Karen A Report post Posted July 19, 2006 Hi Elaine.Glad you joined us.Karen Share this post Link to post Share on other sites
Joanna123 Report post Posted July 20, 2006 Hi I'm Joanna I'm married to Rob and have a son Anthony aged 3. We asked to be referred to a speech specialist when he was 2 as Anthony was not saying anything more than single words. After a few sessions with the specialist we had to attend a CDU assessment and after this they hit us with the diagnosis of Autism. I denied it at first, but then asked what was their reasons. They said because he didn't play with others but alongside and couldn't concentrate for long on things, also that speech is also the first sign for autism. We have attended some more groups, Anthonys words are coming on gradually now and the speech therapist says that she thinks he will be alright at pre-school in September. I still wish they could see him when he goes and plays in the park with older children as he mixes well, and feel very sceptical still as we received the diagnosis in May this year. Can anyone give me advice on Disability Living Allowance, how bad the child has to be to get it, as at the moment I spending alot of money on taxis to different courses. Also with Anthony having bad tantrums it is easier to travel by taxi as I don't drive. Thanks for listening. Joanna Share this post Link to post Share on other sites
Kathryn Report post Posted July 20, 2006 Hi Janet, Caren, Elaine, and Joanna Welcome to the forum! Kathryn. Share this post Link to post Share on other sites
bid Report post Posted July 20, 2006 (edited) Welcome aboard, Joanna If you go and look in the Help and Advice section there is a lot of info about DLA. Bid And 'welcome' to all our other newbies <'> Edited July 20, 2006 by bid Share this post Link to post Share on other sites
Joanna123 Report post Posted July 20, 2006 Welcome aboard, Joanna If you go and look in the Help and Advice section there is a lot of info about DLA. Bid And 'welcome' to all our other newbies <'> Thanks Bid, I will check it out. Joanna Share this post Link to post Share on other sites
Matt S Report post Posted July 30, 2006 My name`s Matt. I`m married to a lovely woman who is a fantastic mother to our two kids,Jake who`s 12 and Heidi who`s 9. Heidi is Autistic,she`s in mainstream school and has a statement,which we had to fight tooth and nail for! She is a lovely girl and is the apple of my eye.She`s also very stubborn,incredibly bossy amd doesn`t like being told "no". Pretty typical female really Heidi loves watching videos and DVD`s,loves cuddly toys,is very affectionate with her family and friends and would happily eat sausage rolls for breakfast,lunch and tea! We do pretty well as a family and do most things together,her brother is a good lad and pretty accomadating with her "ways". He does get fed up with her constant questioning and her behaviour in public,but he does understand her needs most of the time. Anyway,that`s me. Matt Share this post Link to post Share on other sites
phasmid Report post Posted July 30, 2006 Hi Matt and welcome to the forum. Share this post Link to post Share on other sites
caren Report post Posted July 30, 2006 welcome joanna & matt and karen Share this post Link to post Share on other sites
Samsam Report post Posted August 3, 2006 Hello everyone, my name is Sam and I am a full time wife and mum to Jack 6 and Ben 23 months and , Jack was diagnosed Autistic/AS 3 years ago and ive been looking for a place like this ever since. We live in West Yorkshire where I do voluntary work within the community, I am a breastfeeding peer supporter and a parent director of the local surestart initiative We spend most of our weekends going to airports so Jack can watch the airplanes His favorite are Thomsonsfly planes, as thats the airline we fly with to go on holiday. (which is next week may I add) Jack is probably one of the most infectious people I have encountered and we had a rough first 3 years with him but as soon as we got a diagnosis his behviour changed drastically. He goes to full time special school which he loves and he is very close to his younger brother. I hate these introduction things as I never know what to say so I'll leave it at that for now. Share this post Link to post Share on other sites
Samsam Report post Posted August 3, 2006 ohhh and Ive just noticed YAY me! Im the 2000th member - do I get a prize? Share this post Link to post Share on other sites
Jill Report post Posted August 3, 2006 Hiya and welcome SamSam! Hope you find this site as useful and supportive as I have. Share this post Link to post Share on other sites
TheNeil Report post Posted August 3, 2006 Im the 2000th member - do I get a prize? Yes, it's in the post. No honestly Hope you find what you're looking for here, it really is a great place Share this post Link to post Share on other sites
Samsam Report post Posted August 3, 2006 not sure Ive joined at the right time though Share this post Link to post Share on other sites
TheNeil Report post Posted August 3, 2006 not sure Ive joined at the right time though It's not always like this...most of the time it's worse (only joking ) Share this post Link to post Share on other sites
Jill Report post Posted August 3, 2006 not sure Ive joined at the right time though Hmmmm, can't say I disagree with you there - it's probably why you've not had many hellos! Normal service will be resumed soon I am sure - it's not normally like this! Share this post Link to post Share on other sites
