ryansmum2

hi there, my son has Aspergers and Severe Dyslexia, he started secondary school in Sept 20011 , he has a 'note in lieu' , but things have gone from bad to worse for him ... he has developed a severe case of school phobia - vomitting , insomnia , severe anxiety ect ( mainly due to 1 subject - French , and is stuggling very baddly with 4 other subjects) but seems to be coping ok'ish with maths / science / geog / tech im a bit rusty on where to start (due to ill health myself), basically i think i need to try to get him Statemented do i ask for a re-assesment 1st , or do i ask for a Statement ? the 'note in lieu' has about 5 months remaining on it, befor a review. many thanks for your help in advance , mel xx

thank you both fot your help / advice / and time , best wishes mel xx

DEAR ALL, PLEASE can u help me ... i think i am being 'fobbed off' by high school and EDUCATINAL PYCOLOGIST ... BASICALLY MY SON HAS BEEN ON sen rEGISTAR SINE THE AGE OF 7YRS OLD, and has always had regular Re-Assesments by hus edsyc (last one in june 2011, in preperation for high school) as it was boarder line as to wether he sould be placd in SEN Class, or mainstream... everyone decided he should try mainstream, and if problems began, that he would the go into the sen class. anyway, as i predicted , the problems have been HUGE ... sever shcool phobia , insomnia, vomitting before school, severe anxiety ... the list is endless we have as parents ad many meetings with the school , thry keep telling us things will be put into place , one eg, is that they promised before xmas 1 to 1 support for french ... jan, no 1 to 1 maade phone call to sen teacher, she promised FAITHFULLY , that 1 to 1 would be there at the next lesson ... NO IT WASNT ! Anyway , i though , right , i'll go staight to the LEA and contact his edsyc, who told me ''he could do nothing untilp l , my son had been re-referred to the service and this could take weeks or months untill my son could be seen'' he told me this was because my son had changed schools - he started secondry school , not moved out of the area or anything like that , in fact the high schoo is next door to the high school ! sould the 're-refferal' if it is 'true' , should it of been done before leaving primary , or should the high school of done it back in september when he started ? im so confused , and feel like everyone is 'fobbing me off' please can anyone help? thanks so much , mel xx

[/size] Hi there - yes I had EXACTLY the same thing happen in our shcool, not with my AS Son but with my daughter (who's extremely good at writing/english ect) NOT that , that changes anything - basically we were still CONNED !!! The book we had to pay for was about £18 After we'ed paid the money for the 'special /unique book' we then found out that about 10-15 children out of ALL the classes in the school, had, had their 'poems' printed in this 'special' book - again I WAS CONNED ! I complained to the school about it , as many of the other mothers did - because these people can only get hold of the childrens poems via prior arrangement via the school / teachers - so basically its down to them - there is a web site which explains ALL - www.youngwriters.co.uk if you go to FAQ half way down you'll see THE ONLY mention on the website about the cost to parents - obviously the teachers are not reading through the website properly and I too totally agree with Kateball ... Competition??? I dont think so If we all complained via the www.youngwriters.co.uk 'about us' page maybe they would have to re-think what they are doing to us parents, especially us on low incomes... mel xx

Hi thanks for the Enid - mel xx

hi JsMum so glad to see your back ! thanks so much for that link - i searched but couldnt find anything Duh ! it was just what im looking for - do you (or anyone else!) think that they could help my DS he's 81/2 years ols and has : a DX of aspergers tioleting issues severe lack of concentration '' '' '' motovation only on level 3 reading can hardly write '' '' spell even simple words well below his peers has no friends is certainly depressed shows signs of anxiety severe ballenceand gait issuses toe walks ALL the time makes 'odd' movements 'gigs' back/forth ,up/down talks completey out of context very irritable has huge out-bursts of anger i could go on and on - can they help ? thanks again mel xx

hi all i've heard many of you talking about CAMHS and have just found the website but i dont understand how they can help with Aspergers ? my DS is have real trouble at school (learning and social) and school advised talking to CAMHS, but i can only see them covering England and im in Wales? do wales have a CAMHS or something similar ? and how could they help? id be most grateful for your comments thanks mel xx

