missjaney Report post Posted November 12, 2005 hello, not sure if i am doing this the rite way as am not that good at all this pc stuff!! have just discovered the forum and hope to become an active member. my 6 year old son has AS, ADHD and also SID and my dear hubby also has AS(didnt know that wen married him !!) also live with a finicky cat and a loving rat best wishes, janey xx Share this post Link to post Share on other sites
annie Report post Posted November 13, 2005 Hi Missjaney, Welcome to the forum Hope to chat to you soon. Annie <'> Share this post Link to post Share on other sites
mel Report post Posted November 15, 2005 hi missjaney <'> welcome to the forum Share this post Link to post Share on other sites
reuby2 Report post Posted November 15, 2005 (edited) Hi all, I have been posting for the last 3 weeks since it was suggested by camhs that J may have autism. J (Not his real initial but a bit unsure about posting his name) is our only child ,he is 7 now.We are already seeing a speech therapist(since Jan) had assessment by O.T for fine motor skills and should be getting some support there, seen a pysiotherapist for shoulder and pelvic strength he was discharged from there but the teacher and O.T want that rechecked, Seen a paediatrician and lastly been to CAMHS for his anxiety where they are checking out autism (he has autistic features, whatever that means) his teacher and speech therapist also think he may be dyspraxic.This last year has been a roller coaster and I have just been taking every step and putting on a brave face, cracking jokes ar work etc but i do feel that it is just about taking it's toll .On top of that my son's behaviour is really ruling the house.I am constantly trying to be patient in the face of his shouting(when he can't make himself understood) or jumping on my head (whichever he is doing at that time) and it does work.People think he is just a spoilt brat who needs a good smack .He is a lovely boy who gets aggressive when upset and also most times just thinks he's playing!! At school he is totally different, he hates school , he looks defeated when he goes to school just really sad and down and he just waits for hometime.I think this is the first place that i have admitted that things are hard sometimes.I sometimes feel like i am in prison, it is a struggle to get him to come out unless it's something for him.We can't decorate his room , even though the paint is peeling off!!(he gets upset at the thought and wants it exactly the same colour i mean exactly!!!) He wont go anywhere without us , my mum looks after him twice a week for an hour and a half after school but he will not have anything to do with her,he either watches t.v or sits on his own waiting.He tells people what they can and can't do (which gets him into trouble with us. ) you can't sit there, you can't come in here etc. Last time we went out at night (me and hubby ) My mum had to ring us as she was really worried, he was sitting on his own in the dark(wouldn't let her come in) and just asking constantly when we would be home .We are now trying to be much firmer and making him come out with us when we need to do anything but the constant upset makes doing things hard.Sometimes he does want to do things and we have a good time and he is great at home, bubbly and confident.I have been reading the posts and can see that this behaviour is part of autism, also can see a pattern e.g he gets upset when something doesn't happen as he wanted or expected.I just want to admit that it gets me down.He is not a naughty boy, he is actually very kind and loving to me (when not jumping on my head that is !!!!) and is an angel at school .How do you sift through what is bad behviour and what is the autistic feature????????????????????? Edited December 8, 2005 by reuby2 Share this post Link to post Share on other sites
tinminer Report post Posted November 15, 2005 Hi all! I'm 41, and was diagnosed with Asperger Syndrome just a month ago. I am married, with one son, who also has AS. He was diagnosed when he was 7 (he is 14 now). Have a full-time job (just), which I am finding increasingly difficult to hold down. Suffer with depression and various anxieties (especially around people). Currently take 15mg of Zispin to help with this. Based in Redruth, Cornwall. Share this post Link to post Share on other sites
bevalee Report post Posted November 15, 2005 Hi Tinminer <'> <'> And welcome to the forum. You will find lots of support here for every thing. Share this post Link to post Share on other sites
tinminer Report post Posted November 15, 2005 Aww, gee thanks Beverley! Makes me feel very welcome.... Share this post Link to post Share on other sites
