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florrie

autistc son homeless sleeping rough and starving

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my autistic son has been homeless for a week now and sleeping rough and starving due to another incident where my ex partner threw him out as he feels that he cannot cope with the behaviour, and his own home is at risk he was accused of dong something by neighbours in flat block which he denies (he doesn't lie) and he went ballistic and smashed the door slashed sheets carved swear words in the door and took computer card which cost 128 to replace, these episodes are regular occurences. I though he was staying with friends and I went to give him money, I'm on benefits and i am overdrawing to support him as he still is not receivng benefits although 18 now and I realised on questioning he had no recollection of any of this behaviour, and also that he is slleeping rough but is too proud to admit it he is in denial about any difficulties including autism which makes thing even more difficult. He came to my house because he was cold but had an outburst when I suggested ways of trying to help eg go to doctors and smashed my door too, i believe he may also have something similar to schizophrenia in addition, I 'v had similar problems myself in past but was undx, and i'm doing my best to cope.

 

I can't get eanyone to take j or my difficulties seriously, I have had all my referal requests for myself and J blocked and I've resigned myself now to the fact that he isn't going to survive because no one cares and we live in a society where everyone just passes the buck, Ihav e written to everyone for advice but i can't seem to get anywhere, he has been let down by eduational people medical peole and social services, there is no understanding of autism or asd in devon and all social services resources go to the elderly there isn't even a psycholgy support service as you have in london, it seems that this is allowed to happen and i can't seem to do anything to prevent it which is what i've been trying to do this last year, I gave him some money but he blew the lot becasue he can't organise food or anything, and I think he may have used it to self medicate with alcohol, I also have difficulties organising my own food which every effort imaginable has gone into a routine i can cope with that works for me.

 

I s there anything i can do if you suggest writing to anyone, i've probably already contacted them i've written to about 500 people in the last year bearing in mind I also have communication problems and people misinterpret me and pass me on to someone ele and we just end up back where we startedm, my ex partner has put a lot of work into this too and he has not been effective either.

 

I s this really possible that people allow this to happen so he slips through the net completely, and is effectively allowed to starve to death. I feel bitter angry resentful and like a wound coil ready to explode, we have also had records manipulated and doctored in the past too so we have no comeback on anyone who has contributed to this state of affairs, so i feel paranoid too.

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Florrie - I am extremely sad about your posting.

 

I wish I could help you but the only suggestion I can make is that perhaps you could contact one of the voluntary agencies such as MENCAP or NAS and ask them to provide you with a support advocate and advice. The local Citizens Advice may be another source of where to go for help. Sounds like you need someone to help you put you message across.

 

It goes without saying that hugs are sent

 

HelenL

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Florrie. What is happening is disgraceful and totally unacceptable. There must be someone who can help. Can you contact your MP? You say SS have let you down, is it worth giving them a call again? There must be an emergency number. Your situation (regarding your son) is an emergency, don't SS have a number for such emergencies? The fact that your son is turning his back on the help that you are trying to offer him makes it all the more necessary that he IS helped. Can't you go to his GP and beg him to do something because your son is in danger. I don't know much about it, but one way of getting help is to have him sectioned under the mental health act. It sounds extreme, but by the sounds of it your son's situation is extreme. I will do some research on the internet to see if I can find something useful for you.

 

>:D<<'> >:D<<'>

 

Lauren

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Florrie - I really feel for you. Sorry that I can't offer any advice - I'm sure someone will post something soon that will help.

 

Chin up and take care.

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Hello Florrie,

 

>:D<<'> >:D<<'>

I know from your previous posts that you've been trying for a long time to get help for your son from various agencies, and I can only guess how worrying this current situation must be for you. On the one hand you have professionals who don't understand, and on the other hand your son doesn't want to accept any help in dealing with the difficulties related to his autism.

 

At the moment I'm at a loss to know what to suggest, apart from the obvious, and as you say you've already tried just about everyone. I know you havent had much luck with social services and you've involved your MP before. At the very least your son should be receiving benefits, such as income support and possibly incapacity benefit. Does he get disability living allowance? Social services should be able to help you sort that out at least, or your local citizens' advice bureau.

 

What is important now is to identify what help your son needs and will accept, and what is best for you, as your needs are just as important. Do you still think your son could cope with living on his own with some support? He clearly needs help in managing his behaviour and dealing with anger, and if as you suggest, he has mental health problems as well he needs specialist help for this too. You can't continue to contain his problems on your own without support.

