Kerre Report post Posted March 6, 2005 =D This is good. Share this post Link to post Share on other sites
Elefan Report post Posted March 8, 2005 I would like to warmly welcome everyone that has joined the forum over recent weeks and months. We are amazed at how much it has grown,...and in some ways, I am proud to say, mostly self managing. I have been preoccupied with other matters and unable to post as frequently as I would like. Knowing that you all keep things ticking over, being professional, supportive, and infinitely wise,...gives us peace of mind, for those days where only a fleeting glance can be paid to the forum. Hope you understand. There have been great successes,...with hard fought for, but well deserved results. Well done to all of you. It gives the rest of us hope. Good luck to all of you with your struggles. And for the PMers, sending their good wishes to me and mine,...THANK YOU. <'> Keep on keeping on!! Elefan xx Share this post Link to post Share on other sites
KarenT Report post Posted March 10, 2005 Hi, I'm Karen and I've just registered with this site. My 6 yo son James was dx with AS this week, after four years of shouting on my part that something was wrong. I also think he may have ADHD (my original opinion). It's a big learning curve ahead so I'm looking for help and support. Someone passed on a link to this site and it looks just what I need - a specialist site for the problems that my family is having! I haven't had much of a chance to wade through past posts, but what I have seen looks very interesting and helpful. I hope you'll be able to answer some of the myriad questions that are buzzing around my head at the moment. When my brain comes into focus I'll start asking some of them. Please bear with me - I also have ME so my cognitive abilities aren't what they could be. If I muck things up while attempting to post you'll know why. Ta Karen x Share this post Link to post Share on other sites
mossgrove Report post Posted March 10, 2005 (edited) Welcome Karen, glad you found us! My name is Simon and we have two boys on the Spectrum (7, Aspergers and 5 ASD) as well as a younger boy and girl. You'll find answers to many questions if you wade through the topics here. If you cant find the answers you need, feel free to post away, there are some wonderful people here who will be happy to help. Simon Edited March 10, 2005 by mossgrove Share this post Link to post Share on other sites
Kris Report post Posted March 10, 2005 Hi Karen, Welcome to the forum Kris Share this post Link to post Share on other sites
barefoot wend Report post Posted March 10, 2005 Hi Karen Glad you found the site - there are loads of people here who have a good deal of information on a myriad of topics. I've certainly been bought up to speed on alot of issues I had. Welcome. Barefoot Share this post Link to post Share on other sites
big mamma Report post Posted March 13, 2005 Hello Karen and welcome to the site Share this post Link to post Share on other sites
karin Report post Posted March 14, 2005 HI IM KARIN AND AM JUST POSTING MY FIRST E-MAIL TO THE GROUP HAVE READ A LOT OF THE LETTERS AND BEEN INPRESSED I HAVE 4 SONS 2 OF WHOM HAVE ADHD/ASPERGERS? THE QUESTION MARK IS OVER ASPERGERS HOPING TO HAVE THEM STATEMENTED BY THE END OF THE YEAR THEY ARE IDENTICAL TWIN BOYS OF 8 YEARS OLD THE OTHER 2 BOYS ARE 18 AND 6 BUT NO PROBS WITH THEM GLAD TO SEE IM NOT THE ONLY ONE WHO HAS PROBS WITH DOCTORS THOUGHT ME AND HUBBY WERE GOING MAD ALL THEY WANT TO DO IS SEND US BOTH TO A PSYCHOLOGIST LIKE WE HAVE A LOT OF TIME.THIS SITE WAS RECOMMENDED BY A FRIEND ON RAISINGKIDS ITS A GOOD SITE WELL NOTHING MORE TO SAY EXEPT EVERYBODY KEEP BYE FOR NOW KARIN Share this post Link to post Share on other sites
nellie Report post Posted March 14, 2005 Hi Karin and welcome to the forum Lots of helpful information support and advice on here. Hope you find it useful. Nellie xx Share this post Link to post Share on other sites
leasam Report post Posted March 14, 2005 hi, my names leasa, im 27 and i have a son who is 9 years old. he was diagnosed with autism when he was 2, later his diagnosis changed to aspergers. he functions well at school, but his social skills are poor, his eating is very limited and he gets obsessed with things very quickly. His speech is ok, he struggles finding the right words for things and it takes him a while for him to tell you things. He went through a research project when he was 2, and had play therapy, speech and language theraphy, music therapy, a dietician, pediatrician and clinical psychologist up until he was about 6 then they all decided he was doing ok, and discharges him. Now im having problems, i think i know where they stem from but im struggling with what to do with him. My partner doesnt really understand him and thinks he's just cheeky and disrespectful he can be at times, but i think the lack of social skills doesnt help. his eating is awful, he wont eat the food he's given, the food he's asked for, everynight its the same, "i cant eat it, tastes horrible" everynight almost the food goes in the bin. I dont know if he's underweight atm, but he wasnt a few years ago. I dont know what to do really, i think he needs to see someone, back to the pediatrician or something........ i know its a horrible thing to say but i hope theres other people here in the same boat because i'd really love some support and suggestions and just to know my son's not the only one.... Share this post Link to post Share on other sites
