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      Depression, Mental Health and Crisis Support   06/04/2017

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nikrix

Hearing voices

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nikrix   

Hi sorry not posted in a while.

 

My daughter has started to hear voices in her head. She says she see,s white in front of her followed by swirls of colours and then loads of voices telling her to do something but she can not make out what. She is usually in a quite place when it happens.

 

I have informed the school and they are keeping her in at break times and not letting her go into crowded place as this may be to much for her.

 

I am going to see her consultant in May and will bring this up. I wandered if any one else had ever heard of anything like this.

 

Nikrix

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Hello. long time no see! :D Hope all is well. >:D<<'> >:D<<'> >:D<<'>

 

Sorry, can't offer any advise on this one. :( Maybe Ian or someone will come along shortly and offer you more advise than I can. :unsure:

 

Just wanted to say Hi. >:D<<'>

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nikrix   

Thanks Tylers-mum, not posted in a while because sometimes feel that I don't fit in on the forum. I always check new posts, but find it hard to reply. Hope you know what I mean. Think its just me as a person find it hard to fit in. It was really nice to get your reply made me feel more welcome >:D<<'>

 

Thankyou :)

Nikrix

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pingu   

Ni nikrix

 

Im not sure what your daughter is experiences as regards to the lights and swirls of colour, and the only advice i can give on the voices is it could be a sign of stress, at least thats what i have been told by my sons pychologist after he started to hear voices (aged 4) he is now 13 and still they insist he is an 'anxious' boy who hears voices in accordance with the stress he experiences. Now i know this is a load of tosh but i havent any other solutions so i have to 'go along' with what they say.

he does however have the uncanny habit of been right when he has told me the history of something (an old building/a place) to which he has never been to. but if i mention this to the 'professionals' its me who's the anxious one :lol:

 

I hope you will feel able to post a little more, even if its just to keep us all updated on what the specialist says in may. (ill be interested) You will always fit in here >:D<<'>

 

take care

shaz

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ceecee   

>:D<<'> I think there have been threads on this kind of thing before about people on the spectrum hearing voices and seeing things etc.I'm sorry i can't offer any advice it is not something i personally have experience of.Maybe someone will come along with some advice shortly.

 

nikrix

 

Whilst i understand how you feel as far as i am concerned there is definately a place for you on this forum.Please continue to post.I think there is a place for everyone on this forum.Thats my personal opinion anyway.

 

I think there are times when many of us have felt we don't fit in although that probably isn't the case.

>:D<<'> >:D<<'> >:D<<'>

Edited by ceecee

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asereht   

No advice to give nikrix,hope you get to the bottom of this soon.

 

As for not feeling that you fit in ,I too sometimes feel like this .I think it's just that sometimes it's all too much,when we have problems with our kids it's hard to relate to other peoples.At least thats what I find ,and if I'm a bit low,I tend to stay away from posting and just look in.

 

Theresa

Edited by asereht

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baddad   

Hi nixrik...

many children on the spectrum (my son included) experience visual hallucinations, so an aural variant would seem entirely possible...

That said, the visual stuff (white light/ coloured swirls) would put this into both catergories, so don't know?

Without wishing to cause alarm, the symptoms you describe are sometimes associated with psychiatric or physical conditions (concussions, bumps on head etc), and sometimes in the latter case the physical causes seem trivial or are even overlooked completely, so while I'm sure there's nothing to worry about I would, in your shoes, give the GP a visit 'just in case' instead of waiting until next month...

 

Hope that's helpful

 

BD

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Hello nikrix,

 

 

Nice to hear from you again,

 

It sounds very much like your daughter is experiencing Synaesthesia, Researchers think that it might derive from an early age. Babies have been said to perceive the world like a Synaesthete, with mixed senses, because their brains are not completely developed. Synaesthesia apparently occurs approx eight times more often in women. It is more common to see numbers and letters, but I suppose as it is more common in females then perhaps your daughter is more finely tuned than others , some numbers and smells with me produce colours.

 

 

Steve..

