smiley Report post Posted February 17, 2007 I always forget to say hello! Hello to all the new members Smiley Share this post Link to post Share on other sites
dooday24 Report post Posted February 20, 2007 me toooooooo sorry all you newbees welcome to the forum lv donnaxx Share this post Link to post Share on other sites
Zorro Report post Posted February 21, 2007 Am 36, from North England. Have diagnosed myself with AS in last few months. Am researching as much as I can to perhaps then seek formal diagnosis. Have always known I was different to those around me. In my teens Im amazed I wasnt diagnosed High Functioning Autistic. I think people probably speculated behind my back as social skills were very poor and I was practically mute. More ourgoing these days, but cant do the small talk thing. thanx Z Share this post Link to post Share on other sites
Kathryn Report post Posted February 21, 2007 Hi Zorro, welcome to the forum. Adult diagnosis is a subject that comes up quite a lot on the forum. You'll find lots of information here: please ask if you need help finding your way around. Kathryn Share this post Link to post Share on other sites
dooday24 Report post Posted February 21, 2007 hi zorro welcome 2 the forum lv donnaxx Share this post Link to post Share on other sites
Zorro Report post Posted February 21, 2007 How long would an adult AS dignosis take. I work full time and cant really afford to take too much time off. Share this post Link to post Share on other sites
annie Report post Posted February 22, 2007 Hi Zorro, Welcome to the forum . I haven't got an answer to your question but, if you haven't spoken to them already, the National Autistic Society have a helpline here, they may be able to point you in the direction of a specialist near to you that's AS friendly/aware. Going this way may just cut out a lot of wasted time and/or money seeing somebody that doesn't have an understanding of your difficulties. Keep us posted. Annie xx Share this post Link to post Share on other sites
Bagpuss Report post Posted February 22, 2007 Hi Zorro, welcome to the forum Share this post Link to post Share on other sites
bikergal Report post Posted February 22, 2007 Welcome to the forum Share this post Link to post Share on other sites
whitbywoof Report post Posted February 26, 2007 Hi everyone. I'm a bit bemused - I'm 42 years old and was only diagnosed last week. Most of the information I find is aimed at children and/or their parents. Is there anyone else around here that received their diagnosis well into adulthood? Share this post Link to post Share on other sites
hev Report post Posted February 26, 2007 welcome to all the new members <'> <'> Share this post Link to post Share on other sites
Bagpuss Report post Posted February 26, 2007 Hi Whitbywoof, huge welcome to the forum. Yes, there are members who have been diagnosed in adulthood and others seeking diagnosis. Hope you find the forum as supportive and helpful as I have. Share this post Link to post Share on other sites
bikergal Report post Posted February 27, 2007 Welcome to the forum Whitbywoof. There are quite a few adult members who have only been diagnosed fairly recently and there are several more seeking diagnosis, myself included. My 13 year old daughter is on the spectrum too. Share this post Link to post Share on other sites
phoenix Report post Posted March 3, 2007 hi all, my 6yr old son is in the procsess of a diagnosis, at the moment we are just being seen every 6mths (for the last 2 yrs) & leaving with the opinion that he has AS but nothing is ever put in writing & the school is disiplining his behaviour because of this, i feel i might be calling for your advice as to what my next step should be, as i do feel like i'm being pushed from pillar to post but not getting anywhere, i think it might be because his 'symptoms' are not as obvious as some, & hes not getting the help he needs. i have become isolated from other mums because of jons behaviour, the snide remarks and glares are becoming just too much, at least i have found this site so i can talk about him without apologising with embarrasment about something hes done. jayne Share this post Link to post Share on other sites
Kathryn Report post Posted March 3, 2007 Hi Phoenix, Welcome to the forum, glad you've found us. You'll find loads of support and help here, many will understand the frustrating position you're in. Kathryn x Share this post Link to post Share on other sites
Clare63 Report post Posted March 3, 2007 Welcome Jayne, this forum is great as you have probably read these guys are so understanding, supportive and knowledgable. Sounds like you need to have a good talk with the school and make clear with them the process you are currently undertaking, I managed to get the Senior Social Worker at Camhs to write to school to explain my son's difficulties prior to DX highlighting support he might need and offered contact should the school require information on how they could support my child. Its all a big battle you just have to keep fighting, no one knows your child better than you. Good Luck <'> <'> <'> Clare x Share this post Link to post Share on other sites