Corcaigh Report post Posted March 15, 2005 Hi everybody, I am so glad I found a forum about AS/ASD. My son is 9 and has been diagnosed Asperger, finally after years of suspicions and wrong diagnoses. I am writing from Cork, Ireland, I wonder if there are other users here from Ireland. I have also a daughter, 6, she is not AS but she is suffering from being an Asperger's sibling I found a lot of useful information in your forum, even though I did not have time yet to browse it all, thanks a lot! I will read it all and post from time to time. I am also studying Applied Psychology in college (I am a mature student) and, no need to say, i would like to specialise in AS/ASD. Here in Ireland we are having big problems in finding proper psychological support, my son was in play therapy for two years and now we have a wonderful cognitive/behavioural psychologist (from Britain, though living in ireland) who's helping us a lot. School is a disaster, they are a bunch of incompetents but it seems to be the same everywhere over here Now that I found you I will read you everyday! Cheers from Ireland Martina Share this post Link to post Share on other sites
jan Report post Posted March 15, 2005 (edited) Hi everyone, I'm Janet, I'm married and live in Devon. We have two boys, one of 10 who has a diagnosis of Aspergers and one of 8 who is laid back and wise beyond his years! I posted on the education part of the forum the other day and the advice and support was terrific! Thank you everyone. And a huge well done to Kris and Elefan, who would have thought that when you started this it would have taken off in the way it has. You are amazing! Well done! Edited March 15, 2005 by jan Share this post Link to post Share on other sites
Elefan Report post Posted March 15, 2005 And a very warm welcome to you, Jan! I can echo your comments about having a sibling, wise beyond their years. Bless them! Glad you have found support already. And nope, we had no idea it would grow so big! Maybe one day there wont be a need for this forum, because there will be less struggles, with a greater acceptance and understanding of ASD from the people who can make a difference. Love Elefan xx Share this post Link to post Share on other sites
Kris Report post Posted March 15, 2005 Hi Jan, Really nice to have you on the forum, and glad that it is already giving you advice and support If you need any help using the various functions then just drop us a line, its wot we are here for Kris Share this post Link to post Share on other sites
mossgrove Report post Posted March 16, 2005 Welcome Leasam, corcaigh and Jan! Glad you have joined us, you'll find lots of support and advice here! Simon Share this post Link to post Share on other sites
LittleRae Report post Posted March 16, 2005 Hi to all the newbies This is definitely the right place to be. Martina, I'm from Ireland - living in Navan. There are a few more of us here also! My son is also 9 with AS and now possible ADHD. Welcome A Share this post Link to post Share on other sites
asereht Report post Posted March 16, 2005 (edited) Hi to all new members, Welcome. Martina. I have three teens 18yr old boy and 16yr old girl both NT and 14 yr old boy with Aspergers and dyspraxia. My son was also only recently diagnosed after years of no (then false) diagnosis I'm also from Ireland and live in Dublin. I totally agree the psychological support here for kids with aspergers is non existent! I have been told there is none and have been left to get on with it. Look forward to your posts. Edited March 16, 2005 by asereht Share this post Link to post Share on other sites
lynyona Report post Posted March 16, 2005 just looking at the introductions posts i seem to have missed lots of new members joining the board so to you all WELCOME TO THE BOARD!, i dont get here as much as id like due to a computer hog mainly my 15yr old son lol. lynn Share this post Link to post Share on other sites
nellie Report post Posted March 16, 2005 Welcome to all new members Glad you could join us. Nellie xx Share this post Link to post Share on other sites