THANKS so much - i havent a clue what to write ! mel xx

hi all, please can you help me - im trying to write my 1st letter to the LEA asking for an Assessment, i have filled in - what the problems are / how they effect him etc. but now im stuck with what i need to write to explain ''Why I feel the school can't support my DS ?'' hes had an IEP and been on SA for the past 4 years and SA+ for the past 2 years - but still is so, so behind all the other children in his class. i dont know if anyone can help ? if you can id be ever so grateful many thanks mel xx

hi Both thanks so much for that - i think i will print out this info and show it to the so called 'Senco' she of all people should know all about the rules of an IEP My son has struggles for 4 years now, 1st on SA then SA+ - the shcool has only been giving him a new IEP, ONCE a year - and we have only signed one TWICE ! Thanks so much for the links, mel xx

hi Nicky thanks for that ! yes , i wasnt sure though ,that if the parents think that a Statement is nesscesary , wether we can apply for a Statement before an Assessment ? im so confused ! mel xx

hi all please can you help me - i'm confused as to where to go from here, my son really, really needs so much more help than he's getting (this has been more than confirmed by his teacher) he has 1 to 1 1/2 and hour per shcool day, has DX Aspergers, and has been on SA+ for last 3 years.... do i ask for an Assessment or for him to have a Statement ? do i do the one before the other ? any help / advice would be great many thanks mel xx

hi all the Senco at my sons shcool informed me that 'we the parents' have nothing to do with the writing up of a new IEP is that right ? i always thought the parents were meant to be informed /help write it/ and sign it for 2 years in a row now we have not been shown the IEP until about 6 months after its been put in place arent they meant to be signed stright away by the parents ?? my son is on School Action Plus and has been since year 1 - he's now in year 4 and the IEP is only getting changed once a year - he is struggling teribbly in every aspect of shcool - he's is mainstream any thoughts ? mel xx

hi I have researched weighted blankets for over 2 years before i started to make them. The feedback i have had from parents, teachers and Ocupational Therapists has been MORE worthwhile me making every single blanket. I have had so many letters and emails thanking me so much, not just for the beautifully made blanket, but most importantly the DIFFERENCE they have seen in their child/ pupil just by using the blanket, The deep pressure the blankets provide calm the child body , which in turn then calm the childs mind ... i.e. if you can calm the twitching . jigging. flicking, jerking , it leaves LESS in the childs brain to ''think about having to do'' i.e. they dont have to twitch, jerk, flick, jig up and down anymore - beacuse the pressure therapy from the blanket has taken away that NEED to keep doing it, therefore they dont have to THINK about doing it anymore ! in turn, this calming of the body enables the brain to calm down also, all the child HAS TO DO now is relax and go to sleep - the relaxing part is taken care of too, again due tho the deep pressure therapy. I hope this helps you understand how weighted blankets work, best wishes mel xx

hi many thanks for your answers - Jsmum, thats for the advice , i will do just that, i'll let you know how i get on thanks mel xx

hi All please can you help - ive heard you all talking about CAMHS ... please can you tell me : Who they are ? How can they Help ? My son is 8ys and has Aspergers (recent DX) he only gets 1 hour per week 1 to 1 in school - which i dont think is enough could CAMHS help ? He can hardly write , spelling is almost a no- go area, and is only on reading level 4 - roughly age 5-6yrs normally. Last year his one of his IEP tasks were to be able to WRITE HIS NAME - he was 7 then ?? He cannot go to no.2 toilet on his own - he needs help to clean himself ! He also suffers with Toe Walking to such a sever degree that he has to have Physo thereapy weekly and special shoes to wear. I just feel like im getting knowhere FAST - can anyone help ? thx mel xx

hiya thanks for that - im getting one too - i know EXACTLY what you both mean its so ,so hard to try to think what my DS would like / enjoy/ play with i think the Science Museum stuff is GREAT for our boys ;o) mel xx

