hev Report post Posted April 20, 2007 woke up at 3 am last night cos i felt something was wrong,heard steve and he was having a big epileptic fit,thrashing about,i was terrified,couldnt make him wake up,called 999 and rushed us up there,just popped in to get change of clothes then going back up hosp,are giving him epileptic tabs and going for eeg up kings,my poor little baby,thought i had lost him Quote Share this post Link to post Share on other sites
Guest Lya of the Nox Report post Posted April 20, 2007 omg <'> <'> <'> <'> xxx Quote Share this post Link to post Share on other sites
smiley Report post Posted April 20, 2007 (edited) OMG - hope he's ok soon hunni <'> <'> <'> Edited April 20, 2007 by smiley Quote Share this post Link to post Share on other sites
annie Report post Posted April 20, 2007 Oh Hev Thinking of you all <'> <'> <'> Annie xx Quote Share this post Link to post Share on other sites
jayne Report post Posted April 20, 2007 hope his ok hev thinking of u <'> <'> <'> jayne xx Quote Share this post Link to post Share on other sites
Clare63 Report post Posted April 20, 2007 Oh Hev.... <'> <'> <'> <'> <'> <'> <'> <'> Thinking of you & Steve. Clare x Quote Share this post Link to post Share on other sites
baddad Report post Posted April 20, 2007 Hi hen >:D< Does S have epilepsy or is this something new? 2 reasons - 1 - I've heard it's not uncommon for people to have 1 or 2 fits in their lives at stressy/transition time and then never have another again 2 - If it's new, what do they think might have triggered it now... If this is his first the timing seems a little beyond coincidence given everything else that has been going on... Very best to you all - hope you have some answers soon... L&P BD <'> Quote Share this post Link to post Share on other sites
Suze Report post Posted April 20, 2007 oh hev................gawd don,t know what to type , how do you convey a big hug , what a rollercoaster you,ve had lately.Thinking of you take care sweetie hugs suzex................hope steve is home and better soon. Quote Share this post Link to post Share on other sites
Ohforaquietlife Report post Posted April 20, 2007 God, never rains but it pours for some, does it? Stay strong Hev. I really feel for you. <'> Ohf! Quote Share this post Link to post Share on other sites
Bambi Report post Posted April 20, 2007 Awww hun im sorry to hear that <'> >< <'> >< <'> >< hope he is on the mend, thinking of u both <'> Bambi x Quote Share this post Link to post Share on other sites
Cat Report post Posted April 20, 2007 This could also account for the mood swings and the raised levels of aggression to. Oh Hev <'> <'> <'> <'> <'> When will it end for you. Cat Quote Share this post Link to post Share on other sites
bid Report post Posted April 20, 2007 Oh hun <'> <'> <'> Cat is right, epileptic activity can cause aggressive behaviour and mood swings. Really hope you get some answers soon. You know we are all thinking of you so much, Hev <'> <'> Bidxx Quote Share this post Link to post Share on other sites
caren Report post Posted April 20, 2007 <'> <'> <'> Quote Share this post Link to post Share on other sites
ellisisamazing Report post Posted April 20, 2007 Thinking of you all. <'> Quote Share this post Link to post Share on other sites
JenRose Report post Posted April 20, 2007 Hev, im so sorry, you have so much going on at the moment. i hope he will be feeling better soon love jen xx Quote Share this post Link to post Share on other sites
elun1 Report post Posted April 20, 2007 <'> <'> Thinking of you Elun Quote Share this post Link to post Share on other sites
BusyLizzie100 Report post Posted April 20, 2007 Thinking of you Hev <'> <'> <'> <'> Hope Steve is home and better soon. Hang in there <'> Lizzie xx Quote Share this post Link to post Share on other sites
Kathryn Report post Posted April 20, 2007 Hev, Many of these <'> <'> <'> <'> Thinking of you K x Quote Share this post Link to post Share on other sites
loulou Report post Posted April 20, 2007 OMG, you poor thing <'> <'> . It must have been terrifying. Hope he's ok and they get to the bottom of this. Big big hugs to you <'> <'> and Steve <'> <'> Loulou xx Quote Share this post Link to post Share on other sites
krystaltps Report post Posted April 20, 2007 Oh Hev... so sorry. <'> <'> <'> for you and Steve. I was hoping that his little absences you'd asked about a month or so back were not absences at all. But as was already mentioned it could account for his moods and behaviour lately. I'm assuming because he's on meds that he has had more than one really close together, or a really long one? I know it doesn't help, but I do know how you feel just now. I was in the same position with R when he was 16 months old. I thought I was losing him and it felt like the end of my world. But meds are wonderful these days, and if it is epilepsy (and not a one off), it may well be developmental, caused by hormonal changes during puberty. Also, epilepsy is so unpredictable - bad times AND good times. R (who will always have epilepsy, due to a cortical malformation) has been seizure-free for 8 months - with NO MEDS! He's having a good time, and it's possible it could last for years. I guess what I'm trying to say is... hang in there, things will get better. Keep us posted and remember we're all here for you. <'> Quote Share this post Link to post Share on other sites
Tally Report post Posted April 20, 2007 Hev, I know you've suspected epilepsy for a while now. I know you didn't want this to happen, but at least it's got the medics to take you seriously over your concerns. It could be a good thing in the long run. Hopefully the medication can prevent it from happening again. Thinking of you and Steve, hope you can all get back to normal ASAP, hopefully better than normal actually. T x Quote Share this post Link to post Share on other sites
