rainbow queen

i think it is normal to be behind with the potty training my boy is nearly 6 but still has nappies at night it was an awful struggle to get him out of them in the day the nursery was pushing me to do it but the hospital said that i shouldnt worry to much about him being behind the nursery did let him go in nappies at first because you have 2 children i would really try and put your energy into doing one at a time..........this may help a bit....then maybe when one sees the other doing it they might follow. i put it off for ages as my boy was not aware of when he wanted to go -nor did he at the time have the words or know the feelings to express it its all to do with if they make the connection with the brain....my son was behind in his years anyway it took me weeks and weeks of dedtication he hated sitting on the potty or the loo i wasnt getting far with the potty so went straight to the loo with child seat i was told to keep books and toys in the loo and a bottle of bubbles -this passes the time and also helps with the blowing action [i was told] as in like pushing action for poos i ended up doing a sticker chart and i bought a big box of celebrations chocs and kept them on show in loo i choc for a wee 2 for a poo because it was visual and had a reward it did work in the end...............have to add it took me weeks my boy had real problem with doing a poo-fear of letting it go in the loo i bought some cans of prunes and used the juice out of them-gave it to him with one of those medicine injections..........gave it..... 10 mins and he would need a poo.............so i knew i could sit him on the loo and he would have to let it go-it helped with the timing of it and got him used to being able to let the poo go in the loo then like you said lots and lots of praise hope this helps a bit my 4 year old is dry at night.....even though my older son is nearly 6 i dont think he has the capacity to hold wee in or know when to do it at nighttime yet.........i was told by the hospital it is normal and not to worry to much about it have to add the pull up pants never worked for me as he just regarded them as another nappie good luck

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hope everything goes ok -i have scolosis you couldnt tell from my back bending over but i have a pelvic tilt when stood straight makes one of my legs longer than the other and one shoulder higher only found out age 30 due to me complaining of neck ache my mum has it bad though so it must run in the family

have fun hev <'> <'> <'>

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please dont get down about it i know its hard ive felt exactly the same with my son i still do know at times but you have to live with it 24/7 they dont -nor do half hour appointments show all the trouble that is happening at home i tell you wont changed things for me hedders i started cam cordering it and taping it on a dictiphone camhs even asked me to do this -well when they saw it they really did change there tune i did it over a week filming all the meltdowns that was going on regarding getting dressed/puting shoes on-transitions from door to car ect............... i suggest you do the same its worth it to give you peace of mind that the experts can see what your having to deal with at home <'> <'> <'> dont give in ive had to battle on since my son was 2 he will be 6 in june and its still not over yet....................your not on your own <'> <'>

my sons school think my son shows no signs of asd he isnt dx yet but under camhs who have agreed with me that its soundeing asd hes a perfect pupil at school so when i try to say about things that go on at home -they really cant understand it-or its not there problem as hes doing ok at school.

this forum.............without i would have given up the battle along time ago i would have to say my sons pedatriction and just recently camhs plus my sons social worker and salt but none of it was plain sailing..........and i think without seeing this forum i wouldnt of pushed as much as i did.... so this forum should take at least two 3rds of the credit ..

thanks for the positive replys again i have kept notes on in a file since my son was 2-since the health visitor said things werent happening as they should-he was then allocated a social worker at from the on was seen at the cdc .......and on and on the appointments came ......up to now age nearly 6 only now he is seen by camhs...........so they have all the notes ive made on him since birth ect.........im really glad i started to write it all down..........would be lost without that. i moved my son from his first school-for reason that i moved house and also the head teachers bad attitude towards me this other school seems alot better.......and ive even taken my notes into the teacher so they are aware.....but they cant see anything they say........... but i was told at camhs that this can be the case and that the data team will go out to school again to observe him in the playground they said they think i should join a local asd support group ect..... in fact they was bending over backwards asking how they can help-which total suprised me as for a good few years now ive had to keep repeating myself and well im sure u all know ........keeping on at them then out of the blue it seems they are now on my side -i was so pleased with this but after having a meeting with the school -it sort of makes u feel your back at square one again-and u kinda give up explaining it all again. your right its not up to the school my sons been under care of hospital since 2 -he was dx with global developmentally delay but hes catching up now but still has poor motor skills-lang problems but yeah if the phychtrist and asd lady at the hospital are thinking it is asd....who are the school to go agaisnt that. ive spent hours and hours at hospital appointments with my son and gone through all the lot of what goes on....the school are not aware of this at all .