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florrie   

ASD people do have heightened sensory stuff and that might include sensitivity to colours, and taking in other types of information that might appear psychic to others, there was another topic on this on another foum because they process differently and will take in stuff others can't and can make complex conclusions to things others can't as well. I sometimes wonder whether the voices are just thoughts which everyone has, and I know I have a lot of negative thoughts that can become frightening but I still believe the negative thoughts come from having lots of bad experiences and heightened sensory stuff, that others are not understanding and therefore cause stress. I'm sure this can get really bad for people but it just my thought on it

 

slightly off topic but I also believe bad behaviour in asds is overload to do with them not being able to communicate what i distressing them.

 

My son says he sees things but he knows there not real, I have also had this in the past and still not sure what I think but i rationalise it with explanation above.

 

sorry this is not very helpful but just my thought on it

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slaphead   
Hi sorry not posted in a while.

 

My daughter has started to hear voices in her head. She says she see,s white in front of her followed by swirls of colours and then loads of voices telling her to do something but she can not make out what. She is usually in a quite place when it happens.

 

I have informed the school and they are keeping her in at break times and not letting her go into crowded place as this may be to much for her.

 

I am going to see her consultant in May and will bring this up. I wandered if any one else had ever heard of anything like this.

 

Nikrix

 

Hi Nikrix,

Barry swears that he sees our old dog, who died when Barry was 2, on a regular basis. We don't know if it's imagination, stress, sadness, phsychic ability or wishful thinking, but we do encourage Barry to talk about it. He does seem genuine in his belief that the old dog is still with us, and who am I to argue? I do believe in an afterlife - millions do as most religions are based on the concept in one way or another, but actually 'seeing' the departed is always going to be open to question and ridicule. Linda and I try to 'handle' it by trying to react in the same way as if Barry had said "I saw my friend Harry* at School today". This works for us, maybe you could try it yourself?. ASD kids have very different ways of interpreting information, nobody actually KNOWS how or why they process info like they do. I don't like the way the school are handling this, as you say it usually happens in quiet places. it seems to me that they are keeping your daughter seperate to make it easier on themselves, rather supervise her in the playground. (We had this problem at Barry's school, and I still think that proper supervision at break-times is better than excluding a child from the playground as this could further alienate the child from his/her peers, making school-life even harder for the child.)

 

Slaphead.

 

*Yep, Barry and Harry, or Bas & Has as the other kids call 'em! :D

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timelord   

synasthesia is a condition where the sufferer sees words as colours, and in some casses can taste words. , dont want to alarm you, but is your daughter aspergers? if so the voices could be linked to scizhophrenia. this is what happened to our son.

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Zemanski   

Research so far suggests that there is no link between schizophrenia and AS but they can and do (occasionally) occur together.

The reason that they are associated in the public mind is that in undiagnosed autistic/AS teens and adults some symptoms can appear to be those found in schizophrenia and many, including people like Wendy Lawson, have been misdiagnosed as schizophrenic before receiving their eventual diagnosis of autism or AS. This doesn't happen as often as it used to because the two conditions are better understood and more easily identified these days.

 

You definitely need to discuss this with a consultant, preferably one who understands both conditions. Schizophrenia can be greatly helped with drug therapies and, if it does turn out to be schizophrenia, the quicker treatment is started the better.

 

Having said that, it could well turn out to be sensory issues heightened perhaps by stress, best to check sooner rather than later, schizophrenia is a very distressing condition and anyone who might be suffering from it needs specific support for it.

 

Zemanski

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timelord   

when our son was diagnosed as having aspergers, we were told, that unless he received the correct treatment, he would develop scizhophrenia. as apparentlt 90% of as sufferers do?? lo and behold at the age of 23 he was diagnosed with paranoid scizhophrenia. but no doubt someone here will tell me that the doctors are wrong. to cut a long story short, he was sectioned, and has spent the last 3 years in hospital, now, with the correct treatment, he is due for discharge later this year.

