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TuX

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Everything posted by TuX

  1. lycos/jubil? do a free internet phone service whilst it's still in beta so could get a phone or headset and use them till they officially release it.
  2. mumble,as someone who has severe sensory problems,am know exactly what it's like with being around people like that,am live with people like that in a residential home,and am awaiting to be moved to another,staff try to shut the main problem causer up [she shouts to set off meltdowns in am,so she can watch them for entertainment],but it'll already have gone to far by then. am recommend getting a pair of padded ear defenders from a builders shop and use these over earplugs. using both together softens the noise,it will take a while to get used to because it allows the internal noises to become more noticeable,but with use-will get used to hearing them [it took am several years to be fully used to earplugs and eardefenders] and they will become normal. also,if have it,show disability officer temple grandins' thinking in pictures because it's got a lot of good stuff in it about how sensory problems are with autists and aspergans.
  3. does he have sensory problems with water? if he does,see if he would try babies body wipes instead,this is how am wash as am cannot tolerate being in water,or the power from showers. the ones am get are ultra soft,and from boots.
  4. have had a lot of hamsters over the years [always the bigger type,not the small ones],sister used to have them,but she gave them to am as she didn't like the whole cleaning out the cage thing. hamsters/hammies are night time animals and prefer to sleep throughout the day,am wonder why they have always been so popular for children as children have school to go to and won't be up all night to be with them. am would always recommend having a group of rats rather than hamsters,but many people are ratphobic. guinea pigs.............they are just like obese hamsters,except can be very noisy and have high pitched squeals-could he cope with that?
  5. noise cancelling headphones make noise to block noise,they're not great if sensory problems are bad.
  6. not sure what scary means,but am a user of,and am think http://www.aspiesforfreedom.com is a good forum,it's not just aspergans there,am and others are on the kanners end,it used to have LF members to,not sure if they are still around. it is the most hated by the pro cure zealots as aff users campaign for justice and human rights for all ASDers including the long campaign with trying to get the JRC closed down. http://www.wrongplanet.net is another good forum,it is probably the most used ASD related forum,so are not waiting too long for replies or things to read. another one is: http://www.onthespectrum.com -am never joined the forum,but used to read it,it was started by wrongplanet users,most of the users are aspergans but some are also kanners autists,it's not a busy forum.
  7. it is probably a 'stim',as well as a habit. quote from wikipedia:
  8. there are a lot of people like that on the internet,they are often nasty as they can get away with it on the internet more. that person cannot call other people stupid when they think a diet cures differently wired brain and genetics,if it truly 'cured' her child she would not have had autism to begin with. the diet can help lighten some traits in some autists and aspergans,but that does not mean cure.
  9. JsMum,what centre was it? was it bendrigg-near yorkshire dales? that is one am have been to.
  10. it sounds sensory related,as mentioned here already and it also sounds like he might be especially hyper sensitive to certain pitches, classical music often has a sharper high sound which can feel like being tortured in the head,it is an extreme pain feeling. autistics can have such accute hearing that some of us can hear our own blood running through the body at times [am included], some are hypo sensitive [too under sensitive] to certain pitches and some have a mix of hypo and hyper sensitive hearing. it is common for autistics to hear/feel the sound/frequency coming from the box that people put in their gardens to stop cats pooing all over it, and also from the boxes that some shop keepers have installed outside their shops to stop teenagers standing about outside them. does he have a problem with things like hoovers,drills,hedge trimmers,lawn mowers...?
  11. what shop is it from? am can have a look around online,and if it's from asda,am could check in local one next thursday. not wanting to change is a common thing amongst all levels on the spectrum. am a kanners autistic and cannot tolerate changing until the unclean feeling on the clothes makes am scratch skin off,and then am agree to change. am have two pairs of the same asda soft combat trousers and two short sleeve m&s shirts of the same,am do recommend getting more than one of the same thing if he likes it,because they might not be there when needed later on,this happened to am when am bought a cat quilt cover from asda,am thought they would be there always so did not buy another spare,haven't been able to find it in asda since,so am just use the one cover and it is put straight back on after washing/drying. a LF kanners autistic am used to live with would attack staff if her clothes were not washed in time for her to put them on after her bath,it was the same tight tshirt,and jeans everyday,she had them that long that they did not even fit her anymore. an aspergan autistic am also know likes to wear the same pink tracksuit trousers and top [by a brand called bear],but finds it easy to change to different clothes. a problem with change is more obvious within kanners than aspergers,but it can be a big part of a persons aspergers,or not be a problem at all. part of it is to do with the routine of having being wearing the clothing,as well as not liking the actual change over.
  12. am get high rate care and mobility-was awarded it first time,and without specialists names being added,although it was home staff who filled it in for am. am think if they have any problem,they can contact the gp or pysch,or request a visit to one of their doctors-never happened with am though.
  13. am in twenties,did not know what to choose on the list for vote. originally wrongly diagnosed as somewhere else on spectrum,ADHD and multiple learning difficulties[adhd and multiple LD diagnosis have not changed],am have kanners autism [mf],ADHD,multiple learning difficulties,dyspraxia-am speech therapist who is part of the social services learning disability team who am have seen for a long time,has written a book about am,level of autism,understanding etc and each difficulty and trait but he does not have authority to make labels a official thing. am have been considering going to see a private autism specialist,to get the label updated,as it would help with getting better support and less ignorance from staff. am live in a council run residential home for adults with complex needs and learning disabilities. am have a cat called fluffybum who lives with am but he has to live outside the house because they don't allow him in,when they are out,am take him up to am bedroom and he lies down and purrs and gets stroked,am own support staff know about it and so do some other staff but they have not told am to stop,am took over parenting him as the old lady who used to do that moved homes,he has always lived in the hedge.
  14. Temple Grandins' Thinking In Pictures.
  15. TuX