donnar Report post Posted March 4, 2007 Hi Y'all, Im Donna i have been married to my husband Martin for 13 years we have four children Damien 12 Shane 11 Shannon 8 and Mirrissa 6. My oldest two children have both been diagnosed A.D.H.D for about the last 4 years. And whilst we were happy with Shanes diagnosis Damien acted different. I have always understood Damien i have always found him to be a good boy and easy to deal with i am his mum i know what he wants and how he feels i know how to talk to him to get the best from him. Many other people found him ignorant and rude, he would act up when he went to scholl and to familys homes. he is a does not like to leave the house, i can never get him out of bed in the mornings and he wont sleep at night. He was let down badley in primary school they kept passing him off as a problem child putting him in a room on his own(which he likes) or expelling him. and this got him through primary not sussessfully but he got through. Then last year he moved to secondary school and everything fell to bits. he almost cant cope with life now he only does 2 hours of private tuition at school wont leaave the house till everyone else is in school then leaves schoool before everyone else comes out for break. He comes home and stairs at the tv hours after hours it is not easy to bribe him away friom the tv as he becomes hysterical if he breaks his tv scedual and misses a programme. he goes back to +1 and starts his routine all over. We finally last week got a BIBIC report back with a diagnosis of Aspergers. My problem is people still dont want to learn how to deal with my son fmaily just say well this was never around when i was a child it is just an excuse for a naughty child. I get so fustrated because he does not look like a down syndrome child someone with a viasable disability people assume he is ok. they refuse to try and understand him. If they took 5 minutes to talk to him they would understand what a wonderfull little boy he really is. So how do i go about changing peoples attitude to explain to them why he acts like he does and how to talk to him. Even with a diagnosis the school he is in still does not seem to want to understand him and because of ignorance his education is being flushes away. he still cannot read or write and he refuses to socailize with anyone. My little girls are miles ahead of him behaviour and academic wise and they are very healthy. My other son Shane is dyslexic and ADHD and he to is suffering the mainstream schools dont seem to like to take the trouble to understand children with learning difficultys they just throw them off as PROBLEM CHILDREN untill the can pass them on to a new school. I have a specail needs school neawr me but i have to have a statemnet to get him in the trouble is he is 13 nearly now and this prosess takes time is he going to have missed his entire eduction because the state school are ill equipt to deal with him. I have to say i am very scared as to my sons future the more he is let down by ignorence the further into himself he gets. Ok so explanation and rant over ! sorry about that needed to blow off some pent up fustration. But any sujetions would be greatly recieved i am completly lost for answers thanks Y'all Donna Share this post Link to post Share on other sites
bid Report post Posted March 4, 2007 Welcome to the forum Donnar It isn't too late to get your son a Statement. My son was just 15 when I finally got a Statement for him (third attempt in 10 years ), and I also got him a place at a residential special school for AS. He is now at a residential special Further Education college for AS, and coming up for 18. Take your time to look through the pinned threads at the top of the education section here, as there is loads of excellent advice over applying for a Statement. Apologies if you already know this, but you are also entitled to apply for Disability Living Allowance for your son, if you think he requires more care, support and supervision than most children of his age. Good luck! Bid Share this post Link to post Share on other sites
SarahSH Report post Posted March 6, 2007 Hi everyone I'm really glad to find this forum although I wish I had found it years ago when my son was shouting 'help! my mum's forcing me to come here!' in the supermarket and kind old ladies were giving me evil looks & I just had to smile and take it! he's now 14 and we're through the worst with any luck... until he finishes school I really like getting the post head ups and reading everyone's comments - makes me realise it's not just me!! Sarah Share this post Link to post Share on other sites
annie Report post Posted March 6, 2007 A big warm welcome to all our new members . Annie xx Share this post Link to post Share on other sites
caren Report post Posted March 10, 2007 <'> welcome to all the new members Share this post Link to post Share on other sites
Clare63 Report post Posted March 10, 2007 <'> Welcome one and all Clare x Share this post Link to post Share on other sites
