lynne

my son is also 12 and wear jeans from BHS they are elasticated round the back and button up on the front. So he does the button up and just leaves it as the elastic on the back of the waist will stretch enough. But I am also going to look at some of the other ones people have suggested as I get fed up of seeing him in the same type of trousers everyday in the holidays lyn

I have ordered seamless socks from America for the last 7 years they do all sizes. Plus they last for a long time. Its called Tooties. www.tootsiesstriderite.com

Hi Justine, The head mistress should not depend on you collecting him when the school can not cope. All these dates events, what took place and how it was handled should all be documented. This will help with your childs statement. The headmistress needs to do than just say they can not cope with your son. They must demonstrate they have put in places procedures to deal with you son and document what went well and what did not. She also needs specilist advice and guidance, and needs to put this in place. A lot of the problems our children experience are due to inexperienced teachers or teachers who believe they are naughty child. So training and being able to understand the child and the reason why the child reacts as it dose, will help the teachers to build up coping straterges. Our sons school had problems supporting our child (even though he had 15 hours support with a LSA). The headmistress managed to get temporary funding increased to cover a full time LSA. But even with this level of support we would not of got our son into a specalist school. We wish you well in obtaining the right son for your child. Lyn

Writing a letter to the GP asking for a referral to a specialist in ASD due to you having the following symptons................ If this does not work than contact PALS. They will work with you to get your message across. The majority of complaints which PALS deal with is due to poor communication. As in your case your GP is not allowing you to voice your opinions and concerns without being dominating. Good luck

We use wet ones for the keybroad and a soft brush to clean the key board. We also use window cleaner to clean the screen. Did you know alot of laptops/computers are covered in germs!!!!!!

We travelled to Australia adn gave our son melatonin an hour before getting on the plane. It worked well. Plus long haul flights have good entertainment. The best think I ever brought my son was a DS. He uses it constantly in the airport and on the plane.

I read in a research article that only 10% would benefit from the type of assessment that Ian is doing. Also the discovery of the benefits to ASD was a by product from the research. Hence alot of people would not invest in this system unless they had an interest in this area. My friend is an Optometrist and she is certainly not poor or struggling within her practice. I believe Ian is passionate about what he is specialising in and therefore sometimes comes across very negative to people who do not take up his type of testing. But in reality it depends on what is available in your area, your budget and knowledge. Some of these children with sensory problems would not be able to travel up or down to Ian to be tested.

Hi Ian, Are there other opticions you have trained up using the orthoscopics system. I was reading about an opticion in Gloucester who said they were trained by you and using this system. Lynne

We too had a rescue dog and it proved to have problems and had to be put down. So the next time we went to get a dog we were more careful. We had our last dog from Dogs Trust. What an excellent organisation. They match the dog to the family. We saw a lab at the dogs trust centre but the rescue staff said they would not consider giving us the dog as it has already tried to attack 2 of the staff. They consulted with the other staff at the rescue centre and than identified 3 dogs that were suitable. All three dogs were in the kennels at the back (not on display). Needless to say we have had Mia for 2 years. She is a beautiful clever dog. We do fly ball with her and agility. Our son loves getting her to jump over the obstacles. A way of keeping him and the dog fit. The dogs trust aslo have a behaviourist person to work with dogs with difficult behaviour.

My sons sensory difficulties still exist despite lots of interventions. But he is able to manage them better (sometimes).

They had the same subject on radio 2 today. There was a specilist to answer questions and parents rang in with their experience. Of course there was one ignorant person who rang in and said it was the parents fault for giving in to the child. And because the parents did not make the child speak!!!!!!!!!

We will not be working for Dore now or in the for seeable future (but good question as some people will post things to get business from us stressed asd parents) Our son wore coloured glasses and had sensory OT from the age of 4 years. Yet by the age of 8 years he reading age was 6 years. Within 3 months of doing DORE his reading age increase by 6 months at the end of 1 year it had gone up by 2 years. (These are reading tests his school conducted) The other important point is our childs autistic meltdowns reduced from one episode per week to 2 per year. This was the most pleasing outcome. Dore had no experience with a child with dyslexia asd and sensory integration dysfunction with sensory modulation difficulties, so they did not make any promises. In fact they said if there was no improvement we could have a full refund. We know from research that ASD can affect emotion language. It is also known that children with ASD have high levels of serotonin in the central nervous system which suggests an abnormality in the neurotransmitter production. Abnormalities have also been identified in the frontal love and cerebellum area. The DORE programme works on the cerebellum area and helps the neuro pathways. Any repetative exercise will help the neuro pathway eg a baby practising sitting and gradually they can sit on there own etc. Dore exercises are based on the assessment astronouts have when they return from space. Some of there reflexes are reduced muscle mass etc. The deficits are identifed from the equipement and than an exercise programme is form to ensure the space men return to the way they were prior to going into space.