aro Report post Posted August 3, 2006 Hi sam (bit of a sticky patch here but all forums have these!) Wow 2000 member, you should get a t-shirt! I'm Anna, mum to a girl with cerebral palsey, epilepsy and ASD. She will be 4 soon. This is a great site, please stay! look forward to chatting! Anna x Share this post Link to post Share on other sites
Samsam Report post Posted August 3, 2006 Thank everyone, I might wait for it to go away and then come back haha Share this post Link to post Share on other sites
keyholekate Report post Posted August 3, 2006 Hi! Samsam, Cat lover? Share this post Link to post Share on other sites
Samsam Report post Posted August 3, 2006 Not really although I do have one, I just think that picture is very very cute, Im more of a dog person myself. Share this post Link to post Share on other sites
caren Report post Posted August 3, 2006 Hello and welcome samsam hope you find the board as useful as i do Share this post Link to post Share on other sites
Bagpuss Report post Posted August 3, 2006 Hi Sam, Welcome <'> I'm Debs and I have 3 kiddies. Our youngest daughter (5) was dx with ASD in November, she also has muscular dystrophy dx when she was 3. I've personally found this forum so supportive, hope you stick around Take care. Share this post Link to post Share on other sites
Samsam Report post Posted August 3, 2006 Bagpuss I love your avatar Share this post Link to post Share on other sites
Bagpuss Report post Posted August 3, 2006 Thankyou <'> Share this post Link to post Share on other sites
Samsam Report post Posted August 3, 2006 Your welcome I may have to pinch it for use on other forums lol Share this post Link to post Share on other sites
hev Report post Posted August 3, 2006 hello samsam,lovely to have you with us <'> <'> this site is my lifeline,hope you find it as much help as i do love hev x Share this post Link to post Share on other sites
marshmallow Report post Posted August 3, 2006 <'> <'> <'> Hi Samsam, I hope you find the forum as useful as I do! Share this post Link to post Share on other sites
summertime Report post Posted August 5, 2006 Hi all I just registered today, Im a single mum with 3 teenage daughters all NT. My conection with autism is through my work, I'm an inclusion co-ordinator in a mainstream primary and we have a high number of asd pupils that I oversee. I know that education is a really difficult area for a lot af ASD children and I also know only too well that autism awareness needs to be pushed in most mainstream schools in Britain so I can see why the difficulties arise As for our pupils I think they're doing ok and more to the point so do their parents. So really Im here to pick up some hints and tips from you guys, I hope thats ok Share this post Link to post Share on other sites
oracle Report post Posted August 5, 2006 Welcome <'> It's nice to have professionals here who want to know more about the children they are dealing with. And maybe 'we' can pick up some hints from you? Oracle Mum to David 19 AS and Matthew 9 HFA. Share this post Link to post Share on other sites
Helenllama Report post Posted August 5, 2006 (edited) Hello, I am Helen, I am 21 - nearly 22, and was diagnosed ASD (without anything else in there except "probrably mild Aspergers") at some point between April 1999 and May 2001. I also am on anti-depressents and can get very anxious I attend an Edinburgh University where I am going into my 3rd (Degree) year, and hoping to get into my honours year next summer. I study Marine Biology. Edited August 5, 2006 by Helenllama Share this post Link to post Share on other sites
keyholekate Report post Posted August 5, 2006 Hello Summertime and Helenllama Share this post Link to post Share on other sites
nellie Report post Posted August 6, 2006 A very warm welcome to all new members. Bagpuss, I LOVE your avatar, it's almost as good as mine! Nellie xx Share this post Link to post Share on other sites
caren Report post Posted August 6, 2006 Hello summertime and helen welcome Share this post Link to post Share on other sites
Bagpuss Report post Posted August 12, 2006 Big welcome to Summertime and Helen....I have found this forum so supportive and helpful Nellie...thankyou <'> Although I fear my avatar may soon be taken over by my Johnny Depp crush..... Share this post Link to post Share on other sites
kateo Report post Posted August 14, 2006 Hello all, I'm Kate, mum to E, aged 15. Just exploring the ground here, as it looks like E might finally have a dx of AS. All very tentative at the moment. She copes heroically at school, is funny, passionate, gentle. After years of ups and downs, mainly to do with school, bullying, suggestions of dyslexia, dyspraxia, innappropriate or non-existant support, we've mainly found our own way round things. But this seems such a critical time, she is so lonely, has no friends, and I'm hoping that a dx might help locate some support for her. This could well be a forum she might want to use herself, but we're not there yet. Selfishly, a relief to suddenly put all the pieces together and make sense of what this is, and huge amounts of grief and rage at all the time spent fighting this corner without help. Not that I would exchange it for the world. As someone who has always relied on language, getting to know and understand my lovely daughter's perception of the world has been the biggest challenge and gift of my life. Not enough emoticons to show how many different feelings at present! Kate Share this post Link to post Share on other sites
