Suze Report post Posted June 13, 2005 Hi , I hope I,m O.K. to start such a thread up.I,m sure I,ll get moderated if not .....I was wondering what provision your children have ..if they are statemented...on school action..or school action +.....We often chat on here about how many hours LSA our kids have etc I was wondering if there is a set amount you can expect or wether it differs alot.It might help others going through the statementing process to know what provision they can hope to get,.....and wether it,s likely they,ll win an appeal!..........So here goes my son is DX ASD, dyslexic dyspraxic.He is statemented for severe learning difficulties and has 10 hrs LSA.Plus 3hrs specialist literacy.He is in mainstream school.We managed to get an assessment on the first request, but we rejected the first proposed statement as it was only for 5hrs.We did,nt have to go to appeal the LEA agreed to increase the hours.We are currently awaiting a panel meeting to increase the LSA hours and provide social skills. Keeping fingers crossed.My son is 9yrs and the statement has made a big difference .Worth the fight. Quote Share this post Link to post Share on other sites
JonnyT Report post Posted June 13, 2005 My son aged 6 is on School Action Plus and gets 1.5 hours per week. He has a diagnosis of Aspergers Syndrome with overlying ADHD I feel that we are being badly short changed. Certainly in September I'm going to ask for more one to one. JonnyT Quote Share this post Link to post Share on other sites
LKS Report post Posted June 13, 2005 Hello my son is 11 he has aspergers and is statemented. He receives 15 hours of learning support assistance per week in addition to what the school are expected to provide at school action plus. Does he receive this I think not. In his statement it says ongoing advice from the O.T. and input from the specialist teacher for autism. (these last 2 are far too vague I've since found out) My daughter has MLD speech aphaysia, epilepsy and is on the autistic spectrum and is statemented to. She receives 25 hours of learning support assistance per week in addition to what the school are expected to ............. etc. She has Sp< twice a term O.t. weekly. Hope this helps. Quote Share this post Link to post Share on other sites
bid Report post Posted June 13, 2005 (edited) Hi My son, nearly 16, has AS, ADHD, Dyspraxia and possible Tourettes. He is has a Statement which specifies a specialist residential placement. He goes to a residential special school for AS. It's an independent special school, out of county...about 170 miles from us. BUT...he struggled through mainstream for 10 years with absolutely no support at all, only on Stage 2 then School Action. This time last year he had a breakdown, came out of school and was at home for 6 months. I had to get him a Statement, which he got when he was 15, and then the place at the special school. Because he's at a residential special school his Statement doesn't specify hours per week because it's a 24 hour curriculum so on-going all the time. The 24 hour curriculum is specified in his Statement. Although the original draft Statement was very detailed in the type of provision he needed, it didn't specify residential or 24 hour curriculum...I asked for this as part of the ammendments and the LEA actually agreed!! Bid Edited June 13, 2005 by bid Quote Share this post Link to post Share on other sites
call me jaded Report post Posted June 13, 2005 We had portage from age 2, then a year at an LEA special needs nursery 3 days a week, then primary special school from 3 1/2, now a NAS secondary placement. No fights or battles. Obviously his needs are severe. Quote Share this post Link to post Share on other sites
kerrybobs Report post Posted June 13, 2005 Hiya, We got Robyns diagnosis today she has As, Adhd and dyslexia. She is on school action plus and gets 1 hour p.w. She has had additional support from the learning mentor for concentration, self esteem and confidence. We have a multi agency meeting on the 21st to discuss the possibility of a statement. But dont hold out much hope as the school wont acknowledge As, Adhd and they will only offer help with the dyslexia. Hopefully we will start getting a bit of support and understanding with getting the written diagnosis. Kerry Quote Share this post Link to post Share on other sites
lil_me Report post Posted June 13, 2005 Our council uses a banding process which is a bit bizarre tbh The band my sons got entitles him to 25-50% support he gets no additional support, hence my next battle is LEA Quote Share this post Link to post Share on other sites
smallworld Report post Posted June 13, 2005 Hi, Our 5 yr old(mod. asd) gets 25 hrs 1:1 plus 7 hrs lunchtime support. The SALT provision is a bit patchy (didn't get that bit right when we appealed ), no OT input despite frequent requests. But on the whole we're happy with the support he gets, and have just been told this will continue til Dec. This means we haven't had to go through the 6month review as planned. wac Quote Share this post Link to post Share on other sites
mossgrove Report post Posted June 13, 2005 Son 5, ASD got 10 hours 1:1 at primary school (School action plus), could not cope so withdrawn from school, now awaiting statementing panel decision on Thursday but we are cautiouly optimistic that it will be special school. Had portage worker one morning a week for last year before starting in school. Recieving 2 hours a week 1:1 tuition at home while placement is resolved. School are adamant he is a normal 5 year old despite diagnosis and obvious difficulties! Elder son, 7 Aspergers, gets full time 1:1 support in mainstream primary. Will be going to special school from September with 1/2 time 1:1 for the first term to supervise at play times and help with motor skills. Behaviour can be very challenging and disruptive, which helps when requesting support. It hasn't all been plain sailing by any means, but our LEA seems to come out fairly well! Simon Quote Share this post Link to post Share on other sites