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florrie   

I agree with what you said Timelord, i know others may not, but struggling to cope unhelped and misunderstood with ASD can lead to such severe stress levels, anxiety depression ocd that it can tip over into symptoms similar too or schizophrenic, i can't help believing this is true, My father was dx with psychotic mental illnes but i believ is undx asperger but he has been fine for last 20 years since all kids left home and removed his stress. and my son has had symptoms that tip into something resembling psychosis although not dx, and I've had the same myself.

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nikrix   

Hi all thanks for all your replys. I did think like a lot of you that it could be a sensory problem or scizhophrenia thats why I was so concerned. Her dx is ASD , she has had problems of seeing things before this was mostly flashing lights and the swirly things as she calls them. The main concern is the voices for me as there are telling her to do things and at the moment she can not make out what. She has said she has not heard the voices for a few days, just her head going fast, thats her words she finds it hard to explain the feeling.

 

Thanks all again, I will phone her consultant tomorrow and see if the appointment can be brought forward.

 

Nikrix

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Lucas   

Timelord, when I asked you before in the other thread for more information, something like that was exactly what I was looking for. You were fed a load of tosh about Autism and because of that I am almost certain your son does not have Schizophrenia.

 

For someone to claim that ninety percent of those with Aspergers will develop Schizophrenia is incredible! Where is the evidence for that? Why are there scores of Asperger groups that are not littered with Schizophrenics? On top of the fact that the two diagnostic criteria for each cannot exist mutually.

 

It does not matter that he was sectioned and treated: this does not meant he had Schizophrenia. There are many Autistic adults that have been institutionalised that can tell stories of misdiagnosis, Schizophrenia being the most common. Supposed 'treatment and 'recovery' of alleged conditions do not even come close to actual evidence that they existed to begin with.

 

The explaination here has basis in history. Autism was once believed to be childhood Schizophrenia, this notion has since been proven wrong, not in the least by the fact that as adults Autistics are not even remotely Schizophrenic. But the fact that this idea was widespread led to mass institutionalising under the Schizophrenia diagnosis. A person who is confused, anxious or dependent is very open to suggestion, most Autistic people are very open to suggestion and self-fulfilling prophecies are very common in the field of Autism. This is why double-blind tests are becoming so important in Autism research: if an Autistic subject is given a mock test and then told as a result of that test they are actually left-handed(if they believed they were right), there is a greater chance of the Autistic subject producing symptoms of left-handednesss than a Neurotypical control subject. This is purely because most Autistics are anxious, confused in unfamiliar situations and are constantly reminded of their dependency in some form.

 

Yes, the doctors were wrong and I would go as far to say that you have never seen an Autism specialist for your son, ever. If you ever had, they would have contradicted the bonkers claim made by the others.

 

Autistic children and adults when learning of their diagnosis are noted to become 'more Autistic' for similiar reasons. The common perception of Autistics as overtly-honest is challenged when many adults play up their own symptoms because they know they need help and they know they will not get it if they simply go with the natural instinct to simply ask for it, so they use the underhand way. So many Autistic people will assume the symptoms of any diagnosis they are given because they know they are punished for some unknowable reason if they contradict the forecast of self-professed experts.

 

There's a small chance your son actually does have Schizophrenia, but it's far more likely he simply displayed the symptoms because he's effectively been told to in a matter-of-fact manner that is not at all based on any facts. This will not have happened in a simplistic or straightforward manner, it will have been covert and creeping and it's a case of a prophecy causing the same troubles it prophecies.

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redberry   
Thanks Tylers-mum, not posted in a while because sometimes feel that I don't fit in on the forum. I always check new posts, but find it hard to reply. Hope you know what I mean. Think its just me as a person find it hard to fit in. It was really nice to get your reply made me feel more welcome >:D<<'>

 

Thankyou :)

Nikrix

Thats just how I feel Nikrix.

I read all the new posts and often want to reply but find it difficult to do so sometimes. :(

I find myself choosing to be on my own alot more and avoiding friends. I used to be such a social soul too its a massive change for me.

I dont have any advice for you sorry, >:D<<'>

my son (AS)has an imaginary friend and he talks to him and his friend replies so I guess he is hearing voices too.

