justamom

Hi everyone, From my other posts you will know that Keegan has been signed off school for 2 weeks, today i took him swimming which he loved coz of the one to one attention, we had such fun. Even me in the cozzy, i might take him everyday coz i dont want him vegging infront of the telly munching away... Anyways, to my question what do i tell people??? Today was his first day off school and at the pool his ex headteacher was there from primary school and said "No school today??" I was watching from afar and Keegan just hung his head, no eye contact and jumped in the pool. We went to pick my dd up from school and 3 people said no school today, with him standing next to me he said "Dont tell them mom".... but even my neighbour is asking... "Saw Keegan was off school today,he looks very pale has he got hayfever???" I so wanted to tell him he is off school for 2weeks but i have to be careful coz if this man tell his son (in keegas year)will be nasty to keegan and set him off even more.... Dilemma or wot????? What would you say???

Hi JB1964 i was interested in what you said about your CPN (is that a consultant)not being able to prescribe anything for under 16's. My son is 12 and he has been prescribed a drug for adults but at a lower dosage, it might be something to do with his weight he's a big boy and maybe thats why they have prescibed the medicine????

Hi Andie, I must admit about the warts that my son has a phobia about warts he hates them, he does not like to look at them and tries to scratch them off. Sorry no help but i know how cruel kids can be and i hope you get it sorted.... I have tried to tell my son that he has to accept before for what they are fat,thin,ugly or beautiful.... If these warts are causing your dd problems could you not see someone about them to be taken off??? Might help with self esteem!!! Justamom

Curra, from reading your posts i have seen that we are going thru the same problems at the moment, its hard i know... Last week i had a really bad week, feeling down and sorry for myself but today when i took Keegan to the dr and heard him say to the dr "I am sick of being in pain, tired, and always having to have dr's app - i still like you though (dr could only just smile at that comment) i am stressed and dont know why, my "woe is me" feeling disappeared and realised that i have to be strong for him... The doctor gave him some anti-depressants which are to be taken at night and should help with his sleeping pattern too.... I said that the 2 of us should go swimming tomorrow (coz it should be empty for me to get in a cozzy)!!! he beamed!!!

Bid, so sorry to hear about your Dad, sending you lots of <'> <'> Justamom

Excellent News!!!!!

Sorry to hear about your week-end alot to deal with, hope all is a bit better today <'>

I think a 4 is very good, well done Luke

Keegan has just come to me and said that he already feels better, knowing that he does not need to go to school tomorrow..... Its amazing how school stresses our children out. Yet he shows no signs of AS at school yeah right!!!!

Oh Tez, you are not a dreadful mother.... No way, it just could not be helped..... Hindsight is a wonderful thing i know but unfortunately we just cant "go back ". I know you feel really bad and i have been there too, took keegan to the dr's last week for his sleep and whilst there he checked his knees (arthritis) which were very swollen and he had not complained once, said they dont hurt to which the dr replied are you sure they are red and hot???? Chin up love you are a wonder mum!!!! <'>

Thanks everyone, Keegan has been signed off for 2 weeks and he has put him on a anti-depressant which will help him sleep at night.... He was lovely so understanding and keegan bless him broke down in the drs room and dr was so kind...... thanks everyone!!!

Its strange that i should be nervous to go to the dr's (i feel like nobody will believe me, because he is such a lovely child) but I am going to ask him to sign Keegan off for this week, (maybe longer)he has been so depressed and last night he was crying... Hopefully the dr understands and will sign him off.... must admit that the dr has been honest to me and said that he does not know alot about AS.... We are going at 10.00 wish me luck!!!

So true curra what you say, the reason they are phoning me up is because of the kids in the class making comments. Keegan did go down to help out in the PE department on friday, he was ok he said but did not like the way the teacher spoke to him. He said he spoke very slowly to me mom like i was a "thicko", i suspect the teacher has found out about his AS and not sure how to respond and spoken to him really slowly... Cant win, at least its a start

oh, honey i know what you mean, i cant clean up my kids vomit have to get hubbie to do but the other end i'm fine with.... Alot of kids i know on the spectrum smear, apparently Temple Gradin did the same its the sensation of it and something thats they just have to do..., she said she knew it was wrong but had to do it all the same. I am not sure how to stop the smearing somebody with alot my knowledge should come along shortly.... All the best

