Jump to content

Paula

Members
  • Content Count

    1,515
  • Joined

  • Last visited

Everything posted by Paula

  1. Paula

    Pee'd off.

    If youre son hadnt said anything they wouldnt have told you about it yer can bet yer bottom doller on that. Id be fumeing and demanding answers to some bloomeing awkward questions. Good luck with it dont roll over make them explaine what went of because if it was the other way round and youre son had said something untoward had happened at say home yer can guarantee theyd be investigating the parents. How do i know this because my son went through a phase of saying he was going to call the police if we ever shouted at him.He went to school his special school and must have said im going to tell the police on mummy. The school and i guess rightly so were straight on the blower to me asking what had gone on at home id to explaine nothing had and it was just something he said when he didnt like haveing to do as he was told at home.I fealt like a bloomeing criminal but i understood that they had to persue the staement hed made.
  2. I know i always say go on youre instinct to people but i would. It sounds a right carry on and shows that the staff realy dont give a toss about kids with difficulties in there school and would rather palm them of with another child to look after them.Its not right but its common. When my son did his one and only year in a mainstream school they used to make him stay indoors said he scared the other kids because he made at times strange noises.They also got his elder sister to look after him which wasnt faire on her. It made me so angry my As son was left sitting in a classroom incase he frightened the other kids yet these other little darlings bloodied his nose,urinated on his coat and spat at him !!!!!!!!!! Yet theyd to be protected from him a child who wouldnt harm a fly.It enraged me and these kids were only aged 5 and 6. I thankgod every single day he no longer attends a place where despite what they say to youre face how pleasant they are and how they appear to understand in reality they think there nothing but a naughty child and Autism/Aspergers is something parents bring on through bad parenting. I dont think youre being sensative id listen to youre inner voice.
  3. Paula