Also about a year ago he had voices in his head. One voice in particular really annoyed him and the other one was like Jimminy Cricket and acted as his consciense sp?

The senco was horrified when she heard about his voices- this was after never believing any thing was wrong for three years previously but the psych didnt seem especially concerned when she contacted him.

I don't know for sure but I think the voices were there at times of great stress for him.

redberry

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baddad   

Even my imaginary friend hated me........................... :(:(

 

Sorry...

 

Now, back peddling a bit to the 'scizophrenia' thread...

 

Schizophrenia is recognised as a genuine medical condition in only a miniscule percentage of the population...

If 90% of 'untreated' (they can treat autism now - wow! amazing!!) autistic people developed it the incidence would have risen exponentially in the past 20 years or so...

so, yes timelord, there are people here who will tell you the doctors were/are wrong - me included! I can't make any comment on your son - he may well be in that small percentage of people who DO have schizophrenia - but certainly the generalisation you were presented with was complete ###### and bull, and the professional involved really shouldn't be practicing!

 

L&P

BD

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timelord   

thanks lucas, after 3 years in hospital, and at the age of 26 our son has just been diagnosed as having aspergers, it has been a long hsrd fight, but we got there in the end. this is one of the problems living on an island away from the mainland, and decent medical services, it takes extreme action to get the help on eneeds. as for the schizophrenia, this diagniosis came about after, our son , upon hearing voices, out all his furniture out into the street, then proceeded to dig up the drying whirlygig in his garden ,mwhich was by the way, embedded in 4 feet of concrete.

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Zemanski   

Autistic people can do some very strange things and really go to town on them sometimes but there's always a reason, even if it may seem a little obscure; schizophrenic people do equally, and often even more, bizarre things but the reasoning is rarely rational and gives little or no meaning to the event. I don't know what the difference is diagnostically but I know several people with each condition and they are definitely not alike and a good professional should really not be getting them muddled these days.

 

Is your son on antipsychotic drugs? if he isn't then it is unlikely to be schizophrenia, but even if he is that doesn't mean he actually is schizophrenic. Wendy Lawson was on antipsychotics for years after her rediagnosis, not because she needed them to manage schizophrenia but because once on them it is extremely hard to come off.

 

One adult AS person I know has compulsions to do things and talks about feeling he is being told to do them but this is part of his comorbid OCD and increases dramatically in periods of stress - I have a suspicion that he is sort of subvocalises the compulsive thoughts.

 

Zemanski

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asereht   

When I get stressed ,I kind of talk to myself in my head ( if you get my meaning).I know it's my voice in my head ,but I wonder under extreme stress could someone interperate this as VOICES they are hearing.Just a thought. :unsure:

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Lucas   

Homer Simpson is a good example of a person who has conversations with the voice inside their head.

 

Homer-"Where you going boy, you're steak's just arrived.."

 

Homer's brain-"quiet fool, it can be ours!"

 

And that's pretty much how I talk to my brain. I think this is one way that Autism and Schizophrenia can be easily confused: Homer would be an Autistic conversing with himself, Gollum from Lord of The Rings would be Schizophrenic. I've always disagreed with the perception of Autistics lacking empathy, I actually think it often goes further and some Autistics are capable of 'anti-empathy: we have learnt through practice to block out the emotional burdening from other people which can sometimes be very painful and even do it with ourselves.

 

The kids at youth club hardly ever beat me at connect 4, partially because I am able to practice by myself, playing both colours. The thing with anti-empathy is that I can selectively forget and recall in a manner where I'm preventing myself playing for yellow from reading the mind of myself playing for red and anticipating it. I think the only way other people could achieve this is if they were playing multiple games at once, did not see who the other players were and one game is set so they are unwittingly playing themselves.

 

So I do the same thing with internal conversations with myself and I think some Autistics that refer to themselves in the third person are not doing so because of langauge quirks but because they are actually exercising anti-empathy and seeing themselves in third person. My opinion(or his, can't tell).

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bid   

I have constantly talked to myself all my life!! :hypno:

 

In fact, when I was a child I remember wondering how people who couldn't talk were able to 'think'!!