Hi Dana, It is well researched that ASD children have different brain imaging on CT scan. Hence it is very difficult to assess and treat all ASD children the same as they are so complex. There needs to be lots more research done into ASD and the treatments we currently have. But until that time the parents will survive and do the best they can with the knowledge they have. It also depends on what treatments you have available in your area. Ian Jordan spends alot of time assessing ASD children and prescribing glasses if they need them. However, Ian's method is not well acknowledge and accepted by the majprity of opticions in England. The same goes for sensory OT. If your local health authority employ a sensory OT you are lucky. Trying to get OT treatment is difficult, trying to get a sensory OT is even more difficult. We have a 12 year old with ASD, Dyslexic, Sensory Integration dysfunciton with sensory modulation difficulties. Our child has continued to struggle with reading and being able to interpret language. He has been seen by a sensory OT for many years. He also has speech therapy and wears coloured glasses. We got tired of seeing him struggle with reading and writing so we decided to try DORE. We undertook the DORE programme several years ago. At the time they did not have any experience with ASD children but was willing to work with our child and monitor the results. The out come was our child became a confident reader. His writing consistancy improved and also the amount he could write. Our son did find the exercises difficult to do and some of the exercises we had to break down futher so he could eventually build up to perform the whole exercise. So for example for our childto turn in a complete circle twice it would take him several meters before he could perform this exercise. Now he can perform the exercise more evenly and within a very short space. From an ASD point of view the exercises were part of our daily routine which was good. Also the monitoring of our sons eye tracking and balance improved drasticly. So from our point of view Dore exercises helped our son enormously from the sensory side of ASD and also improved his reading age and writing ability. Lynne

Hi Capt_slog, just to say I am from Birmingham so if you want to meet up just send me a pm Lynne

mine is to carry on losing weight. I have lost 10kg but need to lose 5kg more. To sort out my chest (health wise). CT scan booked for the 2nd february. Carry on playing tennis twice a week

my son just to have terrible problems in the shower due to sensory issues. In the end we got him to wear a pair of goggles and this saved the problem. (Even though he does not get his hair wet) M and M sport sell the sports bras you are looking for. But they are a mail order company. www.mandmdirect.com/

my son just to have terrible problems in the shower due to sensory issues. In the end we got him to wear a pair of goggles and this saved the problem. (Even though he does not get his hair wet) M and M sport sell the sports bras you are looking for. But they are a mail order company. www.mandmdirect.com/

Hi Jordan mum. Forget about the past as there is nothing you can change. You need to think what behaviour you will not put up with and discuss this with your son (when he is calm). Set the ground rules. You can not deal with everything so put the other things aside. I read an excellent book once that said you had to list what was important that you wanted changing. You do this by allocation letters. A = must change. B = would like to change. C = no change. You allocate a letter to the problems. Obviously focusing on one thing at a time. You than need to decide on what you want and set the boundaries with your son and partner. Do this when your son is relaxed and ready to listen. It also means you don't put negative energy into things that upset you such as him sneaking food upstairs. This is a very positive way of dealiing with problems and identifying what is important. Obviously it sounds like your son is going through a difficult time and hence he needs your guidance, support and stucture more than anything. Take care Lyn

My 12 year old son has had sensory problems for years. (Which do not seem to be getting better). He hates seams labels and certain materials. He even dislikes the weight of coats. For socks we buy seamless socks from America. Pants he pefers tight pants a size too small (This suits him) We do not buy any tops with lots of patterns or seams going across the body. Labels have to be removed even the stitching (Its no good just cutting the label out). We keep to plain cotton tops. He will not wear jumpers, cardigans. (He always over heats) We also have to wash the clothes several times so they are soft. He wears grey trousers for school and we have found the elasticated waist more confortable for him. Although at the age of 12 you can not get an elasticted waist you can buy the trousers that give about one inch by moving a button on the inside of the seam. Most of the time our son likes to walk round in cotton shorts and t-shirt no socks. (Looks strange this time of year) We also use a weighted blanket for him to sleep with. I find coping with his sensory difficulties - touch, sound, sight more difficult to deal with than dealing with his autism. As the impact of these are varing all the time and you can not predict how he is feeling or coping.