 

All this is a big load for you to cope with and it would be good if you had someone locally who could advocate for you and talk through things with. Have you tried the local NAS branch or are there any other ASD support groups in the area you can turn to? I apologise if you've already tried this and got nowhere. I know it's easy to say what should be done, much more difficult to make it happen. If I can think of anything else that might help I'll pm you.

 

Kathryn

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Florrie >:D<<'> >:D<<'>

 

I am so sorry. It makes me so angry when I hear stories like this. I know the effort that you and your ex partner have made to try and get help for your son, it's difficult to know what else to suggest.

 

Your son is an adult, the authorities may say they can't assist because he's unwilling to accept help. Unfortunately he is not just unwilling to accept help but probably unable without expert support.

 

If he is a danger to himself or others he can be sectioned, not a great option but better than starving or prison. If he was sectioned he would be safe and secure and this would give you time to hopefully get the appropriate help he needs and ensure the statutory care assessments that he is entitled to are done and the appropriate provision provided on his discharge. I could be wrong but I believe they have a legal duty to provide provision to someone who has been sectioned.

 

The other option is for your son to ask to be admitted to hosptial for his own safety. My son did this because he was suicidal but was shocked to find out that once admitted he would be sectioned if he tried to leave.

 

When my son was in hospital I got in touch with sane, I found them to be very helpful.

http://www.sane.org.uk/

 

Florrie, my thoughts are with you.

 

Nellie >:D<<'> >:D<<'> >:D<<'>

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Iwould book an emergency appointment and go and speak to his GP tell him all your concerns. He would have your sons past medical history and could refer him to social workers, mental health team etc.

Tell the doctor that you son smashed up his father accomodation and then done the same to yours.

 

Lets us know what happens.

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Yes I see this as a medical (mental health) emergency too. Is there any chance that he is taking drugs? I think both you and your ex should visit your son's GP ASAP.

 

Sorry you are going through this.

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Thank you for the advice, I will definititely follow through some if not all of this, some of it hadn't occured to me I need to take time to think through it I really appreciate the advice and support every one has taken time to give, it takes the edge off the acute pain I feel over the situation.

 

Call me jaded yes there is a possibility he could be doing some drugs to self medicate, which obviously is not going to help things, but it is not responsible for his current behaviour, because he has always been like that, and I was always trying to understand what was causing his distress right from when he was baby and he had tantrums where he would scream for 2 hours until he fell asleep with exhaustiion, and there was nothing I could do to relieve his distress, my other son was so easy, i couldn't believe it, I've always tried to minimize anything that caused distress, but it got harder as he got older and that is one reason why I eventually broke down and was not able to cope with him , and i seemed to aggravate things. I definitely agree he needs more specialist help and medication to help his stress, so will try to follow those through, although K has contacted doctor and they just shrug shoulders and say if he won't go there is nothing they can do as he is 18, but they said that when he was 17 too. Anyway I will discuss it with K what to do next and will keep you posted.

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>:D<<'> Florrie ~I can't even imagine what you or your son are going through at the minute, sounds awful. What I would suggest, contacting GP/SS/etc has already been suggested. I really hope this turns out ok, for both of you >:D<<'>

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florrie sorry to repeat what others have said but it is really hard to imagine what you and your son must be going through. My DH (undiagnosed AS I suspect) had a mental breakdown about 9 years ago. I cannot even begin to explain his behaviour leading up to this. His brother was about to arrange to have him sectioned, this was not necessary in the end as he admitted himself voluntarily. However he was not able to leave. Florrie the fact that you are battling this on your own is hearbreaking. At least I had the support of my family. My brother-in-law was a god send and bombarded the GP until she helped. I wish I could offer more constructive help but you need someone to act on your behalf. Don't try to be strong in front of these people tell them you are at the end of your reserves. Sending you lots of >:D<<'> >:D<<'> >:D<<'>

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Guest hallyscomet

Hi Florrie,

 

One more thing to what has already been said, I agree with Nellie, trying to get him admitted to hospital, as the system will have to help then, they won't be able to fob him off.

 

I know a family over here were having trouble for years with their son, because of a wrong diagnosis; violent and all the things you said for years they were treating him for Schizophrenia, he hit rock bottom many times as he refused to take his medication, it turned out he had Bi Polar Disorder and not Schizophrenia, but it took a spell in prison before he finally got a true diagnosis and sorted himself out. This was awful for the parents,they were ashamed to tell anyone, but, finally their boy is on track.