 

Bid :wacko:

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florrie   

Too make the muddy water even muddier many psychiatrists and particularly those involved in research now believe schizophrenia as we know it may not actually exist, you will never get two professionals who even agree on what the criteria for schizophrenia is, and it is just a collection of different brain processing problems in the brain, but that is also what Autism is.

 

Actually i'm confused too, but just reporting what i read in an american scientific journal, there have been some very in depth studies done on it.

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Lucas   

I've always had a suspicion that Schizophrenia could just be an Autistic person that has accumilated deep mental health issues, based on my experiences whilst taking the acne treatment xxxx (name removed by moderator). This is ancedotal though and there isn't likely to be any research into this hypothesis.

 

I still have the large scars on my back and chest from boils and abcesses that burst open while I was taking the treatment. In recent years I've started refusing offers for antibiotic courses for reoccuring flare ups and for treatment on the scars on the basis that acne treatment is not genuinely concerned for the feelings of the individual but the perceptions of others who find it undesirable to see sores on other people. I believe that the blood tests I had to get to determine wether the drug was suitable was little more than a fig leaf to see if any of the more serious side-effects such as suicide and liver damage were likely to happen: things that the company can be sued for. They were unconcerned for my actual mental wellbeing as long as I didn't kill myself and I never knew there was even the remotest chance of scars like this until after they began to cover my back and chest. I haven't been to the swimming baths in nearly a decade because I look like Freddy Kruger beneath the neck, between the shoulders, on the upper-torso. When I teach my breakdance class on the saturday, I make sure to wear a shirt underneath and tuck it into my trousers to prevent the kids seeing it.

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Zemanski   

Two of the people I know with schizophrenia I have known since before their first episode.

Neither of them had any sign of autism that I could see then or even with hindsight.

one of them was a teenager I taught and he was very socially confident and did not suffer from high levels of anxiety or sensory issues that I know of. His first episode came out of the blue when he was away visiting friends and he was picked up by the police on the streets completely incoherent after the people he was staying with reported him missing. At first they thought he'd been taking drugs but he hadn't.

The other friend had a slower decline but when his medication is right he is pretty much NT as far as I can tell, unfortunately it isn't often right for him and every time they adjust it he has a bad time again.

 

Zemanski

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florrie   

I think there may be be many many reasons for why someone develops the symptoms of schizophrenia, I also know someone who developed symptoms out of the blue eventually after he was hopitalised when he became completely incohenrent and went missing they discovered he had an untreated thyroid problem once that was treated he returned to normal

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Difficult one.

It is likely the seeing white and colours is hypersensitivity to light. Try rose tinted specs and it may improve. (Not a joke, read about it in Donna Williams "Like Colour to the Blind")

Ignore the stuff about schizophrenia the condition is no longer thought to exist but is the result of a range of minor overlaid neurological conditions.

It is possible that there is heightened audititory processing going on. We all take in background conversations and voices without knowing it or doing anything with it.maybe clearer if it was clear what the voices were saying.

Another possibility is that it is about loneliness. A number of children have imaginary friends with whom they have long deep and meaningful discussions. I had an imaginary dog when I was 3 and would mess up all the flower beds with my footprints as I would go to get it off the beds. :lol:

Is the child on any meds? They have some pretty odd results sometimes.

Is the description of hearing voices another way of describing the inner conversations of the mind?

:robbie:

 

Ken

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timelord   

like i have said, i can only go by the personal experiences we have had with our son over the past 26 years, and the professional advice we have received. but when i post here i get shot down in flames, this is not so much a help and advice site, as an i am right site for lucas. so sorry to say this will be my last post here. i can help others elsewhere.

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Lucas   

I don't recall ever making a post attacking you personally Timelord and the replies I have made to your posts are proportionate with the clarity they come in, the last one you made before has now really confused me about the chronology of events: your son has now been said to have been just diagnosed recently whilst past posts have implied that he was diagnosed with Aspergers years ago and you were told by a doctor that because of this he would develop Schizophrenia if untreated and because he did he has been in an institution for three years.