Kathryn Report post Posted June 14, 2005 nothing. ...but watch this space! Quote Share this post Link to post Share on other sites
KarenT Report post Posted June 14, 2005 James gets nothing either. He's six, on SA+ and is 'coping well' in school, though the better he copes the higher his tantrums are when he comes out. He's not statemented and I don't believe it will go that direction in the near future because he's not regarded as a problem in school. He has no extra 'official' support but is given a highly structured environment by his class teachers. Y2 might be a different story. Karen x Quote Share this post Link to post Share on other sites
Jericho Report post Posted June 14, 2005 My 5yr-old is on School Action Plus. He originally had 12hrs a week 1:1 when he started at school but this has since been reduced as he no longer needed/wanted it. He also does social skills work and has a daily sensory integration programme. His diagnosis is HFA and he is in a mainstream primary school. My youngest is due to start pre-school in September. He has a prov dx of ASD. His 1:1 support is currently being decided on so no news there yet. Quote Share this post Link to post Share on other sites
Elouise Report post Posted June 14, 2005 Nathan has a fulltime special school place AND his own LSA. Whilst in mainstream he had a fulltime LSA for the whole six hours per day he was there. At the moment we are filling all the forms in for a 52 week residential college as his post16 provison meeting we all said he NEEDED that and tough luck social services for 'forgetting' to attend. Connexions are after them. *sniggers*. Sam is in mainstream with 18 hours a week support but I want them to swop six hours of that for a computer for him. Gifted fasttrack teaching for science and pure maths and discussing a four day week when the new head comes into post who knows that boy oh so well. She was the head who agreed to let him slowly intergrate in from an autistic special school and has always fought in his corner to get the best for him and out of him. Jo is on the gifted and talented register as of this week so now gets fast-track and invites to conferances from her school that arrange to take her. Annie. Oh dear. One under needing a statement. Has outside literacy help and a weekly session with the finger and thumbs (dyspraxia) group that supports the dyspraxic/ severly dyslexic kids in her school to organise, co-ordinate and sequence through games and activities. This is run by a specially trained special needs teacher. Next term we will be looking to see if she has made any sign of progress .....or not. Poor kid she tries harder than the others and makes no progress. Hopefully when Nathan is in a college I can find her a specialist out of school dyslexic teacher to pick ideas with. Yes I have had to fight for my kids to have what they have and its worth sticking at it. IPSEA have always been most helpful. Quote Share this post Link to post Share on other sites
eddie Report post Posted June 14, 2005 my son is 7 in yr2. on SA+ he has 2.5hrs 1:1 purely for literacy and numeracy. nothing else, social skills etc motor skills no in class support either, taken out for literacy and numeracy. looks like this may change though, Quote Share this post Link to post Share on other sites
Hectorshouse Report post Posted June 14, 2005 (edited) T (12) has AS/Dylexia/Dypraxia + severe problems with attention deficit and APD. IQ 87 Reading & Spelling age 7 (1st Centile) Currently gets funding from the LEA under his statement for an additional 15 hours of LSA suport, to be provided on an individual basis, in a small group or as in-class support. His provision was increased to 25 hours for the summer term, whilst the reassessment of his SEN is being carried out and to aid his reintegration into f/t school. He also now benefits from the use of a laptop. I have just (today) successfully negotiated a fully differentiated and individualised timetable, with a reading/literacy programme to equip him with the tools he needs to 'cope' at school. As obviously working at a KS1 in a KS3 environment has caused numerous difficulties, and he has the capability to increase his reading/literacy ability with the correct support/teaching. I am currently in the process of having the statement completely rewritten to get rid of the vague and amiguous comments that were in the original, and for full time 1:1 support, a dyslexia programme, social stories etc ... and hopefully a place at the ASD special school, however that is more than likely just a pipe dream as they are full to bursting and have a waiting list as long as some of my posts .. Our LEA bands funding as follows 1ASD school action+, 2ASD school action+ & 5-10 hours LEA funded LSA support, 3ASD school action+ * 15-20 hours LEA funded LSA support, 4ASD school action+ & 25-30 LEA funded LSA support, 5ASD special school provision. HHxx Edited June 14, 2005 by Hectorshouse Quote Share this post Link to post Share on other sites
CarerQuie Report post Posted June 14, 2005 Rhodri has a statement and has a placement in a Special School.His needs are well-met.it was a battle to start with because the LEA tried to get away without a statutory assessment but we persisted and are pleased that we did.xx Quote Share this post Link to post Share on other sites