HI sounds exactly like any other 'normal' teenager dont worry it will come in time just keep reminding her - and when she does do it right tell her how VERY NICE she smells !! perhaps you could buy her some perfume - tell her she's old enough now to have 'grown up perfume' nail varnish / Johnsons powder smells lovely ask her to use it after shower/bath - things like that - and complementing her on how she looks/smells mel xx

hi toe walking is VERY common within the autistic spectrum especially with aspergers, funny all my sons (3 oth them!) and my brother, all do it - my daughter does not ?? (but she has no autistic signs) the males in the family , all have autistic 'symptoms' (especially my brother 30yrs old) but only my middle boy has has severe difficulties that i knew had to be looked into - hence the final dx of aspergers after a 3 year wait ! i can stress enough how important it is to get your children checked out id they are doing it - as it can cause extreeme problems in later life bfn mel xx

hi how old are you ? i ask thi,s as my almost 17yr old son still does it, wether hes walking ,running,paying footie. and what 'lab' were you tested in - why were you there? i ask this as you really should be under a pysyo therapist as my 8 yr old is - he just been dx with aspergers - and his toe walking is very promenant, he gives hime exercises to do at home - and once a week he goes for PT at the hospital they have recently offered him putting his legs/ffet in plaster for one week at a time - to try to stretch the muscles - i dont like the idea as i seems cruel - but it could be benificial to him also ... his also attends the ORTHOTICS DEPT at the hospital wher they fit him with special shoes that is almost impossibleto toe walk in he was reffered to both these unitd vis the consultant - but you can go to your GP and ask to be reffered - im sur they can help you dont forget if the toe walking doent stop , the older you get the worse the pain will get - get help now !! my eldest (17y ) is not on the spectrum, so i didnt think any thin was wrong with him doing the toe waliking - however we now know that is can cause many problems in later life such as 'thickening of the ankles' and 'pain' as you describe hope this helps melxx

hi all there is a listing further down the page discussing the 'days at home' form from the DLA does anyone know what this is ?? is it extra money from DLA during Summer Hols ? how to apply ? how much it is ? my son is on Middle rate care and Middle rate mobility - can he get it ? many thanks mel xx

hi, he sounds just like my boy - hes 8 yrs and just been dx Aspergers he does this kind of thing all the time - just now he's sitting next to me trying to whistle /hitting 2 sticks together(out of bow& arrow set) / mubbling all kinds of rubbish/ and watching tv at the same time ... after me tell/asking/pleading with him to stop - nothing works !! I know EXACTLY how you feel, its so hard, but we just have to put up with it i guess,as nothing has worked for us either. all i can say is stay calm, try to get some 'ME' time, even if hubby/mother/friend can look after him for half an hour for you to go get a relaxing bath / listen to music / read. mel xx

hi there lol wait till he's 16 then !! it just gets worse ;o) you say he has never been angry or thrown many tatrums before... so i dont think its conected with his condition - does he have a dx ? it does just sound like part of growing up, mel xx

hi - yes consolidations loans are normally a BAD idea - but with the CCCS (whom are government and Bank/Building Society funded!!) and the CAB they have the power to 'force' lenders to STOP adding anymore interest - and EVEN to decrease interest already having been added ,they also have the 'power' to DECREASE the amount you owe the lenders (by rather alot too!!)- like i said - it can be done - it was done for us,i still have the bills to prove it... its no good doing anything online with the CCCS - you need to make an appiotment and go see them, BOTH CAB & CCCS can CERTAINLY help you LOADS, as you have Less coming in than going out - thats what they are there for - not for people whom CAN afford to pay - they are for the likes of us - who really cannot go on any longer with Less coming in, and far more than that going out. I think you should take a look at the Money Saving Expert Forum/Advice for help and support - rather than on here as this is ASD site - you will get FAR MORE help and advice from many more people/experts who really know their stuff. If you still are struggling for food/basics - im sure your family/friends wouldnt see you and yours go hungry ? Even if they are short themselves, i wish you all the best xx

hi there, oh, im so very sorry to hear about your son, it must be so frightening and draining for you - AND for him too ! you both must be worn out, as i was reading your post, i instantly thought of a Weighted Blanket for him - they weight of the blankets CALM the Childs BODY which in turn have a CALMING effect on the MIND - therefore aiding relaxation & concerntration. They really do work wonders - i have made 1000+ of these now, and the letters i get back from parents/carers/teachers/physios ect have been tearfull to say the least - i also use them for my DS too, he doesnt have anger/aggression outburts as bad as your son - however since using the blankets he has improved ten-fold. I dont want to go on about how i make them, and how good they are - you must make your own mind up - but i believe your son could be crying out for some Deep Pressure Therapy which is what these blankets provide. Another thing you could try instead of forking out �100 on a Weighted Blanket, is to use old fashion HEAVY WOOL blanket - the ones with the silk/satin arround them - you can normaly pick them up in a charity shop you could try this to see if it helps him i wish you the best of luck - mel xx