
  13. Hi and welcome to those who are new. My son J likes me to put the bunny in my messages so i'll do it even though he's at school at the moment!
  14. Hi Tylers-mum I don't know if you've contacted IPSEA or not but on their website they quote a landmark judgement that basically says the LEA have to specify clearly what the actual level of support is in the statement - not just quote a banding level. This judgement, known as R v Cumbria County Council ex parte P 1994, is now quoted by parents when LEAs refer to a band or level of support or a sum of money to be made available in a statement instead of specifying the actual provision a child should receive.
  15. UltraMum

    VICTORY

    Brilliant news! Sorry to be so late with the congrats!
  16. J was assessed with a reading age of 16+ at age 8 years and six months - but his comprehension was only (!) assessed as 11years. I struggled with this for quite a while as I couldn't understand how he could read something but not comprehend it ... until I read Understanding and Working with the Spectrum of Autism: An Insider's View by Wendy Lawson. In it she wrote about children with autism being taught to 'read for meaning' - she said that unless she was told that she had to answer questions on a book or passage she just read the words because they were there. It helped me to understand a little bit better ...
  17. One of our mealtime rules is to sit with your knees under the table ... so the other day J was at the table, half in/half out of his chair so I said to him: "Where are your knees?" - ie he should be sitting with his knees under the table and he was sitting sideways on ... he pointed, somewhat puzzledly, to his knees and said "Here" so I then said " ... and where should they be?" to which he looked even more puzzled and said "Here" pointing to his knees again - oops!
  18. I ticked 'applied and was successful'. We applied when my son's diagnosis was ADHD, Dyspraxia and 'autistic tendencies' - they sent a doc out to assess J and he spent the whole time running from one end of the house to the other or bouncing on the settee - doc couldn't wait to leave! Got to reapply shortly so now working on what to put on the form again!
  19. Waccoe - I went to a seminar y'day in Wakefield run by Special Abilities and they mentioned that if your child has a disability and is over 5 you can still enlist the services of an HV. The NHS Careers site says this under 'Health Visitor' As a Health Visitor, you will undertake a range of work. You may be working with mothers of young babies - advising on such areas as feeding, safety, physical and emotional development and other aspects of health and childcare. You might also work with people of any age who suffer from a chronic illness or live with a disability. Your role here will include helping them to overcome difficulties they may face in coping with their illness or disability. Worth ringing them up?
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