jen
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Everything posted by jen
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Personal experiences of attachment disorder
jen replied to stressedmumto2's topic in General Discussion
My son had the same but it was due to anxiety and ASD Jen -
I would book a planned photo with a professional so you already know what you are paying in advance. The one you have done always put you at a funny handle so you pay for the more expensive photos Jen
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A mothers instinct is normally right. Just monitor and write down concerns then get advice Jen
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Thanks for the direction Ian, will look at the papers and start analysing lots of papers to read. Jen
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I would write what ever he needs using the reports you have. Social communications difficult ( PSY report dated .........) hence my child needs...................... LSA trained in ASD (Diagnosis of ASD....................) Has social and communication problems (ASD report..........)therefore to have one lSA support for...................as my child needs pre tutoring in science, english etc. Do you have any IEP or meeting or statements off the teachers expressing your childs difficulties then use these my child needs..............as discussed in the meeting with school teachers on...................... Hopefully you will then get a statement that describes your child. I will PM you an example of my childs statement. When you receive the proposed statement you need to look at it in detail to make sure it fits your child difficulties Jen
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Has anyone found any research in this country or another country on the treatment Ian is using if so I would like to read it. Jen
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Carol kranowich (spelling is wrong|) is doing a talk in Birmingham in May it should be very interesting. My child was diagnosed by a sensory OT 2 years ago and still receives a weekly OT session. This and the advice from his specialist support service have made a difference. Jen
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my sons homework is stapled to his diary. Such an easy thing for the teacher to do or a buddy system. Does your child have a statement and what does it say amount showing alternative methods of learing. Jen
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We were waiting in my car, behind a bus while the bus dropped off his passengers. A young lad of 12 years got off the bus and decided to throw the small bottle of pop (he was holding at the bus). The bottle missed the bus and landed infront of the first tyre. As the wheel went over the bottle the bottle exploded and the force of the contents came back and hit the lad. Did we laugh. It was like something out of a cmedy sketch. Jen
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our OT assessed our son doing different activities and then devised a programme. Do not worry. Is your child seeing a paediatric OT qualifed in sensory or not. Ask her qualifications and if she has worked with children like your son before. My OT asked me what I wanted. I said I just wanted my child to be able to get through his school day without having melt downs. Jen
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Ian, I will read up on your work because anything that help ASD children is helpful but unfortunalty things like therapeutic colour, hearing devices and assessements for chidren with sensory problems are just at the beginning. We are learning all the time and these children are so complexed and variable. Jen
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People and children with ASD find schooling etc more tiring than normal people. My son always missed the last day or two of school because he gets tired at the end of the term. Keep an open mind and try things if something works keep it if it does not throw it out. One year something will work very effectively than the next it will not. Keep a list of what works, all the assessments and how your child difficulties affect her at home and at school. Its like learning a new language first you are confused than you think you understand something then the goal post moves and you do not understand anything. The forum is always here to help. Jen
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What I have done is questioned every thing in my own mind and that of the people helping my son. It makes the professional think and has worked wonders. My child is only 8 years old and we have been through a disability discrimation procedure and won it. I have lodged another discrimination which is due to be heard in next month and I am also appealing against parts 2 and 3 of his statements. Know your reports inside out use them to help your child. Questioning my LEA for sensory difficulties for ASD children has resulted in them setting up a panel to assess sensory envirornments and how they impact on ASD children. If we do not question and challenge things stay the same. SMALL STEPS TOGETHER MAKE A GIANT STRIDE FOR SPECIAL NEEDS CHILDREN. jen
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It was a neurological chiropractor who recommended the rose tinted speciacles to reduce the mesencephalic brain stem output for my child. Not an opticion. My child has abbrerrancies in cerebellar output bilaterally but particular with the associated right parietal/frontal lobe deficits. When my child was assessed I did not know about the work Ian does. I done the best I could with the experience I had at that particular time in his life and no one should be little me for that. I was making a statement that alot of people could not aford Ian fees (that is a fact). A lot of people in the past has received poor advice regarding colour lenses and I do believe Ian is trying to help people and is very willing to talk to people which is a good thing. Some people will do anything to help there child, they will travel and spend a lot of money, for other parents money is a big issue and therefore affects the decisions people can make. How many people are trained and qualifed to use the technique Ian is using. Where did the research start from and is it more advanced in other countries. Jen
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on the edge, Take it a day at a time with your son, my child makes me laugh every day. I told him yesterday that I would not want him withour autism as he is wonderful (at other times it is extremly stressful but that is partly due to the way the LEA treat our children). No one can predict the future for normal kids or ASD so enjoy it as it comes Jen
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You could run a weekly or monthly club for children with asd and a separate one for siblings. Siblings seem to get left out and they have a lot of issues to discuss and sort out. Also the club would be a chance for parents to have a break and the children would be well looked after. Jen In our group we always do something nice for the mums. e.g. meal and entertainment (so you are not talking about ASD). Pampering massage, sauna etc. We go as a group and just switch and relax Jen
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The specialist support service have asked the school to send a referral in. So between SSS and myself we will make sure we keep an eye on the school. Thanks for the info Jen
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This man may be good but he changes a lot of money. A lot of parents would not be able to afford his fees or be able to travel to him. If you speak to Opticions who have been specialising in coloured lenses for many years they will say sometimes it will make a difference with dyslexic children and sometimes it will not. I am sure this will be the same with ASD children. I took my child to the same optician I had taken my dyslexic child to 11 years previous and was only changed a small fee. His tinted lenses seem to have made a difference. As far as I know it depends on the area of the brain when your child has difficulty will determine what colour suits them. My child has difficulty using the left hand side of his brain and hence rose tinted glassess suit him better. My child had his glasses way before the Jackson family had theres. Jen
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Has anyone had an assessment off BECTA for there child to be assessed for a computer to aid learning. If so what does it involve and how long does it take. Jen