We too went to see the school a few years ago and was very disappointed because if the child had any thing additional to dyslexia than they could not cope with the child. We have a very able child who can cope in a small school with quiet surroundings and a very structured approach. This is all in our childs statement, yet the said school said they could not cope with his autism even though he would have the support of a full time LSA. We thought that considering alot of these children with dyslexia would of experienced not fitting in the current system like our children. Than the school would of been more open and thoughtful when it came to accomodating children with an additional need apart from dyslexia.

congratulations hopefully your child will now get the support they need.

Hi Anthena, Just to let you know my son was educated in mainstream school with a full time TA trained in ASD from the age of 7. He also had cover at play times and lunch times due to his sensory difficulties. Our LEA has a good ASD team who go in and train the teachers. The school also had fantastic views on inclusion and learning with the child. Once my son needed to transfer to senior school we had very little choice. Our specialist ASD schools could not cope with his acedemic ability. The normal senior schools could not cope with his ASD and sensory problems. So he has gone to a small private independent school with small class sizes. This is a very friendly school who look at what the child can achieve and will provide the right support or conditions for them to improve. He also still has a full time TA and also has transport to and from school. The LEA have funded this placement with out a problem. 12 months down the road and my son has still not fully intergrated but is surviving. Since September he appears more comfortable but is still struggling. My friend's ASD son orginally went to a normal school where the school were not special needs friendly. At the age of 8 years my friends son refused to communicate due to all the difficulties at school. This boy did not have a statement even though he was ASD. By the time he was 9.5 years he had to be moved to a speech and language unit which had 6 children in the unit with 1 teacher and 2 TAs. When it came to choosing a senior school his mother requested an ASD residential placement. The LEA communicated with his parents and requested he visits the school by son attends and goes for assessment. After several visits this private school did not know if it was the right place for my friends son but said they were willing to give it ago. So the LEA sent him to the same school with a full time TA, once a week speech therapist and transport costs. Twelve months later and my friends son is fully intergrated into school life. He has made friends and even plays for the football time. He was having weekly 1 to 1 with a speech therapist but has progressed to a group class. His communicate has improved. Hence, it can be difficult just to view a placement on costs as other considerations have to come into play. A good statement is essential especially when your child moves school. Good luck

The programme did show young people being very racist. As for the 11 year old being verbally abusive to an adult. It appears his path to jail is well on the wall. How small minded these people are. The young girl who told the woman she was beautiful made me laugh. I think the little girl was amazed to see someone who was not while and how nice of her to speak to the woman nicely. Also there was the older man who shouted at the 11 year old "what are you doing." This cause the 11 year old to run off. At least not every one was racist but it was distrubing. I also watched a programme on the BNP last week and this shocked me more. They interviewed older people not the typically young skin head. These people were saying they believed in a while society and everyone else should go back. If any one tried to discuss there opinion with them the BNP would end the discussion and than as the person walked off there would call them a fat s....... I thought the BNP were bad but this claified how bad they were.

There is no milk in these tablets. This is the list of ingredients: Methyl hydroxybenzoate Propyl hydroxybenzoate Propylene glycol Ascorbic acid Quinoline yellow E104 Fruit cup flavour (containing carmoisine E122) Liquid maltitol Purified water. The main problem with a carrier capsule is there might be geletin in the cover hence some people would prefer the liquid drug. You could also try a chiropractor. I had back pain for many years and use volteral, valium, tens. I also had physiotherapy and had a course of treatment with a ultra sound machine but none of this gave me long term relief. I went to a chiropractor and 8 months later I was pain free. 12 months later still pain free and able to do anything I want.

Going to tribunal will ruffle there feathers. I don't know what evidence you would need to bring it forward as alot of children who are waiting to go to tribunal would be suffering. Good luck