 

All this happened because he was on the wrong medication. Had been in and out of Hospital and treated all that time for the wrong condition. He is in his early 30's now. Was married and his wife left him and refused to let the children see him. I believe he is a completely different person now. :tearful:

 

Be strong >:D<<'> >:D<<'>

 

Hailey

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Oh Florrie >:D<<'> :tearful:

 

I'm so, so sorry...this is appalling :tearful:

 

I can only echo the concern, support and advice that others have posted >:D<<'> >:D<<'>

 

Please stay on the forum...you don't have to go through this alone >:D<<'>

 

Bid >:D<<'> >:D<<'>

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This must be so worrying for you. He really does need a lot of help and support.

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florrie just want to send you a >:D<<'> ,i had to get my mother sectioned when she had a breakdown due to alcoholism and it is not a pleasant thing to have to do to someone you love but i dont think you can cope with this alone any longer, i cannot give you any more advice as to what you should do next as everyone has already made sensible suggestions,i hope you get the help that you both need and deserve.

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Hi Florrie, this cannot go on. I would phone SS and insist that they take action immediately or you will be telling your story to the locla papers about the lack of help !!!! I also think that to get him sectioned would actually be a good thing at this point. He would then be "in" the system and a plan would eventually be worked out for him, plus medication if needed.

 

It is a very traumatic thing to do, it happenedd to my Mum when she had dementia, and she ended up in a home on christmas day !!!!! but it was actually the best thing for her, and she eventually settled down and was much happier. Florrie, you NEED to do this for your son, he will call you everything to start with, but one day he will thank you. Good luck >:D<<'> >:D<<'> >:D<<'> >:D<<'>

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Hiya Florrie >:D<<'>

 

What a horrible situation - i can't imagine how worried you must be.

 

The only thing i can think of to add to all the great advice is to contact your GP and ask for the number of the Crisis Team (If GP doesnt know - the psyciactric nurse attached to the surgery will). The Crisis Team are there for exactly that - a crisis. They can act without the concent of your son (you were saying he wouldn't ask for help..) if he is a danger to himself and others. They will most likely section him - but at least he'll be warm and fed and secure and will hopefully begin to get the help he needs.

 

Hope this helps - PM me if you'd like some help with any of this >:D<<'>

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Thank your for all the help and support and advice, well j stayed here last night thankfully, well he arrived about 3 in morning and got up around 12 and asked me take him to a friends only about 5 minutes a way well last time i took him I got lost and started panicking, because it was like a maze I culdn't find my way out of in the pitch dark, and he gave me directions but I have difficulties following thing auditory processing prob and he has difficulties articulating, and he went ballistic calling me every abusive name under the sun acccusing me of faking problems being thick and having abused him when he was younger and started smashing stuff and i thought he was going to attack me and I got really frightened and asked him to leave but he wouldn't although eventually he did much to my relief.

 

He is clearly delusional now so I have decided that I think I agree that having him sectioned would be best because he is in such a distressed state of mind he may attack someone, but I haven't discussed it with K yet and Idon't know whether he will agree, he will decide the best cause of action to take there is no point me going to doctor without k they won't listen to me, they struck me off after a suicide attempt and told me k was abusing me when i first presented with difficulties, so it is a right mess and no one admits they made a mistake that s part of the problem with getting anyone to take any of this seriously.

 

K has decided to let everyone who has been involved know he is homeless however and see what happens and I havve an appointment with my doctor on Monday which was made 2 weeks ago and only the 2nd in 6 years becasue of my fear of going back, but J no longer has the same doctor as me, his is k doctor.

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I have talked to k about today and he is making an emergency appt with a gp tommorrow but doesn't think they will section him as they need to see him, I think his depression has become so severe it has turned into psychosis, for want of a better word. I had something similar myself once about ten years ago, but i didn't know what it was then

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Me too >:D<<'>

Am I right in thinking it only takes one signature for a section ? I know it will be difficult if both parents don't agree on this action, but if you're doing what you feel to be the right thing....

I hope you soon get some help,

wac

 

P.S. my nephew was sectioned at 18 by his father, he would have not sought help by himself, he still can't see why he needed help.

Edited by waccoe

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my autistic son has been homeless for a week now and sleeping rough and starving due to another incident where my ex partner threw him out as he feels that he cannot cope with the behaviour, and his own home is at risk he was accused of dong something by neighbours in flat block which he denies (he doesn't lie) and he went ballistic and smashed the door slashed sheets carved swear words in the door and took computer card which cost 128 to replace, these episodes are regular occurences. I though he was staying with friends and I went to give him money, I'm on benefits and i am overdrawing to support him as he still is not receivng benefits although 18 now and I realised on questioning he had no recollection of any of this behaviour, and also that he is slleeping rough but is too proud to admit it he is in denial about any difficulties including autism which makes thing even more difficult. He came to my house because he was cold but had an outburst when I suggested ways of trying to help eg go to doctors and smashed my door too, i believe he may also have something similar to schizophrenia in addition, I 'v had similar problems myself in past but was undx, and i'm doing my best to cope.

