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lynne

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Everything posted by lynne

  1. I was talking to another mum who also has an ASD son aged 11 years. Her son goes to school with my son. I was saying how well her son is doing at school and how happy he was. She told me after fighting for many years for him, she is finding life very strange. No longer does her child come home distressed and beats her up. No longer does she have to keep repeating herself about how school is so difficult for her son and how it affects her home life. She has nothing to do (in a nice way) and if she has any concerns she speaks to the teacher and they sort it out. But she said she keeps hoping the specialist will say infact they got the diagnosis wrong and her son is not autistic. I was quite surprised by this statement.
  2. This technique is used bye OT. I think its caused sensory intergration therapy. Its a way of calming the child down. The problem is you have to get in bef sore the childs meltdown progressed. Used too late and it is no good. Also it does not work all the time but can be reasuring for some children. There are also body socks which the child lies in and the OT can pull the child along creating additional pressure similiar to the weighted blanket. There is a book called the out of sync child which is very good. Covers alot of sensory issues.
  3. Well that another problem sorted Congratulations
  4. lynne

    New School....

    Great news. Its a wonderful feeling when you can see they are so happy
  5. lynne

    And so it begins!!

    Its great to hear you have had good support from your health service. Its also an advantage to have the diagnosis prior to him going to school but most people are not so lucky. The only thing that surprises me is that the nursery have not requested a statement. Does your child attend a private nursery or a state nursery? It would be adviseable for you to request the statement, that way it would start the ball rolling. There is a standard letter on this site and on the IPSEA website you just request a statutory assessment and do not need to say the reasons why as you will have this opportunity later
  6. [ The child needs to understand what the detention is for. Someone has already said it might be related to his honesty with ASD that comes across from being as being rude. My 11 year old son also refuses rewards and is not impressed. However, if you go below the surface level, this is because if he is not expected to get rewards than he will not fail (if that makes sense). Its a self surviving strategy. We have presisted with the reward scheme and when my child achieved the bronze award (which is equal to 30 merrits and silver is 70 merits) is was rewarded well. Also he was the first child in his class to get the silver award.
  7. There has been an increase of 25% of people attending for smears. These are people who could not be bothered to attend or did not attend for recalls. So Jade is going to be responsible for saving lives. She is forefilling her wish. Her other wish is for her boys to be educated. The boys now have the money in the bank to suceed. Althought she was young she succeeded in her wish
  8. The attitude of the school and the LEA who legally pay for your wages would be different. There should be policies for carers leave. If they cause problems you can take them to tribunel for unfair dismissal on the grounds of your childs disability. Look on your LEA site and take note. If you can not find it I am sure parent partnership would be aware of what the policy is for carers as some people will be responsible for diabled children.
  9. We done our amendments via email and just high lighted the section we wanted changed and wrote what we want in a different style of writing. We deleted the sections we did not want and wrote this in the statement saying it was not clear (hope that made sense) Our childs statement is in detail and this clearly made the choice of secondary provision easier.
  10. lynne

    New to all this

    [ Hi welcome to the world of ASD and Asperger. There is plenty of information on the forum and people are always ready to listen.
  11. I also go on the school trips with my son. this is be because he is more settled and able to handle the different environment easier if I am there. I also usually end up with another child who has ADHD. But this is because this young lad behaviours better for me than his teacher. I think he also is more comfortable with me.
  12. lynne

    Help please!

    The school are not handling your child sensory issues correctly therefore she is getting distessed and anxious which results in bad behaviour. They need to look at what was happening before your child got upset, this would point them in the right direction. There may have been too much noise, someone may have knocked your daugher, instructions off the teacher may no of been clear which causes your child confusion and anxiety. Children with sensory difficulties are very difficult to accomodate in a normal school setting. but it can be done with thoughtfull teachers but they need guideance from specialist. You need to bring this up at the meeting. The caravan should definatly be s used to prevent your child becoming stressful. Certain day or time periods can be worse. You need the school to clearly document what happens, how it was handled (what was happening that day) also what was your child doing before the incidence. That way they may be able to build up a picture of what is really bothering your child. Children with sensory difficulties have hugh problems using the toilet. Sometimes you can not identify what caused your child anxiety but with my child it could of been related to an incident that occured at play time.
  13. You do not need to send any documents when you request a statement. You just write a letter requesting for a statement because you feel your child is not accessing the curriculum or struggling. The LEA will than ask the school for infomation and they will also ask you for infomation. Once they receive this information they will make a decision either to proceed to gather evidence and ask the ed psy to go in and assess the child or they will refuse the statement.
  14. lynne