    anger

    <'> <'> <'> <'> <'> <'> Sounds awfull and to some extent weve been there also. Thing is though like when our As son apparently appears to be kicking of and melting down for nothing there is normally a reason that he has but can explaine. I hope it calms down soon. Our son used to punch kick and smash his sister over the head with anything to hand before turning onto me.We never knew why. It is only recently that ive fealt able to broach the subject of stuff that happened yars ago behavioures he did and get some sort of anwer as to why from him. The underlyeing thing he says is that he didnt understand what was happening and no one listened to him or that he wanted everyone to go away.
  4. Its a very rare condition lots of babies die at birth if they have it because there born not breathing and by the time its discovered they have atresia its too late. Luckily and very rareley our son was born breathing via his mouth very very unusual but making terrible noises.the midwife aint a clue what was wrong.It took 3 houres to get a peadiatrician to realise what it was and then hed to look it up in a book.He then spent a week in special care in oxygen and being fed via his stomach before being transfered to Leeds where they know what to do.He didnt come home until he was almost 3 months old.As wed to learn how to care for him.The equipment wed to have. It was like being in a freak show.because it was so rare the drs and other folks used to request that they could come to our house to see what was wrong and how we looked after him.Because they might not see another case in there career.Just added to the stress. Hes also undergone loads of test to see if there was any chromasone problems in case it was an inherited condition but it isnt.Its just one of those rare rare things that strike out of no where. We are lucky though.I saw kids in the LGI with cancers and terminal illness kids who one minute were there and the next dead. When i read other peoples posts on here i realise how mild in comparison to others our sons AS is.And how bloomeing lucky we are that he attends a speical school. He enjoys life hes happy he can walk talk and run not all are so lucky. Every could however black has a silver lineing.
  5. I hope it goes ok. We went through a stage where our son couldnt go to the hairdressers luckily being male we could just use the home trimmer and hed to endure an all off haircut for years. Our hairdresser is great.And the place is realy small.Shes so kind to him and explaines everything shes going to do so he knows whats comeing.She also lets us make appointments first or last thing so theres no one in.That help a great deal. Ill keep my fingers crossed but i bet youre daughter will surprise you and all youre worries will be unfounded.
  6. He had an alarm when he was born and they inserted what is known as stents into the nostrels. These had to be suctioned out every hour at least 24 houres a day to enable him to breath.He couldnt feed very well either.It was a liveing hell. Choanal atresia is also part of a syndrome known as charge and so he had to have loads of scans to check his other major organs weren abnormal.Thank god they werent. He underwent operation after operation in an attempt to correct the defect.The final one or so we thought was the final one involved removeing his soft pallet and going in via that way it was called transpalletel repaire.He was in so such paine.I just wept. All this and id a two year old daughter to deal with as well. I ended up realy ill the stress made the bi polar idsorder i have kick in in force and id a breakdown. In the end the drs said there was nothing more they could do for him untill he got older hence were back at the hospital. Its stupid stuff like he cant blow his nose,cant brush his teeth without becomeing distressed(try it without being able to breath through youre nose) cant eat properly.Hes a constant dry mouth due to mouth breathing his nose is always dischargeing geen muck due to the fact it cant draine in the normal way and he gets constant ear infections. Id never wish it upon anyone choanal atresia ever it sounds so trivial but its a horrid condition. Im hopeing techniques will have improved and new drugs might stop scar tissue reforming. I often think why us why our boy.But then why not us its got to be someone. For us the atresia has been worse than the AS.The AS is our sons side line !!!!!! Ive whinged on im sorry just needed to get it out. All my thoughts are with anyone whoes child needs to go into hospital you put yourself in there place you feel there suffering.Its awfull being a mum at times. I darent start to cry else im scared ill never stop.
  7. My son was born with bi lateral choanal atresia.(No air way through the nasel passage) He cant close his outh at all or blow his nose,eating is a nightmare and he snores for england.Accompanied by periods of not breathing and loud gasping. Hes just recently been back to the LGI for a ct scan and will have to have yet more operations to try to correct the atresia. The operations are a nightmare and very painfull and the scar tissue is constantly reforming and blocking the nasel air way againe. Combine this with the As and its a bloomeing nightmare. I dont want to belittle in anway tonsils and adanoids being taken out because all operationsall conditions however small are horrid especially when its youre child but i wish to god all my son had was an tonsil problem. Im dreading it hes dreading it.Every night i check hes breathing every single night i wonder if hell die in his sleep Ill be glad when its over.This will be the 20 operation to try to correct this problem. ,