Corcaigh Report post Posted March 17, 2005 (edited) Thanks to all of you for the welcomes and a quick note to all the irish who replied (a secret, actually I am an Italian living in Cork and married to a Corkonian, but living in ireland since 1991 ). My son also has a touch of ADHD, in fact his first (wrong) diagnosis 4 yr ago was that one. We never had doubts he was something different and we knew he was Asperger two years before his official diagnosis. Is is also slightly OCD. Here in Irlend we went on quite a rocky road with Ois�n (my son), until we met this wonderful behavioural/cognitive psychologist I mentioned in another post (of course, we attend him privately...). When our son was diagnosed, the school principal lighly admitted that he had never heard of Asperger before. You actually can see it from the way he deals with children in the school (appalling). You really wonder in what prefession does he think he is... It is a problem. Martina Edited March 17, 2005 by Corcaigh Share this post Link to post Share on other sites
unameit Report post Posted March 19, 2005 G'day from Australia, This is my first posting here - I am a mum of 3 kids Sarah 6 1/2 (exceptionally bright), Alex 5 (in process diagnose with As and ADHD), and Joshua 2 1/2 (born chronic renal failure). Josh and Sarah are doing fine, but my husband and I have been fighting medical professionals for about 3 yrs now to find out what our boy Alex has, nobody wants to know or diagnose. He is the sweetest kid, but I feel devastated for him when he has no idea what it is he is suppose to be doing plus a million of other things. Some times he is so good at things - I start wondering is there anything wrong, then he does something to bring me down to earth. I worry about his education, he starts school next term. About how will he manage when he is older with relationships with friends - already it is affecting his soccer - he is all over the place on the field and is gradually getting less time on - now he doesnt want to play anymore. What the hell did I do wrong for him to have this, I feel so protective of him that every time he hurts - I do. Thank you Anj for your posting - it has given me hope of him having a normal life even if he is different. Can anyone suggest any reading material ???? I would like to know as much as possible so I can help him any way possible. Thanks, and sorry for the ranting - it has helped me put my thoughts into words unameit Share this post Link to post Share on other sites
nellie Report post Posted March 19, 2005 Welcome to the forum unameit No need to apologise for ranting, the forum is an ideal place for ranting, you will find lots of who people here who will understand. Please don't think you have done anything wrong or caused your son to have AS, it is not your fault. <'> The best book on AS is Asperger's Syndrome A Guide for Parents and Professionals by Tony Attwood. You can learn a great deal by reading the many postings on here. Take care Nellie xx Share this post Link to post Share on other sites
hiyame Report post Posted March 19, 2005 hi im Mandy already posted on the forum , but just came across this so im a 36 yr old single mum 16 year old daughter and 7yr old son with dx of asperger at age 2yr 9 months dyslexia last year and probable dyspraxia still waiting dx . We live in Cambridgeshire and matthew goes to a mainstream school which i have to say he is finding very dificult this year ,but he does have a statement that starts after the easter holidays for 19 hrs a week . I am soooooooooo pleased i came across this forum you all seem a great group of friendly knowledgable people and i have learnt so much already thankyou . I dont have anyone to talk to who is in the same situations or who have been through the same things so this is fantastic . so a big hello to everyone mandy xx Share this post Link to post Share on other sites
Elefan Report post Posted March 20, 2005 A big welcome to all the new members who keep on joining. Hope you find the forum useful and a place for support and advice. Good luck with everything, Elefan xx Share this post Link to post Share on other sites
Sue B Report post Posted March 28, 2005 Hi Im Sue mum to D aged 16 with high functioning Aspergers Share this post Link to post Share on other sites
Helen Report post Posted March 28, 2005 Welcome Sue B and all recent new members Share this post Link to post Share on other sites
Rabbit Report post Posted March 29, 2005 Hi Sue B....just wondering if your MY Sue B?????????? If you are fancy seeing you here Rabbit Share this post Link to post Share on other sites
nellie Report post Posted March 29, 2005 Hi Sue, Welcome to the forum, a great place for support and advice and the natives are friendly. Nellie xx Share this post Link to post Share on other sites
Sue B Report post Posted March 29, 2005 Hello Rabbit! Yes its me <'> Share this post Link to post Share on other sites
linsha31 Report post Posted March 29, 2005 Ahhh Sue B caught you !!!! Share this post Link to post Share on other sites
Minxygal Report post Posted March 31, 2005 Hi My name is Amanda. I am 36 years old and I have three children. Gemma is the eldest, she's in college. Then there's Mark. He's nearly 15 and he has autism and PDA. James is the youngest, he's 13 and has aspergers,ADHD and we think a few language problems that they are exploring at the moment. I don't work, just looking after the boys is shattering enough but when I do get a bit of time I run a message board and also do some voluntary work supporting other parents with a new diagnosis. Nice to meet you all Share this post Link to post Share on other sites