bid Report post Posted November 15, 2005 Welcome to all our newbies!! Bid Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted November 17, 2005 Gosh, I've missed quite a few of you. Hi to all our new members. Everyone's great here, you get plenty of support and many laughs when your feeling down too. Daisy Share this post Link to post Share on other sites
woodri Report post Posted November 23, 2005 I am a Learning Support Lecturer in a Further Education College and specialise in enabling and assistive technologies. Recently I have acquired an increasing number of Aspergers to support who need mentoring as well as specific help with further disabilities such as dyslexia. My students are learning a great deal about themselves from online forums such as this one and the American Aspies Hangout. I have also created a website forum for themselves within the college Virtual Learning Environment where they can communicate more with each other and store links to external sites for information and support. Share this post Link to post Share on other sites
nellie Report post Posted November 23, 2005 Hi Woodri, Welcome to the forum, I think your input might be quite useful to some of our members. Nellie xx Share this post Link to post Share on other sites
krystaltps Report post Posted November 23, 2005 Hi, I'm Sheena.... I've recently been directed to this wonderful forum by Denise, who I met on the NSE forum. I live on the Isle of Bute and I have three beautiful kids: Callum (6), and 5 year-old twins, Rory and Eilidh. Rory has epilepsy, he was diagnosed earlier this year. Callum has been under observation at school since September, and I recently met with the person who's been observing (title unknown as he's recently started a new job on the island as the autistic spectrum specialist) - who has informed me he thinks Callum has Aspergers. It hasn't come as a shock as I've suspected this for several years (I am a psychology graduate), since he was a toddler in fact. But it's now time to "wake up and smell the coffee". When I filled in the parent's questionnaire, it was as if every question was written with Callum in mind! The more I read about Aspergers, the more I think "they're talking about Callum". So we're just starting down the official diagnosis route, and the support teams are beginning to set up a behavioural and educational plan for Callum. At least now he'll get the help he is needing at school. I only wish I hadn't put this off for so long now..... Anyway, glad to have found this forum, looking forward to getting to know some of you. Better go as the man in question has just appeared downstairs (he doesn't do sleep ), Sheena Share this post Link to post Share on other sites
Kathryn Report post Posted November 24, 2005 Hi Woodri, My daughter (16 years old, dx with AS), has just started a course at her local FE college. I look forward to chatting to you on here. Hi Sheena, Take your time and browse, you'll find a lot of info here and I look forward to getting to know you too. I hope you are managing to get some sleep tonight. K Share this post Link to post Share on other sites
sue45 Report post Posted November 24, 2005 Hi I'm Sue, but I'm not 45 (not quite!), I've had a bit of browse and this is my first posting. I already feel at home. Much of what ~I've read is like reading my own story! My daughter is 13 and we've been waiting for almost a year now to get a proper diagnosis (still waiting!). If it hadn't been for a complete stranger, a lady who worked as a security guard in the local library, I'd probably still be in the dark about why life is sometimes so difficult for me and my daughter. This brave lady approached mme and told me she thought my daughter had aspergers because she had displayed many of the attributes her own daughter had, who was diagnosed at the age of 18. Some might call what she did unethical - I say she's an angel. Over the years, I'd approached my GP's several times to try to find out what was wrong - I cant say they weren't understanding, but no-one managed to put their finger on what was going on. My daughter is very articulate and my description of her behaviour probably sounded like the ramblings of a mad woman, being so at odds with the prim little girl sitting so quietly - a single parent obviously not coping! Anyway, if it hadn't been for the library angel I don't know where we'd be now. It made sense of so many things. A couple of people `i know were initially sceptical and thought `i should leave well alone (would it help her to be labelled?) I must admit, I wondered about that myself - not for long. I remember how people with dyslexia used to be treated - now that it's recognised, there is a lot more sympathy for the difficultes these people face rather than blaming them and accusing them of being lazy or stupid. Besides, like i said,from my perspective, KNOWING there was a reason made so much sense of all the things that hadn't made sense before. I used to swing back and forth between feeling like the worst mother in the world, to going over in my mind what I'd done, or what in her life had done this to her, and sometimes feeling she was the most awful person in the world. Real dislike for your child is heartbreaking. I felt like a failure as a human being and worse, as a mother. All that negativity can't have impacted well on my poor daughter either. As if she didn't have enough to contend with. I think I've gone on here for long enough! Sorry to have taken up so much space, but what a relief to find people out there who know what `i'm talking about. Best wishes to everyone, speak soon. Sue Share this post Link to post Share on other sites