thanks for the replys my son has been under cdc ect since age 2 he had to attend the nursery at the cdc as hes got older its now gone under camhs,plus salt,data team,peaditriction the school hes at are more aware of asds as there is a unit at the school for asd in fact a lady from the asd unit was at the meeting and was giving some suggestions of help at home.....but you sort of come away feeling that as your son isnt showing at school what goes on at home that it looks a over reaction from yourself. i now have come to conclusion that no it isnt me and yes he deffo has these problems i should know ive had to deal with them for coming on nearly 6 years its just a case of waiting i guess can i ask clare at what age did u get the dx of aspergers?

just had a meeting with the school teacher -year 1 [this is a different school from one my son was at before] the school says theres no signs of asd do the school need to see signs of asd before my son will get dx at last meeting at camhs they were positive he could be on autistic spectrum -mild they have had full dealings with him and know all history and seen cam corder footage of my son at home having meltdowns and showing sensory problems ect at camhs they said that i should attend a local support group for asd tryed to explain to school but its always the same stuff i get back at camhs they said my son was doing a real good job of coping at school and hiding it was all positive before that at last they were taking me serious but will what the school says go agaisnt this??? and impede a dx at a later date? my boy is 5 and a half.

i agree with this post i feel like this

just wondered if anyone else finds weekends hard to cope with -at least in the week theres school and a break of sorts i get so depressed at the weekend nothing i do turns out right for my nearly 6 year old everythings a shouting match went to the park today -took my 4 year old too-as they both have go carts but my nearly 6 year old wont use his as he cant pu sh the pedels and this alone causes a melt down because i didnt go in the park the usual way went the cematry way so my 4 year old could ride go cart along flat paths my other son shouted/wined and screamed for 25 mins -in fact the whole journey till we got to park entrance-he even told me it was because we had come another way i feel so restricted more so at weekends cant even nip to shop for a paper ect...........the whole weekends consist of fighting/arguing/crying/moaning/shouting /screaming they just seems to be no end to it even my 4 year old has bad nerves and gets down about it

hi all not been on for a while still not got the firm dx but still at camhs and dealing with autism team-things have moved on and now they are agreeing with me -as son is very passive at school...but i showed them home footage and filled pragmatic forms in...........so now they are argreeing and will be sending some out from autistic place -or something and have been told to join my local asd support group. in other reports lady had found my son to be not playing with others at playtime -and was busy round the edge of the playground on his own -this was some time ago hes now in year 1 and the lady is going back out to his school to check again at playtimes well just recently my sons been coming home upset as hes no one to play with..........so i went into school and told them this -they said they would fix up a buddy for him turns out [this is what my son told me] she asked the class who would be his buddy -i think hardly anyone replied-a boy put his hand up BUT apparently he only had his hand up to ask a question -as my son says and he got roped into it. but now he isnt playing with him...........in fact my son says the children tell him to go away from him at playtime i can understand this as my son says what looks like rude things ie....upsets folk unintenionally -im sure u all get the picture what i wanted to ask am i in my right to reccomend he could stay in and go on pc at playtimes instead of coming home all upset??? i was going to write to hospital and ask if i can say this to the school-as ive no dx as of yet but withthere backing ect i would write in down to the school to i did ask at the classroom door about staying in and going on pc to which she said no-but the teacher i asked dont know the full picture about my son just asking for advice really and hes in mainstream thanks

http://www.av1611.org/othpubls/santa.html if anyones interested -check that link out about santa claws !!!

