ASue67

I'm with you Mel!!!!! Have got a cracking headache at moment and am already exhausted - M has been really hard work today. Feel ready to go to bed right now.......

Won't be doing much at all, am usually in bed before 10pm! Will video the Take that new year special on ITV in case I don't manage to stay awake. Ideally I want to go to sleep until all the fuss is over!!!!!!

Thanks both of you for your replies. I seem to spend my whole time fighting battles to get anything sorted and it is draining me completely. CAMHS are hopeless and have given me very little support at all and if I go back to my GP (who is very good) she can't help because she says it has to go through CAMHS (red tape and all that!). Am still fighting to get ESAP funding for M at school (he has been on school action plus for over a year now) so am going to have to go and start putting more pressure on again in January. I appreciate your advise RQ, need to get a bit more focused I think!

Keep strong hon, you don't need to give an explanations. Just make sure you look after yourselves xx <'>

Have read all the other posts about the problems with the school before xmas - not sure if this is what has caused even more problems for you which is why you won't be around?? Just wanted to say good luck with the home ed and I hope you, Steve and the kids are all ok. <'>

Sorry about this but I just need to have a moan and get things off my chest............ am so exhausted having been with the boys on my own all christmas. My ex hasn't seen the boys for 4 months now and I have been trying to sort things out through my solicitor and mediation. My ex refused to believe that the boys are upset when they go and I was just trying to sort out a reduction in the time they saw him (not to stop them going) to try to make things a bit better for the boys but my ex says it is all my fault and nothing is wrong with the boys and the boys are afraid to upset me so they are going along with what I say............ He has accused me of having munchausens (sp?) by proxy in relation to me trying to get help and support for M and getting his dx. He won't accept M's dx at all and just says he needs to be forced to do things and socialise and it will sort him out. I desperately need a break from the boys as I have M.E. and the stress and lack of sleep at the moment is making my M.E. much worse. I can recognise all the signs of me getting really ill again but can't do anything about it cos I have no family support and am unable to get respite for M to give me a break. Have got added problems now as M's weight has shot up in the last 12 months. He know weighs nearly 9 stone and he is not yet 9. Am seeing a paediatrician about it and am going back again in March when they may do some blood tests etc to see what is happening. Am seeing the dietician with him at the end of Jan. He doesn't eat excessively but he won't go out and play. He gets teased and bullied quite a lot and I find it hard to try to encourage him to get active. he won't even go on the trampoline in the garden. I also think he might have OCD? He is getting so obsessed and stressed about mess and places being untidy. If I have eaten something I have to wash my hands before I can touch him. Yesterday we went to a friend's house for an informal get together. M was stressed about going but I had prepared him enough so he was able to cope. But he freaked about getting bits on his socks from the floor, then someone touched him who had eaten some food from the buffet and he was getting distressed and he wouldn't eat anything except food I took and sorted out. When we got home he stripped off in the hall as soon as we got through the front door and insisted I took him up for a bath to get rid of all the mess and the smells. This is just one example of how he is but it is starting to concern me alot. Sorry for rambling on.................... have got so much going on in my head and so many things that I need to sort out that I don't know whether I am coming or going

HOpe your back is a bit better today?? Have a lovely christmas xx

Glad your day is going ok! I am on my own with my 2 boys feeling a bit cut off from everyone today.................. M is playing on his new PS2 in his bedroom but is hyper in between playing (he doesn't last that long on anything and then he is bored!!!!). My eldest has been playing on his new nintendo ds and watching tv. Am going to cook some chicken for me and my eldest later but M will just have his usual meal of waffles and chicken burgers!!!!!! Happy Christmas to everyone whatever you are all doing today xxxx

Am so sorry............. don't really know what to say. Sending you lots of <'> and love xxxxxxxxxxx

thrift

Ghost - gets me everytime............. and E.T. as well!!!!!

M takes melatonin but it is in liquid form in a drink at night time. He won't take it if he knows I am giving it him which is why it is in a drink! He needs about 5 - 6 mg but this doesn't always work now. He originally started on 2mg and it worked really well at first. I also use melatonin as I have M.E and depression which really affect my sleeping. I take 3mg each night and it really does help me get off to sleep (although it doesn't stop me waking up frequently and then not going back to sleep during the night)

I live near Preston in Lancashire but was born on the Wirral (Bromborough) which was where I grew up!

I would imagine that school don't see it as a problem because you see most of the problems related to him coping with any changes to routine that they make. I have the same problem with M's school............... even though I tell them that he has huge meltdowns at home and is struggling with things at school (as a result of him coping during the day just about) school just day well he is coping and hasn't been in any trouble so things are ok! I too feel like I am banging my head against a wall all the time................. Big hugs for you, it is not easy <'> <'>

I go to everyone.............. mind you I am the one who has to tell them that it is time to review the IEP and practically arrange everything!!!!!!! But I know other parents who don't go to reviews and just get presented with the new IEP (if they are lucky). You need to be going so you can give your views and make sure targets set are logical and reasonable for J. Good luck hon!! <'> <'>

Happy Birthday!!!!!

I am getting support from a Special Needs Health Visitor. She helps children and families with a child with special needs who is at school. She liaises with school and CAMHS for me and is wonderful!!!!! She has even managed to get Michael's appt with SALT sorted out (which CAMHS hadn't done)................ I am sure it will be really beneficial for you. Good luck! <'> <'> <'>

My ex calls me an unfit mother as well. He had an affair when I was pregnant with Mike and left me when he was 5 weeks old. Nearly 9 years later he is still 'at war' with me and is now trying to disprove the diagnosis...................... he has accused me of having munchausens by proxy and all sorts. I could rant for ages about the hell I am going through cos of him at the moment but I don't want to hijack this thread!!!! Just wanted to let you know that I understand completely what you are going through. If you want to rant to me anytime feel free to pm me. Take care <'> <'> <'>

Well done!!!!!!

Hi and welcome!!!!!! <'>

Go to welfare rights and talk to them about appealing against the decision. My incap benefit was stopped when I was off work due to my M.E. even though my doctor had agreed I was in no fit state to return to work at that time. I was put on income based job seekers while the appeal was handled and had to go to a panel meeting with my rep from welfare rights but we won the appeal and my incap benefit was reinstated and back pay given for the period it had been stopped. Good luck!

I get melatonin in liquid form for my son. I put it in his drink!!! I didn't have a problem getting it - the chemist found out where he could get it from so that the dr could put the right info on the prescription. Feel free to pm me if you want the details of the one we get.

Well done!!!!! <'>

I am in the process of doing this with my eldest (NT). Been round two schools already and the third one is tonight. This is relatively straightforward as Chris knows which school he wants to go to and it is a good school. Am really trying to get a feel for the schools to see what will suit Mike when we go through the process with him in a couple of years time............... that will be when it is hard!!!!! Good luck! <'>

Hi there!!