Don't know if I belong here

[Karen A]

Hi I decided to try and update you as I am a bit confused.Many of you will know I joined the ASD forum several months ago.Ben had been Dx Developmental Coordination Disorder.He also had an ADOS which raised enough concerns for the ASD outreach team to provide support in school.Ben's social communication difficulties were documented on his statement.However I have a very complex mental health history.I suffered significant childhood trauma and as a result I was very unwell when Ben was very young.

The Psychiatrist with Camhs was not convinced enough after the ADOS to Dx Asperger syndrome[We do have a lot of confidence in her].Camhs thought it would be worth Ben having an Assessment for Psychotherapy.OH and I were also offered an Assessment for supportive Psychotherapy.We have had two appointments which in view of the stuff we looked at were very difficult.We have not found out yet what Ben's therapist thinks.However our therapist appears to think that childhood trauma could be a major factor for Ben.

So having been here for months I don't know if I should be here.However the forum has become a very important support and I don't know what to do.

I had also talked to Ben a bit and he had picked up a few bits about Asperger syndrome along the way.He also joined wrong planet.I don't know what to say to him either.

I am confused.Karen

[baddad]

Hi karen -

 

All sorts of people use this forum for all sorts of reasons: We have carers, classroom support staff, researchers, medical specialists, all of whom pick up all sorts of interesting and useful bits and pieces that are relevent to both spectrum disorders AND all sorts of associated/co-morbid conditions...

From what you've described today and in the past, the nature of your son's social difficulties - whether AS or not - are certainly such that strategies discussed and highlighted on the forum would probably be useful to him.

As far as the dx goes, sounds like it's early days and there are all sorts of possibilities being looked at - which is really, REALLY positive, but from the sounds of it nothing is particularly clear as yet(?) However that evolves - even if at some point you are looking at your time here as an 'academic' exercise - so long as you and he find it helpful it sounds like a good place to visit

Hope you're around for a long time to come, whatever the conclusions of your son's evaluations

 

L&P

 

BD <'>

[opheila]

Karen the one thing i have learnt is there is not many places you can go to for support or sound off.

If you find you get any benefit at all from this wonderful forum then you belong and continue using it. I have found this site to be a life line for me and when i recieve answers to questions i know i am not going mad because there are many other people at there just like me.

I hope this helps answer your question <'> <'> <'> <'>

[Bagpuss]

Karen, if you find being part of the forum is helping you, then stick around. Nothing is set in stone. I for one enjoy reading your posts and I'm sure you can identify with many of the difficulties, hopes and fears we express on here for ourselves and our children. You don't know as yet how it will pan out for your son. Take care <'> <'>

[nellie]

Karen, <'>

 

We like having your here, you like being here. That's settled then, you're staying.

 

Nellie <'> <'>

[Kathryn]

Karen

 

Don't even think of going

 

I hope you find some answers soon <'>

 

K x

[della]

I agree - don't go. You certainly helped me a lot when I was confused. As for what to say to your son - well I have had doubts about my son being aspergers and I have told him this. He deals with it fine. He seems to pick out the aspects that fit him, it helps him identify and recognise stuff about himself.

[marshmallow]

Your posts have been really helpful, so please don't go. <'>

[pumpkinpie]

Lets face it whatever the difficulty we are all in the same boat! I mean parnts just trying to get through each day and doing the best for the ones we love.

Its not easy and this is one of the few p[laces you can sound off, people wont think you are mad and can get practical help!!!!!!!!!!!!! We all need each others help to get through the days,

[Karen A]

Thankyou all so very much.I never expected to get such a response.I don't know what I would do if I did not have here.You have been such a warm and knowledgable group of people.We do not have close family around to support us-so here has come to be very important.Life just feels very hard at the momment.I have had to talk about extremely traumatic events-that I thought I had covered.It is very difficult having to go over things with new professionals at this stage.Thanks again. <'> <'> Karen.

[bid]

Don't be daft...of course you belong here! <'>

 

Bid

[annie]

It sounds like you've decided to stay, I hope so.

 

Annie xx

<'>

[stressedmumto2]

<'> <'> <'> <'> <'> <'> Hi, just wanted to say whatever your child has or deosn't have if you have found somewhere that you are able to talk about stuff,express your concerns and pickup some advice aswell as give it then you should certainly stay.

 

Also your child can be assessed at a later date and may be on the spectrum, as I know the paeditrician who I had seen recommends that children still get seen and assessed as often problems arise and problems change.

 

Sending you lots of hugs <'> <'> <'> <'>

[PinkSapphireAngel]

Hun if you feel supported here then here you belong !!! <'>

[Karen A]

Thankyou all. You are such a wonderful group of people.I am a bit shocked as I did not expect to get such a response----I just did not want to be here under false pretenses .So looks like I shall not be going anywhere.

Thanks again.Karen <'> <'> <'> <'>

[butterfingersbimbo]

just want to send you loads of pos vibes, it sounds like you and your family are having a very difficult time right now, i hope things get better for you very soon.

[Karen A]

<'> <'> Thanks.Yes the last few weeks have been very tough indeed.But spent the day at a Pokemon convention with Ben.It was nice to have a break.Karen

[butterfingersbimbo]

omg a pokemon convention!!!!!!! sounds like a great day!!!! glad you had some quality time together you really deserve it with all the stress you are under.