mossgrove Report post Posted November 24, 2005 Sue No need to apologise. You are amongst people who understand exactly where you are coming from. I look forward to talking to you. Simon Share this post Link to post Share on other sites
bevalee Report post Posted November 24, 2005 Hi Sue, Welcome to the forum! We know where you're coming from, because we've all been there. Share this post Link to post Share on other sites
smiley Report post Posted November 24, 2005 Hello to all the new members - this is a great place to find advice, help, understanding and a giggle Mary xx Share this post Link to post Share on other sites
nellie Report post Posted November 24, 2005 A warm welcome to all new members. <'> Nellie xx Share this post Link to post Share on other sites
sue45 Report post Posted November 25, 2005 Thanks for the welcome Simon, Beverly, Nellie and Mary - much appreciated. Looking forward to talking to all. I've got a feeling I'm going to be on here when i really should be doing other things! Sue Share this post Link to post Share on other sites
annie Report post Posted November 25, 2005 Hi Sue, Welcome to the forum , Annie <'> PS. This place is very addictive Share this post Link to post Share on other sites
elainem Report post Posted November 25, 2005 hello to all newbies this is an excellent non-judgemental forum. Elainex Share this post Link to post Share on other sites
Petra Report post Posted November 27, 2005 Hi everyone Sorry I didn't realize I could write about me and mine, I have already posted a question and had some great info back. Thanks for all replys!! I am married with 3 children, J is 12 and has ASD/ Aspergers, I now home educate him as we have had very little support for him and he was getting very depressed, aggressive etc etc. He is great now even though the he part is harder than I thought it would be! H is 10 and Im waiting for a dx, I now have a SLT on side so hope things will get sorted for her soon. My eldest is 16, she no longer lives at home due to not being able to cope with J and H, life has been very tough for the past 2 years but since J has been at home I can now see light at the end of a long tunnel!! I like to read all the posts and get comfort from them, hope that doesn't sound strange??, Can't work out how to get the smilies up but will work on it!! Thanks Petra Share this post Link to post Share on other sites
nellie Report post Posted November 27, 2005 Hi Petra, welcome to the forum Smilies - just place your cursor where you want the smilie and click on your chosen one from the box on the left. Click on show all to see a full selection. Nellie xx Share this post Link to post Share on other sites
~Jonathan~ Report post Posted November 28, 2005 Hi Petra <'> Welcome to the forum Share this post Link to post Share on other sites
mossgrove Report post Posted November 28, 2005 Hi Petra. Nellie has already intriduced you to Robbie: Simon Share this post Link to post Share on other sites
Elefan Report post Posted November 28, 2005 Dear everyone new!! A huge welcome and thank you for finding us! We are one extremely large virtual family now! Kindest regards, Elefan Share this post Link to post Share on other sites
Petra Report post Posted November 28, 2005 thanks all, I will try a smiliey now Has it worked?? Petra Share this post Link to post Share on other sites
bevalee Report post Posted December 5, 2005 Welcome to all of the newbies! Share this post Link to post Share on other sites
OPooh Report post Posted December 7, 2005 (edited) looks round in awe. Hi I have 2 boys (almost 9) and (2). I have a brother (21) with aspergers and My 9 year old is being assessed again for it (at 2 years 9 months they said he couldn't have because he had imaginative play). I have been very interested in this topic area and have a first degree in psychology. I hope to do more with it but currently I am finding it difficult as my son's needs come first and family find it difficult to look after him, so I work during school hours. Look forward to meeting you all better. Edited December 7, 2005 by OPooh Share this post Link to post Share on other sites