  8. Is it also possible for youre child to be present for part of the interview also.So that you can see how the person interacts with them and vice a versa. Not want in to put a dampner on stuff but they could just cram and learn some stuff of the internet about autism and stuff and blag there way through the interview. Id go on gut fealings and stuff also weather there a nice person freindly whether you like them that type of thing. People could know alsorts about Autism read from a book if they wanted to bag a job but in reality not have a clue and be rotton.But someone might know very little be willing to learn but could be great for youre child as there freindly likable and most importantly youre jaden gets on with them.
  9. My son when he was younger never used his own name he used to call himself boy.Then he called himself sparky which hed got from a tv programme about ponies.Gradually he used his own name but its only since he got older that he uses the word i and me. he also uses peoples full names and sometimes calles me mrs ***** or refers to his dad as youre husband.Its all realy official.And kinda funny at times.
  10. My son loves the play staion. But he doesnt allow me a meare female to play on it.Im useless and havent a clue about which button to press and in what order. Its strickly a man thing. Ive often said to our son youd be a whizz at say testing out the ps2 games coz yer brill at them and remembers everything that happens in them.
  11. My son suffers from flatulance hes always farting He has a catchphrase when he breaks wind he always says AHHHHHHHHH Bisto. Hes obviously got it from the tv ad and adapted it to fit the occasion. he then wafts the offending smell over us and says enjoy. maybe this is nothing to do with being As and everything to do with being Male .
  12. Shell also have no excuse now for sitting at the pc for houres on end supposeldly searching for info for homework when shes actually talking on MSM. Itll only take her 10 minutes and then she can knuckle down. Im liveing in dream land i guess but i can but hope. God forbid i suggest she looks in a book for information.Like we used to in the olden days back in the 1980s before computers caught on.I mean can yer realy beleive that back then when i was at high school we thought it was all a nonesence and no one would ever have a computer in there own home so why bother learning about them. Hence the reason why most folks over the age like me of 35 are hopeless and leave it to the teenagers. Im pressing buttons for ages trying to get stuff to happen then hey presto seconds and me daughter sorts it out with worlds of god mum yer so SAAAAAAAAAAAAD.
  13. What a load of old tripe. Its a bloomeing dictatership thats what i think. My sister is taking her child outta school in term time for a holiday.Theyll only approve 10 days but due to flights itll have to be 12 days.They also say itll go reported.She said go on then sod yer.Maybe not the best thing to do but yer get fed up at haveing yer life arranged by buricrats. Thing is shes taking the kids outta school coz its cheeper in term time. The bloomieng govermant and authorities should adress the travel companies ect about why they hike up the cost in school holidays.This is what shouldnt be allowed.Its a scam.They should fine these rip of merchants and leave parents alone.
  14. My As son goes to a special school and they tend not to tell me about every day bumps and scrapes.But they do have an accident book and they are put into this. If theres been a major incident the school will phone me and tell me about it they dont send a letter incase it goes astray. Now my daughter and her school what can i say. She attends a mainstream school.Currently in year 9.I get to hear sod all about what goes on. She once fell over at school in PE and badley injured her arm to the point where she couldnt move it.NO one telephoned me up or let me know.Shed to spend all day in agony.When she came home id to take her to cassualty for an xray.Luckily it was just sevearley bruised and strained. I phoned the school and played hell fire.Said they should have called me and what on earth made them make her spend all day at school unable to move her arm.I pulled her from the school shortley after and found her another high school.It was the last straw in a long line of complaints. When she was at nursery she fell and banged herself between the legs.No one checked her apparently they aint allowed and no one called me.It was only when i undressed her and saw blood in her knickers that she managed to say shed hurt herself at nursery.I phoned the place and againe gave them hell.Yes i realised they couldnt check her but why didnt they call me to check her.I was at home all day as i dont work and only 5 minutes away from the nursery. Ive a list of whinges and complaintes but ill spare yer.
  15. Thanks for the link. This will be great for my none autistic teenage daughter and her homework.Maybe quicker than typeing in stuff and haveing a search engine fetch up millions of hits. Paula
  16. I think i might have come across as though i was saying these things are easy to stop and solve brook and as we all know there not. It took me absolutley ages to lesson my sons obsessions and routines years in fact.Accompanied with loads of screaming yelling and tears and that was just me !!!!!!!!!!1 Its blooeming hard its a nightmare and as quick as i thought id solved finally one little obsession another one took its place.