dolly Report post Posted March 18, 2007 Hi everyone Even though i've been posting for a while never done a proper introdution .So here goes. Im Debbie aka Dolly im a single parent to 23 year old twin girls and 7 year old son Kofi who after a long battle has been DX as autistic . I also have 2 grand daughters. Kofi has very little speech and until about 18 mnths ago was non-verbal. He attends our local special school where he is doing fab. After the bad time with DX we have been very lucky on the ed side of things . All we need to do now is sort out the sleeping issue gave up on the restricted diet ages ago . Well thats us look forward to chating to you all. PS appoliges in advance for my awful spelling Share this post Link to post Share on other sites
Shnoing Report post Posted March 18, 2007 (edited) Hi everyone <'> I'm 36 and married. Our son (3) has been diagnosed "suspicion" of early childhood autism (ICD-10 F 84-0.V) recently. I've done the AQ test (wired) and had 30 points in 2002 and again in 2007. This could be AS - or BAP, as I don't feel communication deficits or clumsiness when looking at myself. Edited March 18, 2007 by Shnoing2 Share this post Link to post Share on other sites
annie Report post Posted March 19, 2007 Hi Dolly and Shnoing2, Welcome to the forum . Annie xx Share this post Link to post Share on other sites
caren Report post Posted March 19, 2007 hello and welcome dolly and Shnoing2 Share this post Link to post Share on other sites
MotherofanAspie Report post Posted March 20, 2007 Hi, I'm new to this forum. I've got 2 boys, the oldest (just turned 12) was diagnosed with AS at Christmas - now I know how my "square peg" fits into his "round hole"! I have my doubts about my second too, he's got some odd characteristics! My oldest was taken on as an emergency due to the severity of his meltdowns, we were told that he'd need an assessment, but that the waiting list is at least 2 years! In the meantime, it's up to me to sort him out. His school are trying to help, but need guidance. He's incredibly intelligent, but struggles to complete his classwork and homework. If they leave him for the next 2 years, may not do as well as he should academically. I can't believe that nothing can be done in the meantime, I've been in contact with support groups, who have been helpful, but is this delay normal? I've written to the CEO of our NHS trust to see if I can persuade him to intervene and sort something out. Does anyone have any suggestions? We live in Hampshire. I'm also now a single parent, (my ex blames me for the AS, so not much support there!) fairly new to the area, so any friendly emails etc would be welcome. Thanks for reading this. MotherofanAspie Share this post Link to post Share on other sites
annie Report post Posted March 20, 2007 Hi MotherofanAspie, Welcome to the forum . Many of us here will understand your frustration . Trying to get any kind of help for our children seems to involve a fight . Have you written to your MP? Some of us have been down that route. Getting them involved does seem to help. Annie xx Share this post Link to post Share on other sites
phoebe Report post Posted March 20, 2007 (edited) Hi to all newbies and welcome to the forum. To motherofanaspie - dont know what you have tried already, but we went to the GP asked for referrals, we saw EP's, we banged our drums at school, we had a telephone consultation with a psychologist through the youngminds association, we contacted the NAS, we asked for advice, wrote to our local MP, the LEA, the ED psychology dept, CAMHS and more...........it is bl***Y hard work and it takes a while, but 2 years wait, NO that is not good enough. Have you requested a statutory assessment yet? Is he on School action plus? Is he getting any support Phoebe Edited March 29, 2007 by phoebe Share this post Link to post Share on other sites
Bagpuss Report post Posted March 28, 2007 Sorry to be so late....but a huge warm welcome to all new members <'> Share this post Link to post Share on other sites
Little Monster Report post Posted March 29, 2007 Hi, I'm Mummy to a 4 yr old gorgous little boy on the severe end of the spectrum and a 3yr old beautiful little girl who's awaiting diagnosis. We live in England with 3 gerbils and 2 cats. Little Monster Share this post Link to post Share on other sites
annie Report post Posted March 29, 2007 Hi Little Monster, Welcome to the forum . Glad you found us. Annie xx Share this post Link to post Share on other sites
bikergal Report post Posted March 29, 2007 Hi and a big warm welcome to all the new members Share this post Link to post Share on other sites
