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Cariad

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Everything posted by Cariad

  1. Cariad

    Cure

    ITA, if there was a cure it would totally change my son into another person. He would be my "T", it's like rubbing away his quirks and personality! I do feel quite defensive about this, maybe if he was still a baby but...now he is 12 and is a person in his own right it wouldn't be right!
  2. What a great post, well done Jsmum's DS and lisa35's DS
  3. I couldn't think of a good way to describe it I've had to go up to the school as my DD1 has been bullying two other girls in her class, also a student teacher who has since left. She has been putting nasty notes in peoples drawers and name calling and being very unpleasant. They asked if anything was wrong at home and all I can think of is that life with "T" is hard! She is older than her years (9) in the way she acts and is amazing with "T" (12), she hugs him, helps him etc. She is awful to her younger sister (8) and will have physical fights with her. Has anyone had this happen with their other children, Or can anyone shed any light on it?
  4. Cariad

    petition

    I've signed it but I think it's different for all AS/ASD people, you can't class them all as disabled, there is a very grey area in all this, just my opinion anyway.
  5. Thats very stereo typical of them isn't it, can they count matchsticks like in Rain man too? It's information like this which keeps letting down our kids, very ignorant. My son's aspie friend has problems with writing and maths etc, they are just a bit different as in ASD and AS dx's.
  6. I'm so sorry you are going through this, I had similar with my son when he was in primary school. All you can do is keep taking him in until they refuse to take him while you are waiting for the referral. I'm sure they can see how hard you are trying with him, maybe give CAHMS a ring and stress how bad it is atm and maybe they might hurry it along?
  7. I remember last year going through all the LEA's lies and pouring it out on here. The things they will say to win is disgusting!
  8. How wonderful, it's such a relief after going through a tribunal to win.
  9. T was my first so I had no other children to compare him to, he was floppy and laid back, could only feed on an oz at a time then wind or he'd bring it back up with such force it would shoot across the room. When my daughter was born she was alert and nosey, and when she had the heel prick test she arched her back and turned her head to see what they were doing!! I was shocked, she looked like a demented monster My other daughter was alert and into everything, by then T was having tantrums and you couldn't look at him as he would have a meltdown and throw one of his 1000000000 dummies (yes another toddler obsession)
  10. Aww thats fantastic JenRose, you must be so proud of him
  11. Success the chocolate kind of worked, he was actually a bit faster at getting ready, we are on day 2 of "dressing = chocolate" Thanks everyone
  12. Lisa I have the same, the same silly noises when I'm trying to make him dress himself and go to bed. It's so frustrating and it is always a constant battle. It is somewhat comforting that others are in the same boat and I don't feel so alone. Thats why I come to this site as we are all feeling are way around and trying hard with our children! <'>
  13. Thanks Deedee, I never knew there were such things as that! I did ring the DH in work but they don't do it, but it was worth a try
  14. I think our boys could be twins Janey My son loves anything green, he has to have green shower gel and green deodorant and green pens and a green bowl etc, and his room is a soothing green too.
  15. It goes straight into the housekeeping, ie food shopping and bills.
  16. I'm having trouble getting funding for my son's extra strength bed and flooring, social services came around last summer and did an assessment on T's room. They said they would change the light fitting, put a safety catch on the window and make the door open onto the landing instead of inwards as it's such a small room. My end of the deal was to have the walls plastered and painted(as he smears), they said they would approach charities for funding for a bed for him, atm he is sleeping on a sofa bit on the bottom half of his bed, as he fell out of the top bunk onto his face (he still has the scars) and is now scared of it! The sofa part is very uncomfortable and we have put a double duvet folded to make it more comfy for him to lie on. I've tried a few charities and family fund but you can't have any help if you earn over a certain amount. I'm so desperate to get him a bed and flooring as he has ruined the carpet by ripping it up and smearing and it's in a state. I've put the flooring behind in the shop and will get a memory foam mattress and pay weekly thought the catalogue. I feel like I'm getting nowhere fast, I pray for the day he will sleep through the night in a comfy bed, we have a memory foam topper on our bed and he loves it. Anyone got any suggestions? (we do have a social worker and she is trying also but coming to dead ends)
  17. T was born 18 days late, he just didn't want to be born. I had countless gels and eventually after 4 days I went into a very slow labour and had him a few days later (with complications). The Dr's said to me maybe because he has special needs he didn't know when it was time to be born, which is quite interesting in itself!
  18. It's funny you should say that, I had so many bleeds throughout the pregnancy and after countless gels as I was due the 11th Dec he was born the 29th Dec, they said that maybe he didn't have the signals other babies have to tell them it's time! It all came back to me Bid with your post!
  19. FWIW my son (12) says this in temper. He told me he would strangle me to death today, I then said he wouldn't get tea if he did that
  20. My son gets nose bleeds al of the time, sometimes he picks his nose and it bleeds for up to an hour, sometimes they just happen.
  21. T was starved of oxygen as he had shoulder dystocia and had the cord wrapped around his neck, he then didn't sit up, crawl and walked like he has drunk at 18 months, then the strange language and obsessions. He had an MRI and half of his brain was completely flat! It was ruled out that the damage happened at birth, but I still think the difficult birth caused these problems as nothing was picked up on any of the scans. He has since been DX with ASD, ADHD, TS, SID and balance problems.
  22. Thanks Madme, I'll be ordering that tonight!!
  23. Thanks lobuylou2, I've just come back from shopping and I have got some miniature heroes, they might make him get dressed. So I'll try the game approach again and whoever wins gets a chocolate!
  24. Every morning it's the same, I wake him at 6.30am for his Ritalin and he snoozes until 7am while I do the packed lunches and get the uniforms ready. I dread the DS getting up for the school, his sisters dress no problem and there is minimum fuss. He refuses to get dressed, makes moaning and screeching noises and laughs as he knows it's winding everyone up, kicks me and laughs and says "ha ha kicked you", then calls me names usually beginning with F. When I say I'll time him and if he doesn't get dressed he'll lose his nintendo DS he doesn't care, or his PC. Then when he does lose it for his behaviour which is dreadful he screams and attacks me and uses awful language. I've tried being nice, helping him, standing over him, making it a game but he's still the same. In the end I had to get out of the room as I can feel myself getting very cross, I have two others to get up and out in an hour too. Last night I used the tips from the child psychologist when he was shouting for four hours after it was bedtime, it sort of worked but then he'd go back to the same behaviour a few minutes later. I'm totally drained, he can dress himself, he does it in school, they time him, I've tried every way I can. Anyone got any ideas?
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