 

Every post I have made in reply to yours has simply been a request for accurate information, to help you because this is a support site. You cannot expect unconditional support on basis of confused accounts of what's happening at your end. You have never been flamed, abused or had ego-scoring pot shots fired at you.

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asereht   
like i have said, i can only go by the personal experiences we have had with our son over the past 26 years, and the professional advice we have received. but when i post here i get shot down in flames, this is not so much a help and advice site, as an i am right site for lucas. so sorry to say this will be my last post here. i can help others elsewhere.

 

 

Timelord ,your posts are contadictory .you said your son was dx years ago,then said he was dx recently?Also I believe( which is my right) the professional advice you were given was wrong ,regarding a good percentage of people with AS eventually becoming schizophrenic!.This IS a help and advice site and a good one too.If this is your last post then so be it,but no one attacked you personally, people are entitled to disagree with your opinion or advice you have been given in the past.It's called freedom of speech.I agree with Lucas but I would go so far as to say the your differing reports on your sons condition and dx leave some unanswered questions as to the truth of your statements.Feel free to correct me if I am wrong.

Edited by asereht

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ceecee   

Timelord

 

Sorry you feel like that.I don't know any background behind why you should feel like this as i have not been following your threads but I just wanted to send you some of these >:D<<'> >:D<<'> >:D<<'> and urge you to continue posting to try to get the help and support you need.

 

Take care

 

ceceexx

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asereht   
when our son was diagnosed as having aspergers, we were told, that unless he received the correct treatment, he would develop scizhophrenia. as apparentlt 90% of as sufferers do?? lo and behold at the age of 23 he was diagnosed with paranoid scizhophrenia. but no doubt someone here will tell me that the doctors are wrong. to cut a long story short, he was sectioned, and has spent the last 3 years in hospital, now, with the correct treatment, he is due for discharge later this year.

 

 

thanks lucas, after 3 years in hospital, and at the age of 26 our son has just been diagnosed as having aspergers, it has been a long hsrd fight, but we got there in the end. this is one of the problems living on an island away from the mainland, and decent medical services, it takes extreme action to get the help on eneeds. as for the schizophrenia, this diagniosis came about after, our son , upon hearing voices, out all his furniture out into the street, then proceeded to dig up the drying whirlygig in his garden ,mwhich was by the way, embedded in 4 feet of concrete.

 

 

Timelord, maybe I am wrong in my last post, but, the above statements completely contradict each other,maybe you could clarify?

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asereht   
Timelord

 

Sorry you feel like that.I don't know any background behind why you should feel like this as i have not been following your threads but I just wanted to send you some of these >:D<<'> >:D<<'> >:D<<'> and urge you to continue posting to try to get the help and support you need.

 

Take care

 

ceceexx

 

 

 

 

Ceecee, Timelord doesn't seem to want help and support but appears to be here to help and advise, sadly the advice is conflicting and contradictory.Also he feels what he has been told is right and no-one seems to be allowed to say any different. Sorry to be so blunt,but nobody needs to be listening to outdated advice from so called experts like the ones that advised Timelord and it may even upset some who are on the early road of dx.

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ceecee   

I see i understand a little better now.

 

I must admit over the couple of years i've been her I have found this forum supportive and helpful in the main.But there have been odd occasions when I have felt reluctant to post .

 

 

Like many on this forum a.s. has affected my life in many different areas and at times I have felt overwhelmed and down hearted by it.I guess my posts often are quite negative about the condition and there have been times i have been worried about posting because of this.

 

On the whole though I have found the forum freindly and supportive.I really hope timelord does continue to post as it is obvious like lots of others his sons a.s. has affected his life to quite an extent.

 

Best wishes

 

ceecee

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Hello everyone,

 

Firstly Timelord, I would like to point out Asperger syndrome is a developmental disorder, Schizophrenia is a personality disorder if you would like to check on this first it may help you clarify a few things. Also that the additional diagnosis of Schizophrenia is made only if prominent delusions or hallucinations are also present for at least a month there is however a link between Schizophrenia and Pervasive Developmental Disorders which come under the Asperger Autistic spectrum of things.