Bagpuss Report post Posted August 14, 2006 <'> Welcome to the forum Kate <'> Share this post Link to post Share on other sites
AliG Report post Posted August 21, 2006 Hello My name is Alison and I am a single mum of 5 Boys!! Only 4 at home now which is enough. my eldest is 21 and now left home! When he was 13 was diagnosed with a mild for of Tourettees Syndrome My 19 year old is Autistic with learning difficulties and I also have identical twin boys who will be 6 in October my youngest is 3. My twins have been diagnosed with High Functioning Autism! To be honest I'm at my witsend. I have very little support and coping very much on my own. It has got to stage now I'm not sure how much longer I can go on for!! My 19 year is the least of my problems. What I can't do. Is give him the support he needs now because of the little ones. They have to come first. Where I live there is no provision for him. No clubs he can join. He does have respbite but not because he is difficult for me. It's to get a break from the twins! Anthony & Stuart!! I don't even know where to begin! Their behaviour in the home is way of of control at times and they really do put themselves in danger! I'm living under lock and key, they are on Melatonin but it doesn't always work for sleeping even though they have both the instant release and slow release. Both dosages has been doubled! They can go 18 hours with out sleep and then only need some and they are full of energy again! They destroy everything. Turn the funiture upside down! Toys mean nothing to them. except each other and as long as each other approve of what they are doing then nothing else matters! I can honestly say I have no idea what I'm dealing with here or how to get them under control. They have had their 1st year in mainstream school and so far school does not have the same problems as I do. If I didn't tell them they have been up all night. The staff wouldn't know any different. I'm exhausted, physically and emotionally. It doesn't help that I'm not sure if they have been given the right diagnoses! Yes they show autistic behaviour but in other ways they are not autistic at all. They are obssessed with water, light switches, buttons, calling 999 if they get hold of a phone! They walk on tip toes and sometimes hand flap, high pitched screaming! At the moment they have decided they are dogs and want to eat of the floor and lap their drinks from bowls! They don't seem to be aware of peoples feelings, they have no sense of danger!! Now that I have written this out yes they could be autistic!!! But nothing like I've known before. They can be affectionate and like to have kisses and cuddles! Stuart will mix with his own peer group, where Anthony doesn't. Anthony seems to get on better with adults. Stuart can cope without Anthony but not the other way round! I have been on my own now for nearly 18 months and they don't see their dad! I really don't know what else to do. I now I'm making mistakes and I know what my children need! But there is 4 of them and only one of me!!! So far I think my youngest is fine but has 2 very good teachers that he looks upto! It has been suggested that I have him assessed but so far there has been no real casue for concern. He is outgoing and plays with all the children at his pre-school. He loves his toys but his brothers will destroy anything that belongs to Aidan as well as their own. They hurt him, hit him but also learns from Aidan. Aidan has imaginary play which Anthony & Stuart don't! If anyone can give me any advice on how to cope and deal with my home life I would be very grateful! I'm off tomorrow for an appointment with the NSPCC to see if they can help me manage their behaviour in the home! Last year I did have someone come from Crisis Intervention. They gave me a lecture and I gave one back and told them to try it for a couple of days! They declined and said I needed more support than they could give me! Not heard from anyone since!! Thank you for taking the time to read my introduction! A well and truely stressed out mum Share this post Link to post Share on other sites
Bagpuss Report post Posted August 21, 2006 Hi Alison, Welcome to the forum <'> I've found this place to be so supportive . Take care Share this post Link to post Share on other sites
baddad Report post Posted August 21, 2006 Hi Alison ... Phew, sounds like you've got your handsful So much in your first post i wouldn't know where to start... but there's a good bunch here and a hell of a knowledge base, so I'm sure as you'll find some advice/opinions/options/strategies hereabouts... Nice to meet you... (and all the other newbies - sorry, i only remember to come here when it's on the 'view new posts' thingy!)... L&P BD Share this post Link to post Share on other sites
AliG Report post Posted August 22, 2006 Hi Alison, Welcome to the forum <'> I've found this place to be so supportive . Take care Thank you! It's always good to find out about other people's experiences and ways to help overcome my problems and th edeal with them in a better way, Share this post Link to post Share on other sites
AliG Report post Posted August 22, 2006 Yes I did get carried away with my introduction!!! thank you and I'm looking forward to meeting new people, learning and sharing experiences!! I'm sure I will get a lot of useful advice and understanding from being here! Share this post Link to post Share on other sites