Tylers mum has just posted about heading for a breakdown, took the words right out of my mouth.... Keegan is not coping very well lately, with life in general little things are upsetting him and he is on a downwards spiral. I cant seem to put my finger on whats making him feel this way thats if he even knows why he is so stressed. Last thurs he had a MEGA meltdown, throwing things and it just seems like he is still angry at the world. I will have to ring the school tomorrow and warn then that he could potentially kick off at school, not like him to but at the moment anything is possible He wanted to go swimming today, my dd who is very sensible went along and i always say to keegan no matter what i will fetch you if you dont want to stay. Thank god for mobiles, he rang me to say to fetch him NOW!!! He sounded very stressed, i rushed over to get him and he had not even told the others, that he had enough he just left waiting for me to fetch him, he did not like the crowds..... packed in the pool today coz of the weather... Had to wait find dd who was in a panic and she thought she had lost Keegan, because he just disappeared. On the way home we were listening to S.O.S - by Rihanna - he's been playing the song over and over for the past few days and tonight he said mom this is how i feel, "I want someone to help me S.O.S - someone help me and nobody will help me!!! MY heart aches for this poor kid here are the lyrics to some part of the song to let this make more sense to you!!!! [Verse 1] I'm obsessive ......................................... And I'm aggressive ..................................... You got me stressing, incessantly pressing the issue .................................................................. ........................................................................ But I can't control myself, got me calling out for help [Chorus:] S.O.S. please someone help me. It's not healthy... for me to feel this way Y.O.U. are making this hard, I can't take it, see it don't feel right S.O.S. please someone help me It's not healthy... for me to feel this way Y.O.U. are making this hard You got me tossin' and turnin' and can't sleep at night This time please someone come and rescue me 'Cause you on my mind it's got me losing it I'm lost, you got me lookin' for the rest of me S.O.S. please someone help me. It's not healthy... for me to feel this way Y.O.U. are making (Y.O.U.) this hard, You got me tossin' and turnin' and can't sleep at night Its how he is feeling at the moment, i tried to give him a calms this morning but he refused to take the tablets, i said i will take 2 if you take 2 they are to help you feel calmer (i need alot more than 2 at the moment).... What can i do to help this poor kid to feel better and have you children been this down before????I dont want him to breakdown i would like to try and get it sorted before then!!!!

Wow thats great news, not sure if my son would like the rides but for future reference its great news to know that we can go thru without any hassles.... So glad you and your son had a fab time!!!!!! Like you say a bit out of pocket but fun anyway

I know its not easy but could you try and ignore the swearing and prehpaps the novelty would wear off??? Its only a suggestion but maybe everytime they swear we unintentionally give them attention, even if it's negeative attention - so ignore the bad and praise the good????

Hi Lotty, My father is AS, defo - self dx... He can see himself in my son, only when we were going thru the dx process with my son did i see the similartities to my father and the more i learn about AS its him to a T. When i was younger and we had friends come over to play i would always have to phone him and say X is over for dinner tonight so when he came home he did not meet someone new and unexpected. Like Kathryn said i used to think that he did not care about us as kids but on reflection I did not understand him and he did care but in his own special way, perhaps a squeeze on the knee as he walked past was his form of affection. I have learnt to accept him now, learning about AS has accuataly brought us alot closer because of the understanding i have of him, but as far as advice goes i must admit he gives very good advice because he does not lie and its straight forward advice no messing around even if its something that you dont want to hear. He does not do the empathy thing well but we just avoid that issue... He is a difficult so and so to get along with sometimes but we do love him dearly.....

I too remember your post, my god you have been thru alot.... Bunch of so and so's saying that you have MSBP. I think Suze is right you need to have your story published, have you thought about contacting anyone so that these people can be shown up for what they really are.....???? GMTV or someone its worth a try?? Keep strong!!!

Keegan is not sleeping very well at the moment, I have a good relationship with the GP but we have never discussed sleep problems. Keegan has usually got other "more important" issues like his arthritis and bowel disease that its really been over looked.... I spoke to the Gp about it and he did not quite understand the complexities of the problem, he said we should try a night light, no background noise i.e. telly etc - calm surroundings - been there tried it all. How many times did you have go back to GP or consultants for sleep problems???? before anyone prescripted medication to you?? He is moody from no sleep and it's affecting us all

I shout at the telly, for Lea to leave him alone, she does not understand him and he just sometimes needs to be left alone and its not a personal thing but his time out!!!

Good luck for your app, hope all goes well holding thumbs for ya!!

Yeah, he reminds me of my son too!!! What a lovely guy...

I'm also nearing the end of my theather (sp) cant wait for school to end.... I have so much on in the next few weeks, i had to call my friend to remind me of all the up coming dates, they know me as the dizzy mother who is never organised.....

Way to go Reece... Well Done!!