Pippin

I'm with the others on this one. I'm really disturbed that you were sent home from hospital without any deeper investigations into what happened. This is way more than just a migraine. ...and even if it isn't, it could happen again when no-one is around (sorry if that's scary....I mean it to be). If it were me I'd be banging on the GPs door tomorrow morning and demanding some URGENT action. She REALLY needs some very urgent neurological investigations. Sorry to be scary but they shouldnt have dismissed you so easily.

NO, cos the little Wotsit cant resist drawing on everything else with the pens....and it never comes off!!!

Me too Bid, but he's scarily good at it! Saves me having to carry a calculator anywhere...or a phone book for that matter as he memorises phone numbers.

Haven't watched it yet but recorded it cos Hubby's away tonight. We HAVE to watch it cos he was in the team back when he was 17. (as if I needed any proof of his place on the spectrum!!! )

Has your son got my son's year 3 teacher??? God, it sounds just like her!!! I used to write sarcky comments back to her. For example, every time she wrote he hadnt finished his homework, I wrote that it wasn't compulsory!! I refused to go to Parents evening in case I swung for her. Poor hubby had to go alone.We had to just put up with it until he moved up a class (sorry, if that wasnt what you wanted to hear) but it is a different story now. His new teacher is SO much more in tune with him. His problems haven't gone (of course!!) but they are handled differently. Keep fighting...but, if the worst comes to the worst, it's only for a year.

Having to drive everywhere is a pain, and there's less choice in schooling, but other than that....It's brill.

MP and AM now emailed. I doubt it'll do any good, but at least I've got it off my chest.

Well, I've started with an email to the boss at the LEA...and then it's straight to the Assembly and the papers. It's such an insane thing to do in the first place!!! Where's that head-banging icon when I need it!

There is finally a secondary level unit for high functioning ASD/Aspergers in Swansea!!! Great!!! But..........it opened this September and took 8 (year 7)pupils. There are 8 more booked for next years year 7........they are then full until that lot leave!!!! So no kids will have a place for the next 4 years. Is this barmy or what!!!??? What's the point of a unit which can only take 2/5 of the kids who need it??? Ah, I have it!!! The LEA can look good cos they have "provision". All they need is another teacher and one more room and they could provide for nearly all the kids who really need a place. That's got to be better value than spreading them around in less than suitable schools and having to provide extra help for them. Arghhhhhhhh!!

We've battled with this too. P has been given a diagnosis of High functioning ASD rather than Aspergers as he had a speech and language problem initially. The Paed said it really make no difference and is just the form of words they have to use. I do sometimes describe him as having Aspergers rather than ASD, depending upon the company I'm in. He's a very bright lad.

We had exactly the same problem a few years ago with the twins and the Christmas play. In the end dad went to see E and I went to see P. He didnt really notice me though as, during his song he was right in the middle of a row of angels....but they were all facing the front....and he was looking at the pictures on the back wall!!! Bad mummy took a photo. It still makes me laugh and cry at the same time.

Sounds good, I'll email for a booking form.

That is SUCH good news Cariad. Long may it continue.

Hi, my second of 4 is Dx ASD....but he should have been the third ! You see, he's a twin and was "second in the queue" until his siter got distressed and I ended up with an emergency Caesarian....and he beat her out. Number 1 has a few traits too. And as for Hubby!!!!

Fan-flippin-tastic!!

Our paed said yes but the GP said no so we buy it online......no hassle. Hubby also stocks up in the US on his annual trip out there.

Fingers crossed for you Cariad. Tell 'em you wont consider dropping the tribunal until they have FULLY honoured their part and he's sat at his desk in his new school. Threaten them with "the Echo" too!!!.

That's great news Cariad! Am I right that you're in Cardiff...or am I barking up the wrong tree? If so, could you PM me the school as I'm in west Wales and expecting a fight in 2 years when P comes to move on to secondary school. Knowing Cardiff do stuff like that normally scares Swansea into action as they never like to be outdone....and knowledge is power to us parents!!

You have NOT done anything unforgivable!!! That honour goes to your GP and receptionist!!! Reacting as you did is totally understandable. I dont know what planet some people are on these days when they sit there smugly behind a desk and refuse to help people in trouble. Keep ringing the SW and also keep ringing the surgery to demand to see someone. Your case is as much an emergency as anyone else. Often the only way to get help is to make a COMPLETE nuisance of yourself. Also, if you cant get through to your own SW is there an emergency number you can try?? ...And dont forget you can always come here for a scream.

there have been some differences shown in resesarch based functional MRI but standard hospital MRI machines only show the structure of the thing they're imaging and this is not abnormal in ASD.

At the moment it's home.......with a screwfix direct catalogue for company!!! Having trouble dragging him out anywhere. This afternoon we're all going to the local scrap store for a mooch around. Usually come back with loads of lovely rubbish for "inventing" with.

For once i feel sad that the only thing I'm off to today is full of poeple who know P so I'll have to save that comment for another day (edited cos I cant spell!!)

"I just said, "ok, the special needs show is over now, so bye and......thanks for watching!"(in sarcastic tone)" Lisa, I just love that one!!!!!!! It's now carefully wrapped up and in that little pocket at the back of (what's left of) my brain, waiting for a chance to use it.

This is wierd!!! is the Intervention officer a Doctor? If not, they have no right to request any medical proceedure...that is the job of the paediatrician or other medic looking after him. Anyway, a CAT scan only shows physical abnormalities....and is also a damn big radiation dose. Its about as much use as a chocolate teapot in diagnosing ASD. There is work going on involving functional MRI which show the brain actually working but it's mainly research at the moment. Methinks the IO is talking from her bottom!! I just looked up a job description for an IO...and no...she's not a Doctor...so she's talking b*****ks!!!

I was worried about how to get P to take it but, luckily, it has no taste whatsoever as a tablet. I used to crush it up between 2 spoons and shove it in a fromage frais. He's now happy to take the tablet as he's older. We've been very lucky in that he responds brilliantly to just 1mg.