ceecee Report post Posted December 8, 2005 Hi Opooh Welcome to the forum Just wanted to say as far as I know you can have immagination and still have A.S. I think what is impaired is the ability to imagine how someone might be feeling. I am sure this is the case but hopefully if I am wrong Nellie or Mossgrove who know far more than me will come along and correct me Anyway welcome to you and all the other newbies <'> <'> <'> Share this post Link to post Share on other sites
mikesmum Report post Posted December 9, 2005 Absolutely. It's 'social' imagination not imaginative 'play' that's missing. They can have so much imagination that they can't distinguish between reality and their own imagination. It's scary when even the professionals don't understand the criteria!!! I'm new too - have an 11 year old son who has just started secondary school and only recently diagnosed. The knowledge that he has something specific has really helped him. It also explains some family stuff, too, which has made many things easier to handle. Share this post Link to post Share on other sites
lynyona Report post Posted December 9, 2005 hi A warm welcome to the new members that i havent said hello to yet and nice to meet you. lynn Share this post Link to post Share on other sites
nellie Report post Posted December 9, 2005 OPooh If you put imagination into the search engine at the top right hand corner of the page you will find lots of topics where this has been discussed. There's also a useful Jargon Buster at the top of the screen. A warm welcome to the forum........a great place for support and information. Nellie xx Share this post Link to post Share on other sites
OPooh Report post Posted December 10, 2005 Sorry for the delay and thanks for the welcomes. I'm having trouble because he's borderline and academically very bright - and well funds aren't what they could be and so have had trouble getting any help because other kids need it more Well he's being assessed by the professionals now but even so, since me and his dad started treating him and using things to help kids with asd it has helped him and us with his behaviours (does that make sense?) Thanks for the warm welcome. Share this post Link to post Share on other sites
Hectorshouse Report post Posted December 10, 2005 Just a quick line to say 'HI' to everyone new who has come on recently, this is a fab place and you are very welcome. I look forward to reading all your posts. HHxx Share this post Link to post Share on other sites
sparkly Report post Posted December 11, 2005 Hi everyone, My younger sister (16) was recently diagnosed (unofficially I believe - I'm not totally aware of the circumstances) with Aspergers. I've been trying to find out a bit about it so I'm more aware of how I can help her, and it's been really interesting and helpful reading this forum Share this post Link to post Share on other sites
Kathryn Report post Posted December 12, 2005 Hi Sparkly, Welcome to the forum. My daughter is 16 and was recently diagnosed last year. I look forward to talking with you on here. K Share this post Link to post Share on other sites
Pink Power Ranger Report post Posted December 13, 2005 Just spent a couple of hours - zipping round site - worrying when I have so much to do!!!! But decided to join - already part of ASD Friendly - so some familiar names! I am mum to 7 year old boy with ASD and AS diagnosis!!!!!! All the same - but it made someone feel important! 6 yr old NT girl - although she really is mad as a hatter! And wife to someone who would have probably benefited from AS diagnosis but got through anyway! (He says it all makes sense now!). Me - I eat, breath and (don't) sleep Autism - love my very precious kids, work too hard and spend too much time getting distracted! Looking forward to getting to know people! Share this post Link to post Share on other sites
smiley Report post Posted December 13, 2005 Hiya and Welcome <'> Share this post Link to post Share on other sites
sis9098 Report post Posted December 13, 2005 Hello to all I am a full time working mum of 2 - my hubby is in the army and is currently away. My youngest son who is 7 has just had an initial diagnosis of Aspergers Difference. I have alway thought, even before he could sit up, that there was something, but I have to confess that it was not this. I don't really know much except what I have read since last Tuesday. I am a little shell shocked! Finding a forum UK based is like a prayer being answered. So far no support (medical or school) has been offered, and I am feeling lost. It is of course early days. I will be spending a lot more of my time reading your posts I know, and asking many questions I am sure, but I hope in time to offer to others the things I need from you all now. Please bear with me, I don't even know what many of the abreviations you are using are yet, but I will learn! Regards Sarah Share this post Link to post Share on other sites