my 5 year old isnt very bothered by father christmas at all......... we saw one dressed in town and he did ask me if it was father xmas or words to that effect if he was real.....and i did wonder if i should of come clean................he showed no interest anyway -i asked if he wanted to go up to him and he didnt want to......... i made the mistake of taking him to some xmas fairs when he was smaller to see him .........and he screamed the place down.........as he hated the crowds ....so i avoid them now.............too much noise and bustle.....ect.......... i took him this afternoon to watch lights being switched on ......he couldnt care less.............he was to busy confronting strangers with questions and touching them.. [is this normal behaviour??].....im guesing it is cause hes been doing it for ages...........and coming out with personal comments.............any event we go to ends in screams and tears so i try to avoid it.

thanks suze and everyone .............just having a feeling sorry for myself moment

hi dont know if anyone remebers me,my son isnt dx hes 5. i feel like im in nomans land ....well its nowt new felt like this for 3 years now at least. my situation is my sons had a second ados and they saying he only just scored on the edge of it....they admit from seeing home video footage that he has sensory and processing problems....still under camhs im coming to end of a parenting course which to be honest hasnt helped alot ........last one next week then they all get together and talk again. last thing i did was filled out a pragmatics form for home life and sent it to salt -who will see again in jan and school should be filling one in. i moved them out of old school into a better one -who are more understanding -they do have as unit but my sons in mainstream class. hes doing well at school but still got iep.............but our home life is full of endless arguments and confrontations ect....difficult times in public ect..... i guess im just wondering what happens next.....if anything....feel like im just left to get on with it all on my own...............there is a local support group but i wont go much cause hes no firm dx i feel i just belong no where.

again just reading this post and thats exactly whay my son dose .....................he will state that no we cant finish the homework cause its too late its gone dark .....ect,,,,,,, and he wont have you try to explain that it dont matter ect.....ends up in big fight.............. im feeling loopy with all this ...............glad its not just me

this really sounds like my son....................it causes us to argue all the time .....he even applys this thinking to the outside world of school....like kids shouldnt play out at night.................and if he sees some in the street he says that there naughty ect............. CAN I ASK QUESTION.......who should i be telling about this.....................?? shall i write it down amongst other stuff and take it to whom................?? speech therapist ?--shes recently asked me to fill a pragmatics form out or peodtriction or camhs??? my son still hasnt had a firm dx .

SNAP my sons same ...............hey lets start a club ...............

i agree with that.....i see this alot with my son...............its the build up ..then it just pops like a cork in a bottle ...............because it must be very frightening to try and perceive emotions when you dont understand them............. i was talking to camhs about this the other week..................and they have told me to tell my son what emtions hes feeling at the time.................sounds really weird doing it but i think its helping a bit.................. so when he starts the build up ....i go .."your feeling upset" 2you starting to feel frustrated" "your very angry now " because ive relised my son does not understand the words for the feelings hes having.............or the feelings inbetween calm and full on rage. and its like it dose not come naturally to him like it dose for me or others ...............its took me a long time to work this out and i feel its half of the battle.

well i had this trouble with the school my son was at ................ not at first may i add but as time went on................because my son was able to hold it all in and comply whilst at school................. i still have no dx for my son because they are not willing to lay it down because he behaves so well in school............... the min he walks through the gates though all hell breaks loose. they have said yes he dose have sensory problems and processing of lang probs in a pressured environment...............ie....coming out of school is a major deal cause of all the noise and chatter and the fact hes had to deal with stuff all day .......he unleashes it onto me..... they only agreed to that once they had seen video evidence of what out home life consists of........... i know full well it isnt naughty behaviour because theres a rigid pattern to when the outbursts come and the things that trigger it.............i know it before it occurs now............. i know it ...............its just getting others to know it that seems the big issuse. i fell out with the headteacher /senco at the last school i pulled my son out after having 2 years of patronising rubbish ....like all kids do that.....and well he seems alright here...... hes at a much better school now ...........who are more willing to listen and help.............