    School records

    You could ring up the school and ask where are the exclusion letters which they have to keep. Have they forwarded them on or are they still there is looks like an oversite at the school. Also the school do not receive many requests to see a childs records so some school will print off the electronic data but you also need to see the chids personal file which normally contains other documentation such as the request for the school on there opinion for what the child needs, exclusion letters etc Hope you find the infomation
  15. If you start the ball rolling by requesting a statetory assessment than by the time they come to gather evidence the team that are working with your child will be written to to ask for there opinions on your childs difficulties. You do not have to have a diagnosis to receive a statement but most schools think you can not have a statement with out one. The team who are observing your child and exactly the right combination that your child may need. So if I was you I could continue with the team you are with. If the evidence goes over a long period of time showing your childs difficulty than this is better for the statmenting process. If the school have concerns than they should request the ed psy to come in and assess your child and they should be requesting a statement if they think they can not provide for your child within the normal school budget. The school are putting the pressure on you. But it is better for your to request a statement as the time limit is specified. Hang in there
  16. lynne

    Hello

    Hi Whizz welcome to the forum
  17. Also legally the school are responsible for him until the end of the school day so they had no right to ask you to take him home in the middle of the day. They should set work for your child and give a letter of exclusion stating the reasons why he has been excluded. You can use this as part of your evidence to say your child is not coping. Is your child in a special school? Sometimes a change of school with teachers who have different attitudes can be beneficial to some of our child. So it could work in your sons favour. Take care
  18. My 11 year old has ASD and Dyslexia. At first the school put his learning difficulty down to his ASD but I kept insisting he had dyslexic tendencies. (His older brother has dyslexia). Once this was addressed he started to work at what he is capable of. Scored level 5 in all his sats apart from writing. But alot of ASD children do have problems writing. My sons writing difficulty is down to his sensory issues. He finds it so hard to get the right amount of pressure on the pen. So by the end of each lesson he is very tired.
  19. My son suffers from alot of sensory problems and these are the most difficult part for the management of his ASD. He wears seamless socks which I buy from America. He also says if the clothes feel uncomfortable, it feels like he is itching. Which is very frustrating. We only buy clothes from cotton with as few a seams as possible. When we find something he likes we buy several of these in larger sizes. The only thing I found helpful was sensory OT.
  20. I would ask the paediatrician to refer you to CAMHS as she/he will not be experienced to make the diagnosis and is just wasting time. If she/he does not refer you than go back to your GP and ask them for a referreal to CAMHS (lcoal mentral health team) or ask them for a second referral to Community paediatrican. Within the NHS if you are not happy with the diagnosis or treatment you have the right to a second opinion. There are other people on here from your area so they may recommend who diagnosed there children (if they were happy with the service).
  21. lynne

    Recipe thread

    Next week I am going to try the sausage, sweet potatoe and onion bake. I like simple things than there is more time for the other boring household needs Keep going as I am bored of what I cook
  22. lynne

    Recipe thread

    Cook some pasta. Cook some cheese sauce can use fresh or packet mix. As the sauce thickens add some wafer thin ham (packet) cut into small pieces. Cover pasta with ham and cheese and serve. another favourite is cook some rice. Add a tin of sweetcorn to cooked rice. Cook fish (fresh or packet or tinned). Cook omlette. Cut omlette and fish into small piece and add to rice. You can cook it again in a large pan for a minute with butter (but this is unhealthy).
  23. My son also suffers from major sensory issues. We have to order seamless ankle socks from America. The only thing we found helped was a sensory OT.
  24. I also tried my son on enzymes and although they improved his condition he is definately still Autistic. But food intolerance and food can play a big part with out children. If my child has a "M" meal than we get problems with him. During this time his behaviour is less desirable and the tendency for him to have an meltdown increases. There are lots of things we can do to help our children, not all approaches will suit every child.
  25. If it is for a rushed assessment than the Ed Psy will see the child within a week other wise it normaly takes 1 -2 months for your child to be seen. The child will be seen in the classroom session and observed than he normally produces a report. Sometimes they see them several times
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