smallworld Report post Posted June 14, 2005 Just to add to my earlier post, I forgot to mention that my son gets half-termly visits from the asd specialist teacher. She has been invaluable to all of us, and is great,really knows her stuff. She also came along to his yearly review and showed 'em all what's what. This support has made all the difference to what provision is actually written in his statement, she makes sure it happens ! Quote Share this post Link to post Share on other sites
sonia Report post Posted June 16, 2005 Hello all We alongside the school applied for stat assessment for our son jan 04 when our son was just 5 in reception. He was diagnosed with ASD in nov 03. The statement was issued in June 04 first time of asking and during stat assessemt he had 10 hours emergency funding. Nathan is high functioning. Originally the lea proposed 25 hrs classroom support and we rejected this as there was no mention of lunchtime support. As I informed the lea were they not aware that this was the most unstructured time of the day and that children with ASD have social and communication difficulties. I applied to tribunal and the lea met our request. So nathan has 30 hours 1;1 lsa a week. His first annual review at six months was a success, no provision withdrawn, they dare not as the school SENCO said! The ASD specialist advisory teacher sees him termly or more often if requested by the school. SALT and OT provision are also in place. Both his lsas are great. His lunchtime one is studying asd at present and his classroom lsa has experience with autistic children for 8 years. It is stippulated in his statement that he must be supported by an lsa who is trained and/or experienced in meeting the needs of pupils with autism in mainstream school. This year(year 1 ) he has progressed so much and his teacher has been absolutely great, they adapt to meet his needs and her main aim was Quote" to ensure he is happy". Believe me it has been constant chasing the lea and we would not be where we are now if it was not for the support of advocacy for education at the NAS. I myself am now volunteering for this role. People I speak to say we are really luckly although luck should not play a part. Knowledge and parent power go along way!! Sonia xxx Quote Share this post Link to post Share on other sites
Zemanski Report post Posted June 17, 2005 (edited) Com first: Dx : dispraxia and dyslexia in Y2, AS and dyspraxia Y4 IQ: 147, functions in 95+th centile for everything except spelling which is about the 50th so he's SEN and G&T no specific support in KS1, put on school action plus in Y3, accelerated for Maths increasing support from learning mentor for behaviour and bullying problems - 25% by the end of Y4 but still getting worse. Went to tribunal and lea assessed at the end of Y4 original statement was in place by Jan Y5: 50% SNA support teaching differentiated to an appropriate level small group/1:1 as appropriate access to someone he trusts and feels confident with to help him develop social skills and express emotions appropriately good home/school liason this was fine at primary but was increased on our insistance (although we didn't have to fight this time) for transition to high school to 100% SNA plus lunch and break time support. He also went on various G&T things - theatre, Saturday Maths club, computer courses from Y3 this all seemed fine last year - he had a fantastic LSA and all the support was in place. We had niggles about the curriculum and bullying but things were OK. Then this year the senco in her wisdom took out some of his support without telling us or him at the same time as his LSA got a new job! - ' well he was doing so well' things have gone from bad to worse and we're now looking at an emergency review to tighten up the statement so that he actually gets some AS specific input and has his physical, social and emotional needs addressed properly - they're pretty much ignored as he is on full timetable plus extras (AS maths), in top sets, so they can't seem to fit any small group work or physical skills in and he has to do his social communication group at lunch time. may end up at tribunal for the third time ho hum Dot: Dx: severe dyslexia, dyspraxia in Y4 (this year) equally high ability (IQ:149) except that her phonemic awareness is in the 12th centile - some mismatch!!! she's achieving average+ so she's only on school action through the kindness of the senco's heart really (the bit of paper we paid for does justify it though) her work is differentiated so she has an emphasis on phonics and different spellings from everyone else and her teacher (who is a truly wonderful senco) shares his laptop with her to give her access for written work. - we had quite a nasty fight with the head over this though. she is considered G&T for science, maths, language (her verbal skills are very impressive and on the laptop she can write at level 4), ICT and Art and gets lots of input on that side - she is always part of something, usually art and music. She has thrived on school this year and the style of support she gets suits her even though there is nothing official so we can't complain but I wonder how she'll do in high school - they are pretty reluctant to hand out laptops there unless it specifies it in a statement and I can't see how she has a hope in hell of getting one Zemanski Edited June 17, 2005 by Zemanski Quote Share this post Link to post Share on other sites
darky Report post Posted June 18, 2005 my daughter sits on a lower ability table with a TA. thats her provision. she does not get help with unstructured playtimes, her social skills are not adressed, niether are her motor skills difficulties. she is on sa+ i am currently fighting to get her needs adressed. Quote Share this post Link to post Share on other sites
shell Report post Posted June 18, 2005 steven has a DX of ASD ADHD and is statmented he gets 10 hours a week at first he got 5 but at the schools request they put it up to the 10 Quote Share this post Link to post Share on other sites