cheekychic1111 Report post Posted March 30, 2007 Hi and a big warm welcome to all the new members Hello thanks for the welcome. Here's a brief overview of our battle. I have just arrived here though have been down the CAMHS route for the last 18 months. Last year my son was diagnosed with OCD and a few weeks ago we were told he is also ASD. We were initially told there was a six months wait for CAMHS reduced from 18 as they took some action but were seen immediately when bullying from his teacher made him suicidal!! If they are a risk of self harm or harm to others the waiting list is ignored. Thankfully. I am still fighting to even get the school to recognise they treated my son in the most appalling way. The head even threatened to come down hard on him when I told her he wanted to kill himself rather than face the teacher. The teachers response was he could get better paid work elsewhere for less hassle and not a care for the child whose life he had made thoroughly miserable. I have been fobbed off through the first three stages of the schools complaints procedure but I am not finished yet :-) I had to change his school and he's doing brilliantly now so my message is dont give up and dont let the cleggers grind you down :-) Share this post Link to post Share on other sites
ellisisamazing Report post Posted March 30, 2007 Hello and welcome to all newbies! <'> Share this post Link to post Share on other sites
annie Report post Posted March 30, 2007 Hi Cheekychic1111, Welcome to the forum , Our journey is pretty similar to yours . Thankfully, our son is finished with school now as he is 17. We were fobbed off by the school when we went through the complaints procedure, even the Chair of Govenors didn't bother to reply to us . We also put the complaint in writing to the Head of Education at our LEA and our MP. The school has never apologised, but the Head of Education wrote to tell me that the Chair of Govenors were wrong by not even acknowledging our complaint and came down on them about it . The whole thing was wrong. I do feel satisfied though, that even without getting an apology, the school saw that I wasn't going to just go away. Annie xx Share this post Link to post Share on other sites
Tufty Report post Posted March 30, 2007 Hi I'm new here. I'm Julie and my youngest son has just added Aspergers/able ASD to his list of vague diagnoses! He has had global delay and some muscle problems but is now proving himself a more able than previously guessed young man:) He has a phenomenal memory, is obsessed with Andrew Lloyd Webber musicals and is a very sweet and very anxious child. He is Statemented and is one of the most able in his special school. He was dx as having moderate learning difficulties, but actually has very scattered skills. He has a huge vocabulary and can (and does) talk incessantly..but no understanding of a conversation. he can read..but not really make sense of it.. and he loves maths because it's logical, and spends hours reenacting musicals with pencils.. his main 'plaything' He does have limited imagination but most is renactments..and he is very good at getting it perfect..(just looks a little odd unless you know that THAT pencil is Jesus..the pink one is Judas..etc!!!) He is a very passive anxious child, terrified of anyone being upset because he doesn't comprehend WHY other children son't follow the rules... he is VERY anxious to be good and right. He adores all adults and will monologue anyone, but is very unsure of all but a small handful of familiar children:( I work in the same school, but my class are at the most severe end of the spectrum, non verbal with very challenging behaviours. I love it, though I could do with a few less bruises!!!!! I have a particular passion for PECS! (and out of school..red wine, cats and photography!) Look forward to meeting everyone! Juliex Share this post Link to post Share on other sites
cheekychic1111 Report post Posted April 1, 2007 Our journey is pretty similar to yours . Thankfully, our son is finished with school now as he is 17. xx Hi Anne et al. Sorry you have had the same from schools. It shouldnt be this way. I am making my stand because although my child is safe and doing well now i'll be blaggared if I let them do it to another child. I went to a meeting last week and met a "Children's Champion" whatever one of those is who has offered to look into my case. I'll take it as far as I can to make them accountable. If I cant make them accountable, I'll make them uncomfortable enough to think twice before teachers bully another autistic child. Share this post Link to post Share on other sites
cheekychic1111 Report post Posted April 1, 2007 HI Julie your son has many thing in common with mine. He's very anxious, worries a lot and he is completely unable to lie. That one has put me in some really funny situations. Dont ever ask him if your bum looks big - he will tell you Share this post Link to post Share on other sites
baddad Report post Posted April 1, 2007 Hi all newbies - As always, I only ever remember to pop in here when it's at the top of 'new topics' - so that hi probably applies to at least three pages worth of you! Welcome aboard, and hope you find some answers, resources and of course bags of support... L&P BD Oh... BTW... Dont ever ask him if your bum looks big - he will tell you Autists tend to consider the above (or any variation thereof) a valuable public service! Share this post Link to post Share on other sites