 

I can't get eanyone to take j or my difficulties seriously, I have had all my referal requests for myself and J blocked and I've resigned myself now to the fact that he isn't going to survive because no one cares and we live in a society where everyone just passes the buck, Ihav e written to everyone for advice but i can't seem to get anywhere, he has been let down by eduational people medical peole and social services, there is no understanding of autism or asd in devon and all social services resources go to the elderly there isn't even a psycholgy support service as you have in london, it seems that this is allowed to happen and i can't seem to do anything to prevent it which is what i've been trying to do this last year, I gave him some money but he blew the lot becasue he can't organise food or anything, and I think he may have used it to self medicate with alcohol, I also have difficulties organising my own food which every effort imaginable has gone into a routine i can cope with that works for me.

 

I s there anything i can do if you suggest writing to anyone, i've probably already contacted them i've written to about 500 people in the last year bearing in mind I also have communication problems and people misinterpret me and pass me on to someone ele and we just end up back where we startedm, my ex partner has put a lot of work into this too and he has not been effective either.

 

I s this really possible that people allow this to happen so he slips through the net completely, and is effectively allowed to starve to death. I feel bitter angry resentful and like a wound coil ready to explode, we have also had records manipulated and doctored in the past too so we have no comeback on anyone who has contributed to this state of affairs, so i feel paranoid too.

re living roughwhat you are going through my younger brother is 25 nowhe had probs from a young age but my mum never tried 2 find out what was wrong i practically brought him up,he was socially isolated

no genuine frinds couldnt keep a job,and always needing somewhere 2live he lived with me on and off ,but i have 5 kids with multi complex diagnosis and his behaviour and drinking etc caused absolute havoc we r in surrey drs wouldnt help until he went himself but when i got him there he convinced them he had no problem,finally i found he was sleeping rough in a feild and had been 4 3months but convinced me he had a place 2 live,i took him back in much 2 my husbands disaproval but ended up getting him taken 2 mental health hospital by abulance as he started self harming,twice they released him and i had 2take him in again finally they listened when i refused 2 take him bk and told them i couldnt cope anymore with my kids and my brothers problems,just last year they diagnosed him with borderline personality disorder,which was at 1st mitaken 4 schizophrenia,this may have developed from undiagnosed asd in childhood,he was put in supported housing and is still there but he is not supported properly he is only still there because they sorted out his benefits,rent etc he will never hold down a job still drinks far 2much and once again hasnt had support is not taking his medication,he was socially not excepted for so long he is just past caring,your son needs total support and understanding and you havent got the support 2give him because of your own difficulties,u must feel terrible and i do sympathise but you must tell your son if he doesnt get proper help and admit 2 adoctor his problems than you can no longer help him,he must start 2help himself all the time i did everything 4 my brother he wouldnt help himself,there are many people wno have similar problems in our world we can only do so much ,hes your son but your his mum help work both ways,i hope this helps post me anytime takecare keepstrong

hayz

i totally understand

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Hi hayz, thanks for your story, i really feel for you and really related to it, Have you ever considered that your brother may have undx asd it just sounds familiar, and i'm certain that some people with undx asd or those that get inapproriate help meay develop more serious mental health problems, which is why it is so important that it is recognised by professionals, it is what happened to my father and is happening to my son and haappened to me also.

 

I spent 10 years trying to get someone to acknowledge my sons difficulites stress levels, he was dx with aspergers but he had sever language delay didn't speak till 5 and i spent 4 hours a day developing straegies for him to speak but it was really sophisticated echolalia, which fooled everyone but me, i think now i did him harm by doing this, if i'd never bothered he may never have spoken. School was difficult for him and by the time he as 8 I was at the end o fmy tether and the head teacher who had apparently special needs training,( one day course I reckon) but i'd gone off privately and had tests done which showed he had language processing probs, when the lea were involve she didn't tell me abut any meetings about my child which i was supposed to attend so she could keep control of it i presume but i found aout via another parent, and I was livid , she did eventually resign because she was doing this to a lot of children, but it did contribute to my paranoia and lack of faith in anyone, helping you.