There is a big difference between someone as you say throwing furniture out of the window, which could be just as easily be someone having a massive sensory overload attack, than someone who is having a psychotic attack as in schizophrenia. These people when having these attacks cannot distinguish between reality and fantasy, once again you should check this against the diagnostic criteria.

When I as an Asperger am having a sensory overload session, even though I am Completely stressed out I am very much aware that I am not in a world of fantasy. With regards to the statement 90% of AS sufferers go on to develop Schizophrenia, this is absolutely ridiculous, Experts it would seem are few and far between, judging by the information your experts are sending you away with, there is no hope for any of us!!!!!!!.

It is well documented that these so called doctors when looking at criteria to diagnose these disorders have asked the question to the patient " do you hear voices", it is likely that the person with Aspergers would reply "yes", because of the literal thinking, this is why there has been so many mistakes in the past. Hopefully Timelord on reading this post I would hope you will see the importance of having in front of you ALL of the relevant information at hand before making an assumption. Everyone seems to think that just because Doctors have letters after their names we have to believe everything they say, I would say that living with Aspergers all my life and the other people who have ASD's etc, this makes us the experts to a certain extent.

 

 

 

Steve..

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baddad   
I see i understand a little better now.

 

I must admit over the couple of years i've been her I have found this forum supportive and helpful in the main.But there have been odd occasions when I have felt reluctant to post .

Like many on this forum a.s. has affected my life in many different areas and at times I have felt overwhelmed and down hearted by it.I guess my posts often are quite negative about the condition and there have been times i have been worried about posting because of this.

 

On the whole though I have found the forum freindly and supportive.I really hope timelord does continue to post as it is obvious like lots of others his sons a.s. has affected his life to quite an extent.

 

Best wishes

 

ceecee

 

Hi ceecee. Thankyou for conceding that your posts on AS have often been quite negative . This may help other users to understand why responses to your posts are often quite negative too...

For the sake of clarity, I would also point out that there is no actual basis for your assertion that AS has affected your life in many different areas: From your previous posts I was given to understand that none of the people you have personally diagnosed (and in some cases repeatedly challenged online despite their own assertion that they do not have an ASD) are actually professionally diagnosed. including yourself and your own traits (which you have also regularly indicated are only 'mildly' problematic)...

This latest post seems to be taking Timelords post and using it to reiterate your own 'frustrations' which were addressed directly by me only days ago in a different thread...

Earlier in this thread, I responded to some of the assertions that were made by professionals to timelord in the treatment of his son's condition. I stand by that response, regadless of how offensive timelord might find it, because to the best of my understanding it is based on fact...

At no point was that intended as a criticism or an attack on timelord directly, but it WAS a direct challenge to the information he had been given, because I understand that information to be wrong...

Different people log on to support forums for different reasons, but MY interpretation of support (and i think I can speak for the rest of the mod team on this, but I'm sure they'll correct me if I'm wrong!) is that it enables people by helping them to sort through information and gather different opinions to help them form their own conclusions. Part of that process involves challenging claims that appear erroneous or misguided - regardless of the source.

Whether Timelord continues to use the forum is of course a personal decision, but in this instance there does seem to be an element of 'shooting the messenger'...

It is certainly NOT going to help the situation though, that you have chosen to hi-jack his post to reiterate your own oft expressed view that the forum is somehow negligent in not accepting unconditionally your often very negative perspectives of the people it is primarily intended to help and advise...

 

 

BD

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ceecee   

Baddad

 

I very much agree that Timelords posts appear confusing and misleading and it is quite right to question this.

 

As my own daughter was left severly autistic after an mmr vaccination then i guess i would be correct in saying in common with lots of people on this forum that asd has affected my life.

 

I am lucky very very lucky she made a full recovery but the flashbacks the panic attacks and subsequent depression suffered by the rest of my family over this has been vast.

 

I will endevour to make my posts more positive in future.

 

ceccee

 

 

I have pm you.

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