  17. My As son as ive said before was also born with bi lateral choanal atresia. Once when we went to the hospital for a check up the so called dr asked now then what is the matter with youre chest today !!!!!!!!!!!!!!!!!!! Choanal atresia is a serious condition affecting the nasel passage. I was ###### fumeing.I said to them right hes a file in front of yer as thick as hell im gonna leave this room and youre gonna read the bloomeing thing.Then when i come back in yed better be up to speed. The nurse with him smirked and i stomped out.
  18. Its so easy looking back to see when a certain obsession or type of behaviour started to surface but you didnt realy at the time think was a problem untill it had taken over everything. I know boy do we know weve been there many a time with our AS son.Tiny little behaviour patterns that seem harmless sudenly becomeing more and more elaborate untill its a liveing nightmare. Ive not been in exactley the same set up as you.But our AS son went through a very long stage of insisting that i sat in a chaire the same chaire everynight.No harm there.Then he insisted i sat in a certaine way.Then id to wear a certaine thing, on and on it went untill it was a nightmare.If i deviated from it in anyway hed scream the place down. We also went through a stage where leaveing the house to go for the bus was horrendous.At first he insisted we only stepped of the pavemnent at this point,then he wanted me to say ziggy zam (I never knew why) as well as stepping of the pavement at said point,gradually over a month the routine was so complicated it took over an hour for a 10 minute journey.If any part was done wrong wed to start all over againe.Boy oh boy did that take some breaking.Took me three years as gradually i missed out this bit or that and let him scream. It is a way i think of haveing things predictable and being able to cope.And in a way i do let him have his little insistances.But unlike when he was smaller and i want has experianced in his behaviour patterns i now dont let it get beyond one or two little rules of doing stuff.Otherwise life cannot be lived out properly. Its a balance between what he needs to cope and get by and enable him to feel safe doing stuff and what us norms can accomadate without getting all angry. You know what id do and i know itll be hard.Id try to say alter one little tiny thing each time like i did yes hell sream but when he realises its still safe and all is well with the world itll pass but it could take months.If yer can just get it down to a manageable level then itd be ok. But it wont be easy and it depends how distressed he gets.My son used to scream untill i thought hed burst and die of screaming.Some things arent worth it.Its hard finding the balance. Good luck.
  19. One of my classic banshee screams when haveing rageing PMT and on a bit of a manic high was TONIGHT YOU DIE !!!!!!!!!!!!!!!!!!!!!!!!!! Directed at my husband. yer know i dont think he slept that soundley in our bed that night. yer have to laugh i guess. The worse thing a man can say to a woman as well is time of the month is it !!!!!!!!!! I mean have they got a death wish or what... How come they never learn hell fire its not like periods only happen once ever ten years so they forget what to expect.
  20. I wouldnt bother about a diagnosis either if hes happy and youre happy. I chased a diagnosis for years me for my son.In the end i gave up becuase it was too strtessfull ect.... I went into it more on the a professional said what thread.............. Wehn we look around our family and extended family theres a few folks with Aspie tendencies to put it crudley odd balls a bit like roy cropper out of corranation street or Mr spock types.In fact our nick name for our son his royston or mr tuvok (a vulcan out of voyerger)
  21. Sounds awfull. I hope its a mistake and that its not an outbreak of scarlet fevour.
  22. scarlet fever is caused by an infection with group A streptococcus bacteria. The bacteria make a toxin (poison) that can cause the "scarlet" rash from which this illness gets its name. Not all streptococci bacteria make this toxin and not all kids are sensitive to it. Two kids in the same family may both have strep infections, but one child (who is sensitive to the toxin) may develop the rash of scarlet fever while the other may not. Usually, if a child has this scarlet rash and other symptoms of strep throat, it can be treated with antibiotics and skin treatments for the rash. So if your child has these symptoms, it's important to call your child's doctor. Symptoms of Scarlet Fever The rash is the most striking symptom of scarlet fever. It usually begins looking like a bad sunburn with tiny bumps and it may itch. The rash usually appears first on the neck and face, often leaving a clear unaffected area around the mouth. It spreads to the chest and back, then to the rest of the body. In body creases, especially around the underarms and elbows, the rash forms classic red streaks. Areas of rash usually turn white when you press on them. By the sixth day of the infection the rash usually fades, but the affected skin may begin to peel. Aside from the rash, there are usually other symptoms that help to confirm a diagnosis of scarlet fever, including a reddened sore throat, a fever above 101 degrees Fahrenheit (38.3 degrees Celsius), and swollen glands