    Makaton

    does anyone here use makaton or have child who uses makaton? staff at res.home am live in want to help am learn makaton [am non verbal most of the time,and have difficulty with language when verbal],but Am want to buy a signs book-or,find a website with all the signs on,so staff can teach am them,are there any books/websites with signs? only site could find with makaton signs was the something special site,but there are not many signs on there,and most are not good. no book shops have been to sell makaton signs books,if there is a makaton book available,can shops order them rather than use online?
  16. high functioning does not mean the person is not severely autistic,high functioning usually means are aware of around self,can speak,read,write,but the autism can be severe.
  17. after wrongly sending out renewal forms as it was said to be no way near date,they lost them to,and staff at home had to write all out again. but after staff sent that one off,they said the first one was not lost. they had also stopped the DLA because all the messing about and not knowing it had got lost made it too late.
  18. Am autistic and each appointment dentists always re talk to each other about the amount of anesthetic and iv sedation needed to work after reading the notes as they cannot believe it has little effect,they are sending me to hospital to be put asleep next time because the new SN clinic am at thinks it is too much when it is not even working well anyway.
  19. have always done this as well,still do it very often as an adult,staff put padding in my room and restrain me to stop me KOing myself,for me it is always uncontrollable,happens when around bad noises-and anything else that overloads the system,also go non verbal for a while. Find out what things the child does not like,and if possible remove them to lessen the chances of headbanging and meltdowns,it could be a sound,a smell,clothing,something that has happened,bullying,or even losing at a computer game. It is possible to harm from head banging,as the skull is very rough inside and a bang to the front can cause brain injury. Have had a small fracture on my skull from banging,but no lasting damage.
  20. Am not a mother,but am twenty three and live in residential care,with other Autistics and LDers. The care assessment might take a long while to wait for,unless he was at harm from living at home,the same goes for getting a social worker. Make sure to give every detail of his difficulties to the social worker who visits to do the assessment, not all of them know about Aspergers and might say he is more than capable of doing everything for himself so will not offer any services. Some social workers are very helpful and understanding. The NAS don't have many group homes on offer which places are usually filled,plus need to have a social worker first. He is likely to get more support and help in residential care,but more independance in group homes. Councils all have group homes for people with LD/ASD and tend to create more homes as they are needed. If they are under "learning disability",it is possible the staff will know little to nothing of aspergers and will treat him like he can do everything for himself,so he will need a support plan [make sure they put one of these in place,they are supposed to,but dont always] and he might get a communication passport which also helps staff to understand him and his needs. Cant write anymore tonight,as am being removed from this mac by my sister,if want some better less rushed information about what its like,pm me.
  21. Luke Jacksons mum does say in that [old] documentary something like her family have been very lucky with how high functioning they all are,and that all Autistics-whether they've got the classic,aspergers or PDD type- shouldn't be judged the same because not everyone is at the same level,so people should not ignore what she says and just follow the bits they like.
  22. the wii has the power and market to do something good but its games launch line up is terrible.
  23. TuX

    Why do cats

    Cats are great. mine usually get sick outside or in bed,it is just recycled food so it easy to wipe up,my fifteen year old cat sam does not go anywhere near where she has got sick for a while even if its her favourite bed, but goldiecat and biscuit dont care,any other cats do this?
  24. technically it is for a birthday-jesus,seeing as they dont know what exact day he was born.
  25. When the person first started on income support they stopped asking for the doctors notes after all conditions were mentioned during a medical required by benefits people,has he never had a required medical yet? Make sure he is getting it every week,and getting the disability premium of income support-it is given no matter whether on DLA or not. The person was first told by house staff it should be paid every week but many people only ever got one weeks worth every two weeks and its up to themselves to sort it out rather than benefits people,is on IS,IS disability premium,DLA and DLA mobility component now as well-havent ever been asked for a IS. medical either since-they do give some backup. Medicals for IS are twice a year by default possibly? That will be a help to get things official and hopefully remove the need for doctors notes.
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