pumpkinpie Report post Posted April 20, 2007 Thinking of you <'> Quote Share this post Link to post Share on other sites
Flora Report post Posted April 20, 2007 hev <'> You're having a rotten time aren't you hun? <'> Hope Steve is ok.... and you too..... Love and best wishes Flora XX Quote Share this post Link to post Share on other sites
peppa Report post Posted April 20, 2007 Oh hev, i can't convey in text how much i feel for your situation at the moment, all i can say is you've had more than your fair share thats for sure! Wish i could take the bad times away for you. Hope steve is much better now and you are feeling ok too, hopefully you are getting answers as i type and things improve for all your family quickly. My dd had supposed involuntary breath holding fit at 18mnth and was in hosp for three days, they couldn't get her to regain conciousness for three hours, used all sorts of meds, it was a terrifying experience and i also thought i was losing her so can identify and somewhat empathise with you, <'> she's had 15 milder episodes since and im learning to cope. I hope this was a one off occurance for steve, and with everything going on for you all, it does sound likely that it may have been triggered by anxiety, so hopefully people will give you more support now!! Let us all know how steve is when you can, loads of hugs and kisses and support to you all xxxx Quote Share this post Link to post Share on other sites
pearl Report post Posted April 20, 2007 <'> Hev <'> <'> Steve <'> Quote Share this post Link to post Share on other sites
fiorelli Report post Posted April 20, 2007 Jev, I'm so so sorry to hear about Steve. I hope he makes a speedy recovery, and that you and the doctors can get the epilepsy under control soon. Remember we are here for you anytime you need a shoulder. <'> Quote Share this post Link to post Share on other sites
rach04 Report post Posted April 20, 2007 <'> >< <'> Quote Share this post Link to post Share on other sites
bikergal Report post Posted April 20, 2007 Thinking of you all <'> <'> <'> Quote Share this post Link to post Share on other sites
lynyona Report post Posted April 20, 2007 <'> <'> <'> oh hev <'> <'> <'> You have had so much going on recently. Thinking of you all. Hope steve makes a speedy recovery lynn Quote Share this post Link to post Share on other sites
David Matthew Baker Report post Posted April 20, 2007 Thinking of you. Hope things start to pick up for you soon. <'> <'> <'> <'> <'> <'> David Quote Share this post Link to post Share on other sites
puffin Report post Posted April 21, 2007 Think about you Hope that Steve's OK and will get the help he needs now Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted April 21, 2007 Oh Hev, so sorry How's he doing today? <'> Quote Share this post Link to post Share on other sites
hev Report post Posted April 21, 2007 home from hospitalnow thank god,hes on epilepsy tablets and going to the epilepsy clinic at the hospital,explains all the blank spells he was having,relieved im getting help now,thankyou to all you lot who i consider my friends,you really are caring and lovely,i mean that Quote Share this post Link to post Share on other sites
Suze Report post Posted April 21, 2007 Glad he,s home <'> ............hope you are o.k. suzex Quote Share this post Link to post Share on other sites
Flora Report post Posted April 21, 2007 hev.... I'm so glad he's home <'> Do you think this could explain alot of his behaviour? Hope that doesn't sound glib but as others have said it could be a huge contributing factor. love and best wishes to all of you Flo' <'> Quote Share this post Link to post Share on other sites
Frangipani Report post Posted April 21, 2007 Hi Hev, Sorry to hear what you are going through right now. <'> We went through this with my daughter when she was 9 happened just when she went off to sleep. She had another at the hospital and lost all feeling down her left side so they kept her in hospital for two weeks then did Catscans and an MRI. Thinking of you, I imagine you are running on pure adrenaline at the moment, so take it easy. Hope you get some answers soon why it happened! <'> >< <'> >< F xx Quote Share this post Link to post Share on other sites
hev Report post Posted April 21, 2007 doesnt sound glib flo thats what the doctor said as well,explains a few things. hes gone out with dad today,im very nervous but he said he dont want epilepsy controlling his life!! Quote Share this post Link to post Share on other sites
KarenT Report post Posted April 21, 2007 Only just seen this Hev. Sorry you've had to go through this, on top of everything else. Relieved for you that he's home and with medication. I'm sure you'll both get used to handling this, as you always do! Karen x Quote Share this post Link to post Share on other sites
Frangipani Report post Posted April 21, 2007 Hi Hev, Sorry to hear what you are going through right now. <'> We went through this with my daughter when she was 9 happened just when she went off to sleep. She had another at the hospital and lost all feeling down her left side so they kept her in hospital for two weeks then did Catscans and an MRI. Thinking of you, I imagine you are running on pure adrenaline at the moment, so take it easy. Hope you get some answers soon why it happened! <'> >< <'> >< F xx Just adding my daughter didnt have another incident after these two.... she had annual EEG's and there was still activity there for about 3 years and eventually she came off the meds and they said if she didnt have another she may never have one again ever. <'> Quote Share this post Link to post Share on other sites
forbsay Report post Posted April 21, 2007 Oh Hev, Sorry to hear this. Thinking of you all Take care Forbsay xx Quote Share this post Link to post Share on other sites