Sue B Report post Posted March 31, 2005 Hi to you Amanda <'> Share this post Link to post Share on other sites
nellie Report post Posted March 31, 2005 Hi Amanda, welcome to the forum. I'm Nellie, mother to two sons, 27 and 24. The eldest was diagnosed with ASD at 19 and we suspect the youngest has AS. Hubbie was diagnosed with AS a few years ago. Hope you find the forum useful. Nellie xx Share this post Link to post Share on other sites
candy Report post Posted April 1, 2005 Hi everyone I have a son (4) who was dx with ASD age 2 and has been attending an SEN school for 2 years and an NT daughter. Excellent Site Candy Share this post Link to post Share on other sites
nellie Report post Posted April 1, 2005 Hi Candy, Welcome to the forum, hope you find it helpful. Nellie xx Share this post Link to post Share on other sites
bevalee Report post Posted April 1, 2005 Hi Candy Welcome to the forum! Share this post Link to post Share on other sites
Kris Report post Posted April 3, 2005 Hi, A huge welcome to all our new members. We hope you can find all the help and support that you need on the forum Kris Forum co-Host Share this post Link to post Share on other sites
littlenemo Report post Posted April 4, 2005 Hello there. After years of fighting the good fight on our own, this community is quite an eye-opener. My partner has been glued to the various threads for the last two days (thank god for broadband) and I'm sure she'll become a prolific poster before long. We've got a 12-year old son with AS and an 8-year old daughter with various co-morbids, but no visible ASD. So many of the posts about battling various authorities and suffering the traumas of daily life echo stuff we've gone through/are going through. Every time you go to Tribunal to make people do what is their job, you think "Well, at least no-one else will have to go through that again. We've made a difference." and nothing changes. Another policy committee coming to a non-binding recommendation sat in a filing cabinet somewhere. Ah, yes, depression - after 8 years we're over it and happier than ever. If I knew why I'd pass the secret on to everyone on these boards, but the best I can do is to say "Stay strong - it will get better" and if it doesn't, then you can hit me with a wet fish.:insert emoticon here: One thing that has helped enormously has been focusing on the positive (cliched as that may sound). When I took our son to his first Taekwondo lesson (balance, co-ordination, pattern-learning etc) I had such a flood of repressed childhood memories I was crying for a week (and began to suspect AS in myself), but just remembering the day he accidentally kicked his black belt sparring partner in the xxxxs always makes me grin. Blind, deaf and just plain dumb professionals lose some of their importance when I think of the time (when he was 2) the community nurse asked "Does he have 10 words?" when he'd just finished naming the 15 different types of vehicle in the toy box! The latest one is School (what a surprise). His latest detention (looks like another tribunal coming up to force them to obey the law!) was for shouting at his LSA in class. As soon as I heard about it I knew it was his literalism, but it took a while to get to the bottom of it - he was telling his LSA something in class and she told him to be quiet. So he carried on - quieter. So she told him to be quiet again. So he carried on - quieter. This carried on till he shouted "I'm talking as quietly as I can!". We should be miffed at having to train another person the basics of AS, but at least we can do it with a smile. Well, that's enough of that twee drivel. Very glad to have found you all. Nemo Share this post Link to post Share on other sites
baddad Report post Posted April 4, 2005 Hi Nemo - Welcome to the forum. Welcome too, to all the other newbies I've missed 'cos I forget to check this thread regularly - Blimey, this place is getting popular! Elefan, Kris - we're gonna need a bigger venue for next year's party. Get tunneling! Share this post Link to post Share on other sites
nellie Report post Posted April 4, 2005 Welcome Nemo, glad you found us. The latest one is School (what a surprise). His latest detention (looks like another tribunal coming up to force them to obey the law!) was for shouting at his LSA in class. As soon as I heard about it I knew it was his literalism, but it took a while to get to the bottom of it - he was telling his LSA something in class and she told him to be quiet. So he carried on - quieter. So she told him to be quiet again. So he carried on - quieter. This carried on till he shouted "I'm talking as quietly as I can!". We should be miffed at having to train another person the basics of AS, but at least we can do it with a smile. This did make me smile! Sadly it has a more serious side. Hope you find the forum useful. Looking forward to meeting your partner. Nellie xx Share this post Link to post Share on other sites