in the neck. The tonsils and back of the throat may be covered with a whitish coating, or appear red, swollen, and dotted with whitish or yellowish specks of pus. Early in the infection, the tongue may have a whitish or yellowish coating. A child with scarlet fever also may have chills, body aches, nausea, vomiting, and loss of appetite. When scarlet fever occurs because of a throat infection, the fever typically stops within 3 to 5 days, and the sore throat passes soon afterward. The scarlet fever rash usually fades on the sixth day after sore throat symptoms began, but skin that was covered by rash may begin to peel. This peeling may last 10 days. With antibiotic treatment, the infection itself is usually cured within a week, but it may take a few weeks for tonsils and swollen glands to return to normal. In rare cases, scarlet fever may develop from the skin infection impetigo, which is also caused by the streptococci bacteria. In those cases, the child may not get a sore throat. Preventing Scarlet Fever The bacterial infections that cause scarlet fever are contagious. A child who has scarlet fever can spread the bacteria to others through nasal and throat fluids by sneezing and coughing. If a child has a skin infection caused by strep bacteria, like impetigo, it can be passed through contact with the skin. In everyday life, there is no perfect way to avoid the infections that cause scarlet fever. When a child is sick at home, it's always safest to keep that child's drinking glasses and eating utensils separate from those of other family members, and to wash these items thoroughly in hot soapy water. Wash your own hands frequently as you care for a child with a strep infection. Treating Scarlet Fever If your child has a rash and the doctor suspects scarlet fever, he or she will usually take a throat culture (a painless swab of throat secretions) to see if the bacteria grow in the laboratory. Once a strep infection is confirmed, the doctor will likely prescribe an antibiotic for your child to be taken for about 10 days. The doctor may also prescribe medicines to treat the skin rash, or suggest over-the-counter treatments. Caring for Your Child With Scarlet Fever A child with severe strep throat may find that eating is painful, so provide soft foods or a liquid diet if necessary. Include soothing teas and warm nutritious soups, or cool soft drinks, milkshakes, and ice cream. Make sure that the child drinks plenty of fluids. Use a cool-mist humidifier to add moisture to the air, since this will help soothe the child's throat. A moist warm towel may help to soothe swollen glands around the child's neck. If your child's rash itches, make sure that your child's fingernails are trimmed short so that he or she doesn't damage the skin through scratching. When to Call Your Child's Doctor Call your child's doctor whenever your child suddenly develops a rash, especially if the child also has a fever, sore throat, or swollen glands. This is especially important if your child has any of the symptoms of strep throat, or if someone in your family or in your child's school has recently had a strep infection. I cut and paste that of the internet. Paula
  23. You want explosive try PMT combined with haveing bi polar disorder like i have. Hells bells we keep no sharpe knifes in our house !!!!!!!!!!!!!!!!!! Hubby is a very very fast runner
  24. My son attends a special school and he has a home school book thingy.For us its like a diary and helps spark converation which can be like pulling teeth at times. The school write in it what hes been doing at school just breifly,subjects covered,what theyve had for dinner,who hes played with,stuff like that. I write in it what hes done at the weekend,whether hes helped around the house or been out with his dad on his bike that type of thing.This then means the teacher has a starting point to get him to write about stuff at school. Instead of us all just getting the usual response when we ask what yer been doing and a nothing comeing out of his mouth. I aslo put in it how hes been sleeping,if hes had a tantrum and what set it of and any other trouble hes had.Plus i say how ive dealt with it and this means the school can implement the same methods and vice a versa if they do something at school i can then do it the same way at home so were all working from the same book if yer get me meaning. The home school book for us isnt about purley education. I hope this as helped.All schools are different i guess thats just my experiance of it.
  25. My sons autistic behaviour hes As was at its worse when he was younger.Mainley because we didnt know anything about autism and there fore didnt know haw best to handle him and we hadnt learnt what triggered his particular problems and his behaviour. I think all Autistic people and Aspies can adapt and controll aspects of there behaviour so that they appear at first glance to be normal.I know my son used to freak if hed to say walk on grass and then suddenly it changed and he was on tarmac.Hed refuse to move and we had to carry him.he now doesnt freak when the surface he walks on changes.Hes learnt its safe if that makes sence. I often think especialy when things are going well its all a mistake and perhaps hes just a normal boy who is a little eccentric at times.Then WHAM out of nowhere maybe because of stress age god knows all the forgotten behavioures and obsessions are back in full force againe and were right back to where we were ten years ago.
×
×
  • Create New...