 

YOur story sunds quite familair my father was dx with manic depression as teenager, ionly found out 2 years ago, but now I understand his violent psychotic behaviour which he is still in denial about, I've also had episodes long before i even knew what asd or even mental illness was, but it wasn't dx partly because i'm so good at masking for short periods which i've done all my life, my nephew was dx via a brain scan with autism and psychosis, but when she tried to get in wrting he wuldn't in case he got sued later on and also said he might go away as it sometimes does, she was livid, and has tried to pursue it but now everyone is saying he hasn't got autism, but they haven't done any proper assessment, and she can't seem to get one.

 

My mother also had some weird problems she abused my adopted sister by gagging her at night depriving her of food, my mother believed my sister was from the devil and that god was telling her to do this she is catholic, but she was normal in every other respect and was and is fine with me, when I told someone theyasked whether my mum was schizophrenic, it had never occured to me because she struck me as the most normal one out of both my parents, my sister ran away from age 11 and eventually didn't come back from 14,lived with an old man in return for food, when the schoold invited psychologist in they said my sister was a liar and a fantasist, although I have to say if they had believed her and taken us all into care that would have been a night mare for me, and the man who ran the home got done for child abuse 20 years later. My mother was highly regarded professional in the field of education and ex royal ballet but she didn't believe dyslexia existed and when i went to help her once i had an affinity with children with difficulties and felt upset at the way they were treated, she was devoted to my father, so there was no way anyone was ever going to believe my sister.

 

Any way the point of this i just hope i am not going to have spend years trying to get them to take jakes probs seriously again, because I haven't got the stamina for it now, and I think he will convince them their is nothing wrong and for short periods of time he is able to sustain this mask, he will probably blame it all on me, he will see the same people I saw who see me as a nuiscance because I went off and got my problem dx privately so that will suit them, i don't really care , but I just have no faith that they anyof our interest at heart at all. I don't know why all this keeps happening to me, i know it sound unbelievable to have it keep happening, I think it is partly to do with my own communication problems and all the detail that |I go into to try and explain rather than being able to summarize.

 

I'm really hope that we are just going to be fobbed off yet again and J may be able to convince someone there is nothing wrong, because that seems the history of things inour family, and I don't think I have got the stamina to continue, and i'm also scared Imight blow a gaskit myself and do something I regret, the reason why i don't go to the docotr is because he chucked my private report across his desk like it was rubbish and said we can't accept this its not from us, I felt a mixture of intense fear and anger so severe i thought I could punch him of course i don't think I would but you never know, all i'm trying to do is get help for me and J and they make it impossible.

Edited by florrie

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Hi Florrie - I'm so sorry you have had such a horrible experience trying to get help. I read your last post and just felt so terrible for you. It sounds as though you could do with someone to sit in on your appointment and explain things on your behalf if you have difficulty communicating verbally. You write clearly what your problems are. Would that be a good starting point? To write things down rather than try to verbalise? I'm sorry, I don't know what else to suggest.

 

All the very best - I hope GP apppointment goes well.

 

Sue

 

xx

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Florrie,

 

>:D<<'>

 

Thinking of you today and I hope K's appointment with his GP, who is hopefully more sympathetic than yours, will result in some definite action to help you all.

 

K x

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>:D<<'> Florrie >:D<<'>

 

You've been through so much - i really hope you all get the help you need. Remeber, you need support as well, there's only so much one person can take >:D<<'>

 

Very, very best >:D<<'>

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have you tried ringging the goverment ? i did that once i rang jhon presscot but i got some old lady telling me to ring some one else she said there was an emergancy number i could ring so i rang that number and i got a warning from the police for wasting goverment time this is one reason i feel the world hates me

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Well things have changed a little, k out of the blue nothing to do with current situation got a maybe offer of bedsit for j in town which is what we were trying for him last year, but it is not definite, they feel they have satisfy themselves that he can cope which is why he needs benefits and other support in place which we need to pursue for him.

 

K made an appt with doctor who rang him instead and the arrangement is that J goes on wednesday, and then for interview for this bedsit, he doesn't know this yet, I haven't seen him since last episode, but he has a mobile that k has been keeping topped up, k says the gp is definetly more proactive than last one, and i've change my gp too, in the practice, so it looks more positive at present, and hope this is the turning point. will keep you posted on how things go, just hope j will go.

 

Thanks all so much for you kindness and support and advice which I may not have pursued with k without it, because he didn't realise how serious it was.

 

microsoft admin, I don't think the world hates you, but i know it can sometimes feel that way and its not very nice, but there are lots of nice people out there too.

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Florrie,

 

This sounds hopeful - at least now you know something is happening and you don't have to do it all on your own. I'm glad you've managed to change your GP: I hope the new one is more supportive.

 

Let us know what happens,

 

K

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